I have a cold for the fist time since on immune suppressants. 
My friend was on oral treatment and was told to just stop taking the tablets until its cleared.
I am on Ilumetri which is taken every 3 months. So stopping it isnt possible. 
How does it effect my body fighting the cold? Does it just take longer than normal?

Duncan

Hello everyone.  My name is Mike.  I have been recently diagnosed with psoriasis and psoriasis arthritis.  Although I would say I have had a for a lot longer.  Until recently the outbreaks and joint pain I have had where minor.  When I go see the doctor about them, it was blamed on my smoking, bad diet, poor hygiene and so on.   

It was only in the last year when the psoriasis started affecting my skin and joints really bad.  I went from a small patch on my elbow to having psoriasis on my face, hands, feet, chest and nails.  The pain in my knees and lower back was enough to keep me from sleeping.  After a few months of taking tests I finally got my diagnosis of psoriasis.

The tropical creams I am applying to my skin seem to keep the psoriasis in check or in some areas put it in remission.  The strong anti-inflammatory drugs I am taking keep the joint pain down so I can sleep. I would tell you the names of the drugs I am using, but they are not here at the computer and I am too lazy to get up and get them  LOL

But I am happy to have the diagnosis of psoriasis and doing something that helps out.  I am also happy to be here talking with people who are in a similar condition to me and understand what it is like.  I look forward to interacting and getting to know you better.

I hope this introduction is good enough.  Feels like I said too much.  Maybe I didn't say enough!!!  Maybe I should redo the introduction!!!  I hate introductions, everyone seeing me for the first time.  What will they think of me?  I hope I came across in a good way.  They say first impressions are everything.  Definitely should do the introduction again.

Oh by the way I have a tendency to overthink things  LOL  Well I am just going to stop that right now and click on that "Post Thread" button before I redo this introduction yet again!!!!

While awaiting a couple vaccines before starting Methotrexate, my dermo doc prescribed the ointments named in the subject line.  I began using Calcipotriene on Friday night.  Then applied it twice a day on Saturday and Sunday.  On Monday, I switched to twice a day Mometasone.  Her instructions are to use the Mometasone on Monday through Friday, the Calcipotriene on Saturday and Sunday and to do this for two weeks.  After two weeks, she said to reverse the ointments.  Calcipotriene will then be used during the week with Mometasone on weekends.  

The Calcipotriene alone was not relieving the itching, pain, or swollen/thicker areas but it was very slightly reducing size, but that may have been wishful thinking and not a true observation.  Since Monday, though, the pain and itching has reduced plentifully.  The patches have gone from screaming red to a moderate pink, and the painful swelling is gone.  Still a good bit of thickness and extra skin flakes, though.  

I can use the Triamcinolone for up to two weeks a month in sensitive places.  

The dermo doc also told me that sweat can aggravate the rash, so I've changed habits and now wash off in the cold skating rink water and dry off and then change into dry clothing.  I still shower at home after skating and apply moisturizing cream.  I also no longer apply a moisturizing cream before bed since I have sweaty hot flashes while sleeping.   A lighter lotion before bed seems to not trap the night sweats as much and I feel more comfortable.

I am hopeful that this will not lead to thinning of the skin as I found myself earlier this year.  I am thankful to have found a better dermatologist.  Thankful, always, for the help given here at PClub.  

I have recently suffered sore legs and numbness. My doctor's initial diagnosis is the valves in my veins are not holding so the blood is not able to get back up to my heart properly. This is causing me pain and burning sensations. I have some scans to do and I am going to see some vein specialists. LAtely when I wake up my left leg and now my left hand is numb.

I started Cosentyx about two months before getting these symptoms. I asked them but they say no reports of this being associated.

Has anyone experienced these symptoms while on a biologic?

Thanks

I saw a dermatologist in April 2021 who took two punch biopsies and prescribed the betamethasone and desonide ointments.   The only caution he gave was that they could thin the skin.  

And he provided a 12-month refill supply for the ointments.  His manner was terse, quick, reluctant.  He came across as arrogant, conceited, not very into dermatology but more into power within his practice.  All the staff in the office were young, attractive women, too.

I will be seeing a new dermatologist next week.   This doctor is new to the area (as I am, too, having moved here a year ago).  Part of her training was at Oregon Health Sciences University where I had gone for consultations relating to Crohn's Disease before starting Humira in 2007.  At least, I feel confident in OHSU as the best Oregon offered for medical care.  And it gives me hope that this doctor will be more approachable and may take the time to explain options and help me understand.  

