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Welcome to your May newsletter this month it's packed with information about treatments, members photos, poetry and JohnB's recipe spot, there's music and lots more. The forum team have been busy keeping an eye on the Club and are there for you, so if you can't find something you are looking for or if you aren't sure how to do something, we are here to help just click the link below to make contact
I'm always looking for ideas to improve the newsletter if you have a suggestion contact me or if you prefer any of the helpers HERE
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This Months Stats.
8 New Members | 42 New Threads | 1756 New Posts | 1 Newsletter subscriptions
Members Treatments, Questions and comments . click on the links and see if you can help.
eeloe asks About Stelara and Sickness
Right, so as i posted in my main thread, i was sick last week and ended up on Antibiotics, so couldn't take my dose of Stelara last thursday like I was supposed to.
Now, i'm going to take it this Thursday, but what i want to know is, should i take my next dose, in 12 weeks, or 11? should i stay on the same schedule, but just take last weeks dose a week late, or should i start a whole new 12 week cycle from this Thursday?
Read more Here Duncan asks about Otezla rash
Used Otezla for 5 weeks now. No bad side effects. Had them all very mild and all cleared.
I now have started with a bad rash. Mainly at the top of my legs. I also have it behind my knees, behind my elbows, under arms. Every where my skin folds ( other than top of legs). Didnt bother me at first. Slight itch. Its now a tad irritating, at times. Sometimes its like when you get burnt in the sun. Other times I forget I have it. Had it for about 2 weeks now. Telephoned Hospital and she said to continue if I can. It was the nurse I spoke to.
Today I feel a bit bad. Like mild sun stroke. ......
Read more here
Psoriasis News and other related items .
Cosentyx shows low immunogenicity in Psoriasis patients treated for up to five years
This study suggests immunogenicity incidence over 5 years of treatment was consistently below 1% in psoriasis patients treated with Cosentyx (secukinumab)
Secukinumab is a fully human monoclonal antibody that selectively neutralizes IL‐17A, a key cytokine involved in psoriasis (PsO) and psoriatic arthritis (PsA) development, and has shown rapid and long lasting efficacy and safety in the complete spectrum of psoriasis manifestations. Monoclonal antibody therapies may be associated with the production of treatment‐emergent anti‐drug antibodies (TE‐ADA) that can affect drug pharmacokinetics, diminish clinical responses via inhibition of target binding, or cause hypersensitivity reactions. Secukinumab exhibited minimal immunogenicity up to 52 weeks in patients with moderate‐to‐severe plaque psoriasis, as evidenced by TE‐ADA in <1% patients.........
Read full article Here Increased vascular risk in psoriasis patients with depression
Psoriasis is known to confer a higher risk of cardiovascular and cerebrovascular diseases. However, very few studies have investigated whether the development of depression in psoriasis patients may further increase this vascular risk.
We investigated the risk of ischaemic heart disease and cerebrovascular disease in Taiwanese psoriasis patients with and without depression.
A nationwide population‐based retrospective cohort study was performed using the National Health Insurance Research Database. We included 604 psoriasis patients with depression, who were matched to 2,416 psoriasis patients without depression (1:4 ratio). Relative risks (RR) with 95% confidence intervals (CI) were determined using the Cox proportional hazards regression model, with adjustment for demographic characteristics and comorbidities......
Read full article Here MHI-5 effectively captures psychological distress in psoriasis patients
This study suggests that Mental Health Inventory (MHI‐5) is a reliable and valid instrument that can be used to effectively capture psychological distress in psoriasis patients.
Patients with psoriasis are at risk of a comorbid diagnosis of depression and/or anxiety. It is therefore essential for dermatologists to have valid and effective instruments that can screen and monitor depression and anxiety symptoms in psoriasis patients.
The aim of this study was to validate the Mental Health Inventory (MHI‐5) as a brief measure that can be used to evaluate psychological distress related to anxiety and depression in psoriasis patients.
