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Welcome to your July newsletter I hope you will enjoy the newsletter but you will see from the content that less sufferers are finding their way to us sadly and consequently there are less new members and less introductions. Hopefully it will improve in the coming months as we try to regain our position on search engines. You logging in will help show the forum is being used by many
Please log in and have a look at what's new ...there are links here to members photos, poetry, music and lots more. The forum team have been busy keeping an eye on the Club and are there for you, so if you can't find something you are looking for or if you aren't sure how to do something, we are here to help just click the link below to make contact
I'm always looking for ideas to improve the newsletter if you have a suggestion contact me or if you prefer any of the helpers HERE
If you are currently a subscriber to the newsletter you will receive notification with a link at the beginning of each month. If you don't currently recieve one and would like to receive an email when a new newsletter is made click Here!
Note: Subscribed members get an early view of the newsletter.
Please look at these introductions and come and welcome the new members that have taken the trouble to write an introduction.
Nero says a quick hello ....
Hi All
Just joined your forum. I was diagnosed with P in 2004, aged 43, and in Feb this year was burdened with psoriatic arthritis. I've been on the carnivore diet for 20 days as a way to treat both, but I'm coming off the meat wagon. It's made me too skinny, and I was already thin to start.
I'll still keep my diet fairly restrictive: no grains, no sugar, and I react badly to dairy n eggs. And I'll see how it goes.
I've also, last night, started taking low-dose naltrexone. Apparently it takes a while to kick in, so I'll update any results if and when
Read the rest here
Members Treatments, Questions and comments . click on the links and see if you can help.
georgiana2604 wrote about Taltz injection site redness
Hi,
My name is Georgiana. I have psoriasis for 20 years. I started treatment with Taltz 2 weeks ago. The results are incredible.After I made the first dose, the injection site was red, after which the skin returned to normal, but this morning I woke up with the places where the injections were injected again inflamed. Do I have to worry about it?
Read more Here Jiml changes treatment from Fumaderm to Skilarence Today I had an appointment with the dermatologist and she examined my skin and was happy with the lack of plaques
I told of my scalp and the bit of flaking there
Now bearing in mind I have been on Fumaderm for 7 years and it has been very good to me in as much as I almost forget I have psoriasis and don't consider it anymore when making plans. I can wear dark or light clothes without any embarrassment .To be honest I am beginning to forget how bad it was for 50 years of my life
I'll get to the point, while there they wanted me to switch from Fumaderm to Skilarence, I was pleased as hopefully my GPs surgery can prescribe it for me ........
Read more here Kevinito wrote From topicals, light, Enbrel, Humira, Methotrexate, Stelara, Otezla, Cosentyx...
. ......to Skyrizi.
The last stint of Cosentyx did not work - on for six months with little relief. The doc recommended Skyrizi - anyone familiar with this one? Any expectations/concerns?
Also, where do they make up these names?
Read the rest Here
Psoriasis News and other related items .
Females less satisfied with biologicaltreatmentsfor psoriasis
This study set out to identify possible differences in satisfaction with biological treatment between female and male psoriasis patients.
Female sex has been reported as a predictor for treatment discontinuation with biological therapies for psoriasis, although reasons remain unclear. It can be hypothesized that lower satisfaction with biological treatment in women might add to the lower drug survival rates.
The objective
To identify possible differences in satisfaction with biological treatment between female and male patients using the Treatment Satisfaction Questionnaire for Medication (TSQM).
Data of psoriasis patients treated with biologics were obtained from the prospective, multicentre, daily‐practice BioCAPTURE registry. Longitudinal TSQM data were analyzed by linear mixed models. Relevant patient characteristics were incorporated as possible confounding factors. Post hoc analysis of adverse events was performed in order to investigate differences between sexes.........
Read full article Here Comparison to estimate affected area and dosage of topical treatments for psoriasis
This study suggests a picture‐based method is the most advantages in terms of reliability, speed and user‐friendliness for the correct dosage of topical treatments.