Psoriasis Club has helped me more than the dermatologist I saw in April.  It has given me hope that these daily miseries of the skin will ease.

Do you have advice for this upcoming visit?

Have you ever encountered a doctor who really should never have become a doctor?

Have you had exceptional care from your dermatologist?  What does exceptional care look like?

What is the best of the best or the worst of the worst?

Thank you.
FW

I have been taking Skilarence for well over a year and with some success. It has never fully disappeared but has certainly helped. Recently my skin has had a bad flare up and I’m wondering if Skilarence has stopped working? Is this a thing? Can it stop working after a time? If yes then what might be my new options?

I've spent several hours this week visiting other support forums, mainly for Crohn's, searching for others with Inflammatory Bowel Disease and Psoriasis.  With each and every forum, I found two common things unseen here at Psoriasis Club.

Thing One:  Quack promotions of fad devices, fad gimicks, outrageously unsubstantiated claims.

Thing Two:  Intrusive advertising that interrupts the flow of the topic thread.

Thank you, Fred, for your integrity, maintaining the values of this club, and keeping it an informative place free of advertising, snake oil salesfolks, and bullies.  PsoriasisClub is a rare gem.

Hello. I have been using Protpic on my face and my Penis, it seems to be the only thing to work down there. Does anyone know if Vectical is safe for use down there? Its Ointment.

What is your daily skin care regimen?  Is it different depending on the season being winter or summer?  As it gets colder here, the heater is on, and the air inside the house is dryer.  Will that make the psoriasis worse?

This will be my new thread for my journey on Ilumetri (Ilumya in the USA)

This is my 7th try on a Bio and although most have done well for psoriasis, I have never found one that can keep the psoriatic arthritis under control long term. You can read my last try of Tremfya here Tremfya for psoriatic arthritis Fred's journey which will also point you to my other threads about my journeys if you are interested.

Ilumetri is only prescribed for psoriasis in France at the moment but I will be one of the first trying it for psoriatic arthritis. The recommended dose is 100mg but I'm starting straight off with 200mg as I'm 95Kg and it's been found that those over 90Kg or with a very high PASI score benefit from a double dose.

Though not yet recommended for psoriatic arthritis we are hoping the double dose will kick in fast, so it's two shots followed by another two shots at week four then a maintenance dose of two shots every 12 weeks.

I have also signed up for a trail to evaluate the safety and efficacy of Ilumetri and because I'm using it for psoriatic arthritis it may help them seek approval for treating that in the future.

Thanks to Tremfya I only have a few small patches of psoriasis on my shins and one hand, but it's handy that this annoying little patch on the side of my belly has flared up this week as I will be able to see how Ilumtri deals with it. (I won't be using anything else apart from coconut oil as a moisturiser)



Today I would score the psoriasis at: 3

Now for the psoriatic arthritis. It is flaring again at the moment and to be honest it's getting me down a little so again it will be good to see how Ilumteri works.

I'm going to have to score the psoriatic arthritis today at: 18

Here is a picture of one shot, I will be using two of these and it's no big deal as I've been injecting Bio's for a long time now.




*To note before I get going, I have been feeling very tired recently, my dermatologist said it was do to the high inflammation I have going on.

Job done one shot each side of the belly well away from the belly button, no problems and my journey begins.

Watch this space, members are welcome to comment if they wish in this thread but I will also be keeping a locked copy in the members only boards of my posts for easy reference here: [Group Specific]

I began with this disease 6 months ago, plaque psoriasis in all my body.

2 moths ago i began to take Artemisia Annua pills, is a plant, now i'm almost fully recovered.

Cheers and I hope  all of you will heal.

A question, has anyone the experience that in the two days before the injection, complaints like stifness comes back?

I feel more stifness, more fatigue, my knees start to hurt, my lower back pain is coming back on the 12th day. On the 14th day i will inject myself an the day after the injection, all these complaints vanish again.

Does anyone recognize this?

Morning folks!  New member Kellie here.  Hoping to find insight on Otezla side effects.  I've been on it about 6-weeks and have worked through the usual nausea and headache but am experiencing one symptom not discussed.  

Anyone experience very sensitive skin on this stuff?  I have moderate plaque psoriasis that's responding very well to Otezla but now I'm getting this weird reaction.  It almost feels I'm feverish but my temp is fine..  Today the sensitivity is throughout my torso but not limbs.  So bizarre.  I'm not even sure it's the Otezla causing it.  Anyone have thoughts or info?

Thanks very much for your replies!

