Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you) LoginRegister
Hi and Happy new year let's hope 2018 is a happy and healthy one for us all, I hope you enjoy your January newsletter. I'm sure you will find something of interest in it. There has been a lot of activity on the health boards with many members updating their threads, and lots of new members posting introductions If you can find a few minutes to click on some of the links and perhaps post a welcome to a new member or answer one of their questions ...all of our contributions help to keep the club active and inviting and a friendly place to come to either vent or to chill in the off topic section The off topic boards have again been very busy with lots of interesting subjects discussed ..we hope to see you there soon ..
If you are currently a subscriber to the newsletter you will receive notification with a link at the beginning of each month. If you don't currently recieve one and would like to receive an email when a new newsletter is made click Here!
Note: Subscribed members get an early view of the newsletter.
This Months Stats.
20 New Members | 48 New Threads | 2297 New Posts | 1 Newsletter subscriptions
This months new members
ajayh - rogerb383 - robina - jopoh - ruskin81 - selestiall - Micky - nornantyfs - p.smith - teejayline - kmitchell68 - Greybird - Ggirl - Rimo66 - Spotty - wtups - Chris W - Patient68 - pmom - Meandreg -
New Introductions.
Please look at these introductions and come and welcome the new members that have taken the trouble to write an introduction. rogerb383 wrote. My daughter has severe psoriasis., .
She has severe plaque psoriasis which she has had for 11 years and has undergone all available treatment, except for stelera injections. she went for an assessment recently and was told her score was 8.5/10, which was not quite enough to qualify for treatment in Bournemouth. ........Read more here Snitter65 says Hello everyone .....have been reading many posts to help my try to understand this horrible disease better and get an idea as to what medications/diet or other treatments are working best for others. Have had pustular psoarisis since 2014.
Read More Here Patient 68 asks what's the best treatment for psoriasis .....I have suffered psoriasis since 2014 and I'm worried as my hair has become thinner and my skin is not good, I had an unblemished skin before
Read More Here
Members Treatments, Questions and comments . click on the links and see if you can help.
Spot on asks .....The best way to soften and remove thick hard dead skin In the last year my ps has developed much thicker dead skin over the plaques. Or maybe the dead skin is the plaque... Either way, I am looking for a good way to remove the dead skin. I have a home UVB unit, and the light is useless as it won't penetrate through the dead skin. I have been using lanolin in a tube for nursing mothers. It helps but really doesn't do the job. I also use argon oil to moisturize my face and my hands. Real genuine argon oil is expensive so I cannot use it all over, plus it really won't remove the dead skin.
Read More Here Selestiall says ...
So I have been on Humira for about 18 months now, and I am starting to notice that its slowly starting to stop working. I take it once every 2 weeks, and during the first week, most symptoms of my psoriatic arthritis disappear, but after like 5-6 days they start coming back. Anyone else having this issue?......Read the rest here Maryam is running a poll to see which Biological treatment worked fastest for you So, read some experiences here, but could not finder the answer I wanted; Which bio cleared you the fastest?
I don't know which one I will start or if I have to go through a certain protocol again, but I just would like to know
Click here to vote in the poll snitter65 writes...Starting cyclosporine on Friday ... ....
after Dr checks my labs. Has anyone on here tried it? Side affects? I am told kidney and high blood pressure are the most serious and are monitored closely. This makes me nervous but at a point I have to do something. My hands are so bad I can hardly use them. My feet are raw so I can barely walk... very painful.........Read More Here Kat tells of her experience of Taclonex topical treatment ...About 3 weeks ago, I flared back up with psoriasis. I spent the first week in denial... thinking okay it's just a flare up and will settle back down. This past year or so I had a few "mini flares" that settled down but I knew this one was much worse than those. I think it kept getting worse by the minute. My ears and neck have always been my problem areas and this was no exception. Both ears were pretty bad and I was fairly miserable with it, I even have it in the outer corner of both eyes this time. I finally got in to the dermatologist this past Wednesday. They are looking at starting me on Stelara (which I will start a post about once it happens) so they took blood, sent me for a chest exray and checking with insurance (U.S. here, it's all about the insurance!) The derm also said I needed to get to primary doc to see if I had an ear infection as both ears had been hurting and felt "stopped up" (I managed to get into primary doc that day, both ear canals were swollen shut and with the psoriasis down in my ears he is sending me to ear specialist, but did give me ear drops which are helping with some of that.) Anyway, the dermatologist gave me Taclonex to use for now while I'm waiting on test results etc. I thought I'd write about it, pros and cons.