The sample included 76 adult dermatological outpatients diagnosed with psoriasis. Participants completed the MHI‐5, the Hospital Anxiety and Depression Scale (HADS), and six subscales of the Self Compassion Scale (SCS). Confirmatory Factor Analysis (CFA) was applied to examine the factor structure of MHI‐5. Convergent validity was examined by applying correlations among all measures. Discriminant validity was examined by applying hierarchical regression models. Reliability was examined by calculating the Cronbach's alpha coefficient...........
Read full article Here Skyrizi gets FDA approval for treating psoriasis
AbbVie announced that the U.S. Food and Drug Administration (FDA) approved SKYRIZI™ (risankizumab-rzaa), an interleukin-23 (IL-23) inhibitor, for the treatment of moderate to severe plaque psoriasis in adults who are candidates for systemic therapy or phototherapy.3 In clinical trials, SKYRIZI produced high rates of durable skin clearance – most people (82 and 81 percent) treated with SKYRIZI achieved 90 percent skin clearance (PASI 90) at one year, with the majority (56 and 60 percent) achieving complete skin clearance (PASI 100).
"The complex nature of psoriasis and the variability or loss of treatment response over time can prevent some patients from achieving their treatment goals," said Kenneth B. Gordon, M.D., a principal investigator for the ultIMMa-1 pivotal trial and professor and chair of dermatology at the Medical College of Wisconsin. "In clinical trials, risankizumab demonstrated high levels of skin clearance that persisted through one year. I'm pleased the dermatology community now has a new option that can help patients achieve and maintain a high level of treatment response."
The recommended dose for SKYRIZI is 150mg – administered by two subcutaneous injections every 12 weeks following two initiation doses at week 0 and 4. SKYRIZI can be administered in-office or by self-injection after training. Read more Here
Want More
A lot of members only threads and journals have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
Off Topic Board. Members Photo's The Ask Threads.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
Fred's Music Column.
Indie Music: When you think of Indie Music (Independent music) most people thing of Rock or Pop, but there are a lot of different genres of music under the name "Indie" and the term is used all around the world. So what is Indie Music ? Indie music is music that is made without the backing of large record labels. You know ....... the ones that control what we listen to on the radio.
The term "Indie" can be traced back to the early 1900s where it was first used by Independent film makers, then in the 1970s the term started getting used in the music industry. Think "Virgin", "Mike Oldfield", "Tubular Bells" and you have probably the best known explanation of Indie in it's modern form. Call it D.I.Y (Do It Yourself) music if you like, it's a way of producers and artists getting their work out there without the backing of big money.
Those that go into Indie have to work very hard as the big radio stations either won't or can't play their music, and in the past a lot of Indie music never made it. But today things are different and it is a lot easier to find yourself some Indie music in a genre of your choice. There are dedicated internet radio stations, and a lot of artists will also put their work on Spotify, Deezer, Youtube, Etc. So go out there and find yourself some great Indie Music and support those that do it just for the music
Quiz Time: What do they have in common ?
Q1: House Of The Rising Sun by The Animals.
Q2: I Fought The Law by The Clash.
Q3: I Want Candy by Bow Wow Wow.
Q4: I Will Always Love You by Whitney Houston.
Q5: Hurt by Johnny Cash.
They are all cover versions. A1: First recorded by Clarence "Tom" Ashley and Gwen Foster in 1933. (23 covers have been done) A2: First recorded by The Crickets for their album In Style With the Crickets in 1960. (13 covers have been done) A3: First recorded by The Strangeloves in 1965. (5 covers have been done) A4: First recorded by Dolly Parton in 1973. (8 covers have been done) A5: First recorded by Nine Inch Nails in 1994. (9 covers have been done)
Members recommendations: Each month I ask our members to come up with a music recommendation on a theme.
This month it's "Body Parts"
Raxyl suggested: Legs by ZZ Top jiml suggested: Beautiful Day by Elbow D Foster suggested: Body Language by Queen Kat suggested: These Arms of Mine by Otis Redding Grizzly Bear suggested: Laughter In The Rain by Neil Sedaka wooleyb suggested: Between Two Lungs by Florence + The Machine Beverley suggested: Bad liver And A Broken Heart be Hayes Carll Caroline suggested: Boobs by The Bellamy Brothers JohnB suggested: When The Heart Rules The Mind by GTR Turnedlight suggested: Sheer Heart Attack by Queen Mrs Fred suggested: Alone by Heart Fred suggested: Gun To The Head by The Good, The Bad And The Queen
*Watch out for my new thread each month where I ask for your recommendations.