Hey y'all
It's been a couple years since I've posted anything in the forum. I've had so much going on, it's been crazy. I'd been thinking about this forum a lot in the last couple months and had been wanting to find support somewhere. Y'all were so supportive before and I know y'all are excellent folks. 

I had joined because I have had psoriasis since I was a teen. I'm 38 now. I've been on creams and done light therapy with short relief over the years. 

In 2019, when I joined, my Dr put me on methotrexate. It seemed to work. But the side effects were something else. Brain fog, fatigue, easily distracted. I honestly believe that it brought out adult ADHD that I didn't know I have. Well, the med capped off and stopped working this past April.

In April, my Dr prescribed Humira 40mg. It seemed to work at first. But in June, my psoriasis came back with a vengeance. It is worse than it has ever been. It's everywhere except my face and feet. It's even on the palms of my hands. It is debilitating and is killing my self-esteem. And my fatigue is worse than ever. I'm thankful my bf has been so very supportive or I'd feel worse. If that's even possible. 

So, my Dr has put me on Taltz 80mg. I am to begin the first double dose, week 0, tomorrow. I'm quite nervous. Humira didn't hurt at first but towards the end, the injects started to be a bit painful. I do not like to infect pain on myself. But, at this point, I don't care. I just want the itching, burning, and pain to end. 

Does anyone have any tips or thoughts on Taltz?

Does anyone know what happens after we have used our single use syringes and am I doing it right ?

Once I'm finished here is what I do.

1. The swab I use to clean the skin goes in the bathroom waste bin.
   
2. The cardboard box, inner packaging, leaflet and needle cap I put in the recycle bin.
   
3. The syringe goes in my yellow sharps bin.
   

Hello!  

Thank you for membership in this forum.  I look forward to getting to know you, to your help, and to learning more about psoriasis.

I saw a dermatologist in April 2021 and had two punch biopsies.  Before the biopsies, the doctor said that it looked like I had Psoriasis.  However, pathologist report said it was possibly a "drug-induced psoriasis or psoriasiform drug eruption."  

The literature for Humira says that a user may develop new or worsening psoriasis. I have been on Humira for Crohn's Disease since 2007.  Humira has given me a wonderful remission from Crohn's, and I have returned to an active lifestyle following many years of illness.  

I am 56-year-old female who developed Crohn's at the age of 21. With this remission, I returned to the love of my teenage years--roller skating--and found the sport of Artistic Roller Skating (think figure skating) was open for all ages.  The rashes are annoying wherever they are on my body, but the part that is most concerning involves my feet since they spend a lot of time in skates.

My dermatologist gave me prescriptions for Augmented Betamethasone ointment (and lotion for scalp) as needed when psoriasis is present.  He said that it could take a few months to see results.  The prescription contains 11 refills for a one-year period.  He also prescribed a Desonide ointment for delicate skin.  I assumed that with so many refills, this medication could be used long-term. 

The rash was originally located in only a couple places on my shins and arms and in my scalp.   Now it is on my legs from hip to toes, a little on my front torso, on my back torso, and lightly on my forehead.  

I developed thin skin and bleeding in my instep, ankle, and on the two fingers I most commonly used to apply the ointments (I always washed hands with soap and water after applying), so I quit using the ointments on August 25, 2021, but resumed the today (August 31) on a few spots that had become extra painful/itchy.  

Through this forum, I am learning that topical steriods are not good long term . . . or maybe not good at all.  I hope to learn more.   Did the use of the ointments possibly cause more rashes?  I have been using Lubriderm lotion or Cetaphil Cream after morning showers and bathing with colloidal oatmeal on most afternoons, hoping that moisturizing will help.

The cost for the office visit with biopsies was nearly $700, with my co-pay being $60.  When I was 21-years-old and met the gastroenterologist who diagnosed Crohn's Disease, the initial consultation cost was only $55.  I don't know how US medicine became so expensive.

Thank you for reading.

During lockdown here on Exmoor, I was looking online for something and I came across black cherry juice concentrate.

In title, it said something about how good black cherry juice is for arthritis, gout etc etc and I thought to myself; “I wonder if it would work on PSA sufferers ?”

Well, I purchased a couple of bottles and when they arrived on my doorstep, I mixed some with with my Pepsi Max and drank it for around two weeks.
I noticed that the swelling went down in my fingers and the aches & pains had eased right up in my body.

Now, black cherry juice is NOT a cure for psoriatic arthritis, but it does take around 75% of the pain away and to be honest, that’s better than nothing and better than taking pills !

Where to purchase black cherry juice ?

Supermarkets, health food shop’s, online auction sites etc.