. .........Read More Here MrNormusy says he's starting Skilarence ...I've been lurking around on this forum for about 2 years and thought it'd now be a good time to come out of the closet. I thought about starting posting last Oktober when I went over from yearly UV-B light therapy to Metotrexat (due to the fact that I've hit the lifetime limit of UV exposure apparently) but I held off. I've had severe Gutate Psoriasis since 2002 when I was 19 until now (34). Light therapy was a life saver for me until the spring of 2016 when it was determined that I had to give it up. Got really depressed that summer and with a big flare up to boot. Got on Methotrexate in September and it worked (decently) until my liver values shot up over 3.2. What values they measure exactly I don't really know. But I had to give it up. Just as well cuz ever since I started I've been feeling weaker week by week. (20mg a week) with a 5mg folic acid tablet the day after. This spring I also started taking the biosimilar Benepali, but I feel it's done nothing for me. .......
Read more here LizzieD says her next stop is Methotrexate ..Hi All,
I’ve recently stopped acitretin due to side effects, and not being effective, so methotrexate is next on the list.
I’m starting on 15mg weekly, bit worried about the side effects of this. I know people get mixed results.
How long before seeing a benefit?
Read more here Jopoh asks how to use dovobet gel ..Hi everyone, I have been suffering P for the past 15 years, initially patches on my legs and then eventually spreading across the body. I have been on UVB for the past 5 years or so, but find that the effectiveness is wearing down, longer time to clear and whenever I stop , the P comes back faster and with a vengeance. I feel that my skin is drying up and I feel burnt all the time with UVB, hence I am trying out Dovobet gel.
Looking to get some tips on using the gel, it seems fairly effective to me, but it is sticky and leaves a stain on my clothes. So I apply it before I go to work, my office wear is stained, if I apply it before I go to bed, my sheets and clothes are stained as well. My kids like rolling around on the bed and I am not sure whether the dovobet stains have any impact in them.
.
Read more here Arsenalfan writes I'm about to start Fumaderm ..Hey guys.
After 30+ sessions of light therapy not making a bit of difference to my skin and after not being eligible for methotrexate (didn't really fancy taking it anyway) and really not being keen on acitretin (due to reading about the side effects and how much it actually iimprovemprovrs psoriasis) my dermatologist has offered my Fumaderm. Currently waiting for it to arrive at the hospital.
Just got a couple questions for those that have been on it.
Read more here
Psoriasis News and other related items .
Effectiveness of Biological treatmentson HRQoL in Psoriasis patients ...This study looked at the effectiveness of Bio treatments on health-related quality of life (HRQoL) in psoriasis patients.
Read the rest of the thread here Psoriatic arthritis early diagnosis and treatment recommendations This study set out to provide practical recommendations for the management of patients with Psoriatic arthritis (PsA) in the dermatology setting including early diagnosis and treatment
......... Read more about it Here Taste and smell study on Psoriasis patients
A recent presentation by Erlangen University Germany at Psoriasis gene to clinic suggest a link to taste and smell with psoriasis patients.
The various aspects of nutrition are a major issue in patient care for psoriasis. Metabolic disorders and increased body mass index are frequently encountered in this patients group and may result from systemic inflammation characteristic for the disease and/or unbalanced intake of food calories by the patients.
Interestingly, in chronic inflammatory bowel diseases relevant gustatory and olfactory changes have been detected. These result in a disturbed food intake and are normalized again upon successful treatment of the disease. Here, patients with psoriasis were tested before any systemic treatment for the gustatory qualities sweet, sour, salty, bitter and umami. They were tested with appropriate solutions sprayed onto the back of the tongue in a standardized procedure, as well as by using sniffing sticks for olfaction. .......