The accurate determination of the dosage of topical treatments is important given its repercussions on patient adherence and therapeutic efficacy. Up till now, the fingertip unit calculated by the rule of hands is considered the gold standard, although its use is associated with several drawbacks.
The objective:
To compare different methods to estimate the affected body surface area (BSA) and dosage of topical treatments in atopic dermatitis and psoriasis and investigate its reliability, user‐friendliness and timing.
In this study, we compared the reliability of 3 different methods: (1) the fingertip unit calculated by the 1% hand rule;
Read More Here Overal cancer risk for TNFi treated psoriatic arthritis patients is not increased
This study investigated the risk of cancer in TNFi treated psoriatic arthritis (PsA) patients compared with standardized rates from the general population in Denmark, Finland, Iceland and Sweden.
Background: Tumour necrosis factor inhibitors (TNFi) effectively reduce inflammation in Psoriatic arthritis (PsA). However, a possible association between treatment with TNFi and an increased cancer risk has previously been suggested.
Objectives: To investigate the risk of cancer in TNFi treated PsA patients compared with standardized rates from the general population in Denmark, Finland, Iceland and Sweden.
Methods: TNFi-treated PsA patients were followed from first registration with TNFi-treatment in ARTIS (Sweden), DANBIO (Denmark), ICEBIO (Iceland) or ROB-FIN (Finland) and linked to the national Cancer Registry in each country. Patients with a cancer history prior to start of follow-up were excluded. We investigated the risk of primary cancer among TNFi-treated PsA patients compared with general population cancer rates standardized to age, sex and calendar period within each country. Standardized incidence ratios (SIRs) were estimated for each country and pooled SIRs were subsequently calculated for both any cancer and site-specific cancers of interest.
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Read More Here Tremfya going after psoriatic arthritis
Janssen Pharmaceutical have released phase 3 results of Tremfya (guselkumab) for psoriatic arthritis.
Janssen Pharmaceutical announced top-line results from the Phase 3 DISCOVER 1 and 2 studies, which evaluated the efficacy and safety of guselkumab compared to placebo in adult patients with active moderate to severe psoriatic arthritis (PsA). Both studies met their primary endpoints of American College of Rheumatology 20 percent improvement (ACR20), and the safety profiles observed for guselkumab in the DISCOVER program were consistent with previous studies of guselkumab and TREMFYA® current prescribing information.
Read More Here Cosentyx gives long lasting inhibition of radiographicprogression in Psoriatic arthritis
This trial investigated the effect of Cosentyx on the signs and symptoms of psoriatic arthritis (PsA) and the inhibition of radiographic progression of PsA.
Novartis announced today new data from the FUTURE 5 trial showing no radiographic progression (mTSS <0.5) in almost 90% of psoriatic arthritis (PsA) patients treated with Cosentyx® (secukinumab) 300mg over 2 years.
"Half of patients with psoriatic arthritis experience bone erosion within approximately two years. Left untreated, this can lead to irreversible joint damage and disability, having a substantial impact on quality of life," said Dr. Philip J. Mease, Director of Rheumatology Research, Swedish Medical Center/Providence St Joseph Health and Clinical Professor, University of Washington School of Medicine, Seattle, WA. "The availability of a treatment that is proven to inhibit progression of psoriatic arthritis through two years gives physicians and patients more choice in the management of this debilitating condition."
Read More Here
Want More
A lot of members only threads and journals have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
Off Topic Board. Members Photo's The Ask Threads.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
Fred's Music Column.
British Invasion: No it's not about war, this about the time when the Brits took their music to the USA. It all started with the Beatles in the early 60s and the term British Invasion ran from 1964 - 1966 and the the name was reintroduced again in the 1980s from 1982 - 1986 as the Second British Invasion.