For the poor PSA sufferers out there, give black cherry juice a go, you’ve nothing to loose, well, around £13

GB

I was just looking at the forum stats and this is what our guests see

Most viewed threads:

Types Of Psoriasis Explained (339,593 views)
Stelara round two (219,577 views)
Newsletter Subscription (214,152 views)
Back Into Hell (191,109 views)
Cosentyx for psoriatic arthritis Fred's journey (188,610 views)
[split] Dimethylfumarates and Psoriasis (174,968 views)
Bill's pure dimethylfumarate thread (161,239 views)
Fumaderm and hormone injections (145,550 views)
Starting MTX (113,652 views)
Dovobet And Dovonex (What's the difference ?) (106,457 views)
Baking soda for psoriasis (104,555 views)
How I Cured My Psoriasis By Diet (88,203 views)
Acitretin (83,546 views)
Methotrexate Injection (72,104 views)

But when it come to Most Replied To Threads they see nothing, but our members see this:

Last person wins (12,645 replies)
Related word association (10,333 replies)
The Bar (8,576 replies)
Change One (5,234 replies)
*JOKES READ AT YOUR OWN RISK* (4,738 replies)
Answer with a question (4,405 replies)
What you listening to? (4,046 replies)
The Chatting Thread (3,147 replies)
Caroline's photo's (3,126 replies)
Jim's photos (2,429 replies)
What Are You Thinking ? (2,259 replies)
[Closed] Today (1,941 replies)
Grizzly Bears photo journal (1,724 replies)
Fred's Photos (1,332 replies)

Ha we don't just talk about psoriasis. 

Just thought I would let our guests know that they are missing so much. But if they do decide to join you would be well advised to avoid Grizzly Bears photo journal 

New guy here. I did an intro post with most of my details. Have had PS since somewhere around 2010. Currently on Humira but want to get my diet in order and then come off the Humira.

I have done some research on PS and anti-inflam diets. WOW. Everything I currently eat is a big no no. Well,I guess then its no wonder i have PS lol.

Im trying to comprehend how this will work because we are talking about a huge lifestyle change for me.



Long story short. I DONT COOK.    Well, make that I "DIDNT" cook. I guess I do now.

The main snag I see is that I am a meat eater and I need my proteins. I lift weights. I hate the use the term "bodybuilder" (since i dont look like one lol) but thats the general idea. I see "no red meat" listed. Ok, that sucks but maybe not the end of the world. Then I see proteins listed as Salmon and Trout. lol. ok. Thats it???

What I dont see much guidance on is CHICKEN?!? I see eggs sometimes listed as bad, sometimes not. But I dont see much listed about actual chicken. If I were to dream that I could be on a strict bodybuilder type diet...that would typically be tons of chicken breast. So is chicken ok or is it no good or what??


Any guidance on these foods would be nice:


chicken?

veal?

any other good meat options besides fish?

eggs? I sometimes see them listed as a no no. What about egg whites? what about egg substitutes?


fruits in general. i see "no citrus fruits" and then i see on the "good" side stuff like blueberrys and cherries. lol. ok. Thats it though? What other fruits are ok?


What about green grapes? I see that "sour grapes" may be a no no. Are all green grapes considered sour? I hope not lol



what about protein powders? I am assuming most would have gluten? or would they be considered too "processed"?


The main snag for me (besides the obvious huge lifestyle change) is I dont see how i will get enough protein. Say, 200grams per day or thereabouts.



Thanks for any suggestions or ideas.  

Peace, JonJon

JonJon here. Currently 54 years old. Ive had Psoriasis since somewhere around 2010. Maybe even some symptoms as far back as 2008ish? It started on my elbows and I didnt pay much attention to it but you know how that goes.

Some years back I was taking Methotrexate and one thing lead to another and now i am on Humira.

Other than Humira I am not on ANY meds. Even with the Humira I still have plenty of scalp issues and some visible spots including one on my face which has been there a good while.

At this point my plan is to totally change my diet and to come off of Humira entirely. it is what it is.

When I look at "Psoriasis diets" or anti inflam diets, they basically rule out EVERYTHING I eat. Of course that is also a good clue as to why I ended up with Ps in the first place

I am also quite overweight. about 236lbs at 5.8".....which I read is also a contributor to chronic inflammation. Since I have a goal to be around 185lbs anyway, there is no way around a massive diet overhaul.

Stats. 7-29-2021

54 y.o.

5'8" 236lbs (goal 185ish)

taking Humira. Plan to come off of it eventually. Am on no other meds.

Ill be asking some diet and cooking questions im sure! lol

Cheers, JonJon