Read more here Taltz gets FDA approval for Psoriatic arthritis ...
Eli Lilly announced today that the U.S. Food and Drug Administration (FDA) has approved Taltz® (ixekizumab) injection 80 mg/mL for the treatment of adults with active psoriatic arthritis (PsA). Taltz was first approved by the FDA in March 2016 for the treatment of adult patients with moderate-to-severe plaque psoriasis who are candidates for systemic therapy or phototherapy.Read More Here Following on from the previous article ......Taltz close to approval for Psoriatic arthritis in Europe .
On 14 December 2017, the Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion recommending a change to the terms of the marketing authorisation for the medicinal product Taltz.
Taltz, alone or in combination with methotrexate, is indicated for the treatment of active psoriatic arthritis in adult patients who have responded inadequately to, or who are intolerant to one or more disease-modifying anti-rheumatic drug (DMARD) therapies.”.........Read More Here Xeljang gets FDA approval for Psoriatic Arthritis ...
Pfizer announced that the United States Food and Drug Administration (FDA) has approved XELJANZ® 5 mg twice daily (BID) and XELJANZ® XR (tofacitinib) extended release 11 mg once daily (QD) for the treatment of adult patients with active psoriatic arthritis (PsA) who have had an inadequate response or intolerance to methotrexate or other disease-modifying antirheumatic drugs (DMARDs). XELJANZ/XELJANZ XR is the first and only Janus kinase (JAK) inhibitor approved by the FDA for both moderate to severe rheumatoid arthritis (RA) and active PsA........Read More of this study Here
Want More
A lot of members only threads have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
John's Recipe
Buzzard soup (aka Turkey Broth)
Well, I dislike food waste and we always have a humongous amount of Turkey left at the end of Christmas. A lot gets swallowed up in turkey butties (sad to say but I do quite like them), some gets converted into either a curry or a Turkey Chili for the freeze.
The carcass and a very big handful of scrappy turkey bits gets made into a nice thick wholesome soup. Just the job on a cold day for lunch - warms the cockles of your heart.
Right down to work. Measure out about a pint of barley and cover with cold water. Its better if its allowed to soak for 2 or 3 hours.
Gather up the carcass, even keep back any bones from cuts people have had from their meal. Get a BIG stock pot or saucepan, break up the carcass into nice manageable bits and throw in the stock pot with a couple of quartered carrots, onions and potatoes (don’t bother peeling them, they get binned afterwards), a dozen black peppercorns and 4 or so Allspice berries. Tie a couple of celery sticks together with a handful of fresh thyme and a couple of Bay leaves and throw those in as well Top up with cold water, bring to a gently bubbling simmer and leave it simmering for about an hour and a half. It will need the scum skimming off the top occasionally.
In the meantime prep your veg.
You can use whatever takes your fancy but I always use swede, carrot, a floury potato (this helps make it nice and thick), a waxy potato. All these are cut into about 10mm cubes. I also add sliced leeks a couple of sticks of sliced celery and roughly chopped onion.
Once you’re happy with your stock, allow to cool a bit, remove the carcass and sieve the stock through a colander. Throw away all the veg used making the stock and give your stock pot a clean. Once the carcass is cool enough to handle, start picking all the remaining meat from the bones, there will still be quite a bit left on it. Along with this meat use what scrappy tiny bits you have left from everything else (about a handful probably). Throw all your veg and turkey into the stockpot along with the barley – water and all (thickness and flavour). Add your stock and top up. Cram as much veg in as you wish we like our soup so you can stand a spoon up in it but can’t quite cut a slice so it gets absolutely packed with stuff. Top up with cold water.