When I look back on the first invasion I find it strange that it was so successful as all they were doing was giving a British sound to American music. Listen closely and you will see it is based around Blues or Rock and Roll both of which have deep roots in the USA, it was a bit like selling snow to the Eskimo's but it worked.
The second invasion on the other hand was different, it was New Wave and Synth Pop and thanks to MTV playing The Buggles' "Video Killed the Radio Star" the Brits had done it again. Myself I'm not a big fan of the second invasion, but the first one produced some really great bands. Animals, Beatles, Dave Calark Five, Yardbirds, Hollies, Kinks, Stones, etc. Also some female artisits helped with the invasion, Cilla Black, Marianne Faithfull, Petula Clark, Lulu and more.
Quiz Time: What are these songs about ?
Q1: Across The Sea by Weezer.
Q2: Jolene by Dolly Parton.
Q3: She Came In Through the Bathroom Window by The Beatles.
Q4: Stan by Eminem (featuring Dido)
Q5: Brianstorm by Arctic Monkeys.
They all about Fans of the artist. A1: It's about a Japanese fans letter to lead singer Rivers Cuomo.
A2: Inspired by an encounter with a 10-year-old fan asking for an autograph.
A3: Paul McCartney wrote this about a fan who broke into his house.
A4: This song tells the story of a fan obsessed with Eminem..
A5: It's about a fan who managed to talk his way into the band's dressing room.
Members recommendations: Each month I ask our members to come up with a music recommendation on a theme.
This month it's "Transport"
D Foster suggested: Take the A Train by Duke Ellington and Ella Fitzgerald JohnB suggested: Chasing Cars by Gregorian Kat suggested: She Thinks My Tractor's Sexy by Kenny Chesney Turnedlight suggested: National express by the Divine Comedy Mrs Fred suggested: City Of New Orleans by Steve Goodman Raxyl suggested: Space Oddity by David Bowie jiml suggested: Chasing cars by Snow Patrol wooleyb suggested: Ferry Cross The Mersey by Gerry & The Pacemakers Caroline suggested: Cruising by Birgit Schuurman Fred suggested: 1952 Vincent Black Lightning by Richard Thompson
*Watch out for my new thread each month where I ask for your recommendations.
I have a thread in the Members Only boards and you are welcome to pop along and give some feedback or suggestions. Find It Here Enjoy your music, and don't forget to tune in next month.
Recipe Spot
Salad Time
Ok so my crystal ball looks like it is made from the same sort of glass you get in bathroom windows – very obscurating. Admittedly my predictions of a glorious month to enjoy the Barbie fell well short of expectation. Well at least it has here. I don’t think we have had a day where it hasn’t pi (sorry) lashed it down with rain.
For July I am expecting it will be cracking the flags as we say around here (that’s with the heat and not hailstones) and as it's supposed to be bunny food weather I thought would do some sadlads – (with a slight difference) to go with your postponed Barbies.
First up knock up a basic dose of vinaigrette; add 6 tablespoons of a neutral flavoured oil like sunflower, 1 tablespoon of white wine vinegar, 1 teaspoon of English mustard (you can use ready mixed or the dry powder, it is there to allow the oil and vinegar to emulsify, not as a flavouring). Season with a nice sea salt and a good grind of black pepper. Give it a really good whisk in a bowl.
One dose of this vinaigrette mix is for one of the salads.
First off Chickpea Salad
Crack open a tin or two of Chick Peas, empty out into a sieve and rinse under the cold tap and allow to drain.
While that is happening hack a tomato or two into slices and arrange around the edge of a round plate. Then grab a medium white onion, halve it root to tip and slice it thinly, oh and break them up into individual layers. Throw your chickpeas and the onions into a bowl, sprinkle with a fat heaped teaspoon of oregano and drizzle on the vinaigrette. Give it a gentle stir to get the oregano and vinaigrette coating the chickpeas and onion slices. Try not to break up the chickpeas.