I have a thread in the Members Only boards and you are welcome to pop along and give some feedback or suggestions. Find It Here Enjoy your music, and don't forget to tune in next month.
Recipe Spot
Right then. So if like us you ended up with a leg of lamb that looks like it would have kept an elephant aloft you probably have plenty of lamb spare and are wondering what to do with it.
Hows this for starters? By the way our leg was roasted for around 2 hours with loads of garlic cloves rammed into slits in the leg and a good handful of rosemary rubbed on to it.
Lamb Tagine
Now this recipe officially calls for uncooked meat but the leftovers work just as well.
750g Lamb neck fillet hacked into 2 to 3cm cubes
2 Large Onions sliced
3 Celery sticks sliced
2 Garlic Cloves crushed
4cm lump of fresh Ginger peel and grate
1 tbsp ground Cumin
1 tbsp ground Coriander
2 tsp ground Cinnamon
1 tin chopped Tomatoes
450ml Chicken or Lamb stock
2 tbsp Tomato puree
2 tsp Harissa paste
1 tbsp Runny Honey
8 ready to eat Apricots quartered
2 Preserved Lemons, sliced into 8 chunks and the pips spat out ..... (Yep probably not that easy to get for some, so you can use a single fresh lemon but it wont be quite the same. And the skin isn't that edible when cooked where the preserved ones are fully edible.)
1 tin of Chickpeas (rinsed)
Handful of chopped flat leaf parsley. Always use flat leaf, the curly stuff should only ever be used by fishmongers as a display item, flat leaf has much more flavour.
Crank up that oven to 150ºC / 300ºF / Gas mark 2. (Does anybody still have a gas oven???)
Stick your best ovenproof frying pan (we use a nice heavy cast iron type thing with a lid) on the heat and if you are using fresh lamb start of by browning the chunks a few at a time so the pan temperature doesn’t drop and you end up inadvertently boiling you baa-lamb instead of browning it. Fry off for 3 or 4 minutes per batch and set aside.
Add a bit more oil to your pan and throw in your onions and celery, you want them softened but not coloured. Lob in the garlic and grated ginger, sprinkle over the spices cooking very briefly before throwing the tomatoes, stock, tomato puree, harissa paste, honey, apricots and which ever lemons you go for.
Bring this concoction up to the boil and return your lamb. Season with your favourite salt and pepper put its lid on and whack in the oven for an hour. Remove the lid throw in your Chickpeas, give it a quick stir, check its seasoning and continue cooking for another half an hour to an hour until everything is nice and tender. I have a feeling that this dish is virtually impossible to ruin, but I guess that somebody could prove me wrong. It will keep and reheat nicely and would freeze so you can enjoy later if you are into batch cooking.
Right guys I’m starving. Serve with a couscous salad flavoured to your liking, a nice fresh green salad and some warm flat breads.
Now I have given this some thought and I have not got a clue what to suggest to drink with it alcoholic wise. I suppose a cold lager type beer wouldn't do too badly, but I’m at a loss as to a wine.
Just a thought, an ice cold sweet lemon tea would be perfect.
Oh and the rest of our Elephant stump went into a hotpot. 1 Leg, 5 n’ a bit meals yum!
Enjoy
Johnb
To read more recipes or to add your own
Click here
Members Photos
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See Here!
In This Issue
The Ask Threads
Some of our members have an Ask Thread. These are threads where other members can ask the thread starter a question about themselves, it's a good way of getting to know some of our members and can also turn out some interesting traits.
Members can find the all the current Ask Threads HERE
Top Tips for newly diagnosed psoriasis sufferers
If you have recently been diagnosed with Psoriasis or even if you have suffered for years, members have been posting things they feel may help you cope, you can follow the link below to see more tips that members have posted
Number 1 Get a referral:Don't keep going to a General Practitioner (GP) who can only prescribe creams and ointments, if it's not clearing up ask for a referral to a dermatologist who has a full arsenal of treatments to help.