Bring to a gentle simmer and cook till all the veg are tender season with salt and pepper to taste. If you wish you can also add a slug of Worcestershire sauce to give it a bit of oomph. Now, this is where the Food police will go apoplectic. If you must you can eat it as is but it is far far better the day after. Leave in a cool place and it will come to no harm for a day. Reheat on the stove until piping hot serve with a nice crusty loaf. Proper rib sticking loveliness. Batch up the rest into portions and freeze. If using from frozen defrost first and reheat, you may need to add a little boiling water as it tends to thicken up substantially. JohnB
To read more recipes or to add your own
Click here
Twitter
If you want to follow us on Twitter you can find us here: @Psoriasisclub
If you're a member of Psoriasis Club and follow us please let us know and we will follow you back.
Information
Please remember no posts and no log-in for 12 months, your account will be deleted. For more information about this policy See Here!
Message from Fred
I would like to take this opportunity to wish all our members a very happy and healthy new year.
I especially want to thank:
#1 Jim for taking over the newsletter. He does a great job and has made it more interesting.
#2 The Forum helpers. They have taken a lot of pressure away from me in running the forum.
#3 All those members that have reported problems or spam. It makes my life easier when the "Report" button is used.
#4 Those that often log-in. It's you that keep the forum active and it's much appreciated, especially those taking the time to give updates to their threads, welcome newbies or answer questions and offer support.
#5 The members that use the Members Only boards. It's the most active part of the forum with around 80,000 posts and I have enjoyed the jokes, banter, games, photo's and learning about our members hobbies. I'm also happy that some of you have felt comfortable enough to share some problems, and pleased to see others offering support.
I could go on forever as we now have a very good bunch of friendly members both long term and new and it's because of you that we have built up the best and the only totally independent psoriasis website out there.
Thank you all very much, and have a great 2018.
Regards.
Fred.
New Year Party
You are all welcome to come to the virtual party .....I look forward to seeing you there for a drink and a chat. Come early or late, whatever time zone you are in
Come and see the brilliant photos that Raxyl ( Craig) has posted from Tasmania
There are some fantastic pictures of Tasmanian wildlife and scenery
See more pictures here If you would like your photos featured let me know and they will feature in a future newsletter
Sneaky peak
We have an active Off Topic Board and we thought we would share some sneaky peaks with our lurkers.
For those interested in statistics The club had just published the 2017 stats, which show there has been a steady growth in membership with more members posting
There have been over 7.8 million visits to the site , so we must be doing something right .
Why not join in the related words thread it's just a bit of fun where you just add a word that's related to the previous post You will soon get the hang of it
A man received a text message from his neighbour ... :
"Sorry sir, I am using your wife...I am using day and night ...
I am using when you are not present at home....
In fact I am using more than you are using.....
I confess this because now I feel very much guilt...
Hope You will accept my sincere apologies "
... And the man shot his wife.......
A few minutes later he received another message saying :
Sorry sir, spelling mistake ... wifi not wife!
There is a selection of psoriasisclub photos you can use in your posts if you wish ....
See more of them Click Here
Then just enter the code in your post to use them
Hints and tips
Each month I will add a tip or a helpful link to assist with your posts ..
Adding a photo to your avatar
If you don't have a picture in your avatar or would like to change yours follow this link Use a picture directly from your computer , anything your photo, a pet , a piece of scenery you choose ........See here
Check out your Psoriasis score here you can check for yourself to see what your score is and add it to your profile if you wish Check your score here
Should you get stuck or need help just ask a member of the forum team who are always pleased to offer assistance
Now here's a nice find if you like your Indie Bands.
I've only found 1 album and little information about them, but QTY is one of those bands that you just have to give a try. We all know New York has produced some very good music, my favourite being Velvet Underground and I was very surprised to hear something similar being made today. Don't get me wrong, they haven't ripped off Velvet Underground. It's just that the sound brings back so many memories and I had to include this new band in my favourites.
My top three from the album are:
Michael
Living things
Notify me
I can hear so many voices from the past. Lou Reed, and our own Kevin Ayers, Etc but this is new and well worth a listen. No Nico in there, but a good female voice is there to back it up. Only complaint I have is, most tracks seem to end abruptly and that needs some work.
Just leave a comment or maybe post a picture yourself 