Pile on to the middle of the tomato ringed plate and that’s one down. If you have fresh oregano that can be used as well but I wouldn’t use as much, only the leaves and chop it finely. Also if you are using dry, please, please, please check the date on your herb jar. If it’s not from this century, bin it. No it won’t kill you but it will have all the flavour of a delicately shredded cornflakes package. Always try and keep your dry herbs for not more than a year.
Next up Spicy Bean Salad
As before crack open a tin or two of Red Kidney Beans, empty out into a sieve and rinse under the cold tap and allow to drain.
To go into the mix hack a yellow or green Bell Pepper and a red onion into small chunks around 3mm(1/8”) and throw them into a bowl along with the rinsed Kidney Beans.
Take a dose of the vinaigrette and splosh a few good splashes of Tabasco sauce (to taste) and a crushed garlic clove into it and give it a good mixing. Drizzle this over the bean, pepper and onion mix and stir in gently to coat all the other ingredients and serve in a nice bowl.
So as these are accompaniments to your Barbie, do I really need to be telling you what to drink with it?
If you are really a cooking hero you could always make completely from scratch and use dried pulses. Just remember to cook them as per the package instructions. We don't want anyone being poisoned by incorrectly cooked beans. Next month something that will make you say “Are you sure?” And yes I am. It was a revelation I just have to share.
Enjoy
Johnb
To read more recipes or to add your own
Click here
Members Photos
Members Photos
We have an active members photo section on Psoriasis Club and each month our members can choose 1 image to show on the newsletter. This month the theme is pets or animals
Some of our members have an Ask Thread. These are threads where other members can ask the thread starter a question about themselves, it's a good way of getting to know some of our members and can also turn out some interesting traits.
Members can find the all the current Ask Threads HERE
Top Tips for newly diagnosed psoriasis sufferers
If you have recently been diagnosed with Psoriasis or even if you have suffered for years, members have been posting things they feel may help you cope, you can follow the link below to see more tips that members have posted
Number 1Talk: Don't keep it to yourself. Share with your friends, family, colleagues and our members here.
Number 2 Read
You have Psoriasis, try to get some knowledge about your disease, it will make you a better partner for your dermatologist in order to find the best treatment for you.
To see the full list of top tips Or if you have one to share
Click Here
Poetry section
Turnedlights poetry corner ..
The Bee .....
A bee found a drink and he guzzled and guzzled
But the look on his face was really quite puzzled
The drink tasted just fine
It turned out to be wine
And so hiccuping off the bee merrily buzzled
Author Turnedlight
Sunflower Competition 2019
It looks as if several of us have started to grow our sunflowers. And some have shown us how well theirs are growing
If you haven't already planted yours, why not join in this international piece of fun ....there are no rules
Anything you grow and can show will be acceptable and like last year everyone that took part was a winner in one of the categories ,
So add comments and pictures on this thread please
Sunflower Competition Here
THOUGHT OF THE DAY
Which letter is silent in the word "Scent," the S or the C?
How to use the unread posts button at the top of the page
When logged in and on the front page you will see in the green menu bar "View Unread Posts" beside it you will see two brackets ( ) inside those brackets are the number of posts that you have not read. For example (3) (72) Etc.
Now when you first try this you may need to set it to Zero. To do this go to the home page here Home scroll down to the bottom and click "Mark All Forums Read" which you can find on the right hand side of the bottom dark green bar. Now you will see (0) next to View Unread Posts.
When a new post is made by someone it will change once you refresh the front page and will tell you how many posts you have not read, so click the link again and you should now see only a few threads listed. So it's now set and ready to go.
........See here for more
Should you get stuck or need help just ask a member of the forum team who are always pleased to offer assistance
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Just a small bunch of friendly people with psoriasis sharing information and support.
British Invasion: No it's not about war, this about the time when the Brits took their music to the USA. It all started with the Beatles in the early 60s and the term British Invasion ran from 1964 - 1966 and the the name was reintroduced again in the 1980s from 1982 - 1986 as the Second British Invasion.