Number 2 Scams:
Watch out for scams, there is no cure but you will find a lot of contradictions to that which are designed to empty your wallet and make the scammers rich .
To see the full list of top tips Or if you have one to share
Click Here
Sneaky peek
We have an active Off Topic Board and we thought we would share some sneaky peeks with our readers .
How many places have you lived in ?
Heres a thread we can all join in, it's not difficult but makes you think and I'm sure others would be interested to read of the fact that perhaps you have lived in the same house all your life, or maybe you have moved lots of times and even changed countries come on in and have a look and join in if you like .......
.. Here Fred Asks How about we share our green tips. ?
I don't class myself as an eco warrior, but I try to do my bit and who knows some of you may have an idea that some of us could take on.
I'll start things off: Grow some of your own vegetables. And before you say I don't have room or time, just think back to those days at school when you grew your own little bit of Cress on blotting paper. Just one pot in your garden, balcony or even in your kitchen with one vegetable or herb of your choice growing in it will not only give you fresh vitamins it will also help fight pollution .................. Still not convinced ? Get yourself some sprouting seeds (Mung Bean are soooooo easy) but I bet you all buy them from a shop or your favourite take-away ?.......read more or join in
.. Click Here
Poetry section
Turnedlights poetry corner ..
Losing my mind .....
I might be losing my mind
The words no longer flow
Repeating questions all the time
Forgetting what I should know
And when I use the wrong word
As I so often do
I’m not trying to sound absurd
I’m as surprised as you
Perhaps it is the memory holes
That cause the most upset
The things I’m told I said or did
I just can’t recollect
But then of course I’m tired
I don’t sleep that well at night
And my body’s busy fighting stuff
It doesn’t need to fight
Maybe it’s just advancing age
My grandad was the same
He’d go through every other one
Before coming to my name
I might be losing my mind
My words might be a hit and miss
But please don’t be unkind
I think I’ve always been like this!
Author Turnedlight
Sunflower Competition 2019
Several of you have joined from around the world to grow sunflowers and post pictures of them when they are at their best, mine have just started to poke through the soil, but others have some plants growing well
If you haven't already planted yours, why not join in this international piece of fun ....there are no rules
Anything you grow and can show will be acceptable and like last year everyone that took part was a winner in one of the categories ,
So add comments and pictures on this thread please
Sunflower Competition Here
THOUGHT OF THE DAY
Do not pray for an easy life. Pray for the strength to endure a difficult one...
Each month I will add a tip or a link to assist you using the forum .
BEGINNERS GUIDE TO POSTING AN INTRO
Hi I have seen many new members looking through the introductions.
If you are one and are new to forums this may help you with your first post.
.
#1 From main menu click on Introductions
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#2 Above the introductions is a button new thread
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#3 Click on this a box will open
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#4 On the left of the box second line down is Thread Subject write your description in here for instance " jimbos Intro" or whatever you want to name it
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#5 Below that is a big box to click on and write your introduction when you are happy with it and want to see what it looks like
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#6 At the bottom of the box past the green section it gives three options... Post thread ..... Preview post ... Or save as draft.
The first thing to do is click Preview Post ..... You can then see what others will see when posted... If there are changes to be made you can change it before you post it by clicking Post Thread
Go to the link and follow the full instructions in the tutorial........See here
Should you get stuck or need help just ask a member of the forum team who are always pleased to offer assistance
Psoriasis Club is self funded, we don't rely on sponsorship or donations. We offer a safe
friendly forum and are proactive against spammers, trolls, and cyberbullying. Join us here!
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No Requests for Donations.
No Cyber-Bullying.
No Scams or Cures.
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Just a small bunch of friendly people with psoriasis sharing information and support.
Indie Music: When you think of Indie Music (Independent music) most people thing of Rock or Pop, but there are a lot of different genres of music under the name "Indie" and the term is used all around the world. So what is Indie Music ? Indie music is music that is made without the backing of large record labels. You know ....... the ones that control what we listen to on the radio.
