Im on my third dose, soon to be 4th of bimzelx and have noticed spots some almost as big as boils under my arms and on my flanks but i can get them everywhere even on my fingers. i normally have 5 or 6 under each arm/flank and two on each arm.
with cosentyx i started getting a red rash under my armpits. inverted p?  and that hasnt gone away in fact its spread slightly and the spots have come to play as well. they struggle to get a head and im trying to get some fucidin to help. i did get a few spots with cosentyx but nothing like this.

also my face flares up all the time under my beard, and on my forehead.
and ive got p inbetween my toes.

anyone else?

i am alan and live in the uk
i have been on bimzelx for 3 months and prob 90% clear but having some side effects
before that cosentyx successfully for a few ears and before that stelara for many years good for p but not so good for pa
i am 61 years old  barely married, still working and after suffering with p for 42 years i have finally got used to the shame of looking diseased and ugly. i have suffered mental illness anxiety and depression on and off for the same time ive had p.  linked maybe?
ive joined up on here hoping there are people here who can answer a few questions i have about my medication and other aspects of lifestyle changes diet etc to manage my symptoms better.
i am happy and have hobbies including motorbikes (riding and tinkering),  guitar playing, watching football, romance, and boring people to death with long intros on forums.

alan

Does anyone have experience using Ambetter insurance for their Tremphya prescription? I know I need pre-approval but want to see want an Ambetter user might have to say.

Hi all again 

I am off course searching a lot of stuff about psa, and listened to some podcasts where also food was mentioned. I was wondering did some of you had concrete results with certain foods to avoid? That would trigger flares?

Would eating vegetarian help avoiding symptoms of inflammation. 

Like I heard about dairy, sugar, soda and all that. And I understand that smoking and drinking etc would not help off course with this kind of disease.

I was wondering about your experiences and what maybe worked for you (or not). About certain foods, etc lifestyle changes.

Greetings!

I would like to wish all our members and guests a very happy new year for 2023.

A special shout out goes to those members that keep coming back to update their threads, answer others questions and offer support. Though we are mostly a forum about psoriasis it's good to see the members only boards getting used often as it means others are here when needed to welcome our new members, I've seen all sorts of things posted in the off topic board over the years but the huge amount of genuine support offered to others when needed is something you should all be proud of.

I also want to thank our forum helpers Caroline, Jim and Kat for their continued support. They give up their time to help me in the background making sure we keep the place safe for our members and quickly pointing me to the spammers and scammers so you don't have to see them.

The forum isn't used as much these days as it used to be, but In case you missed it I added enough funds to the pot to keep us going to August 2025. That doesn't mean we won't go past 2025, but we will look at that when the time comes.

Thank you all for helping make what Psoriasis Club is, I couldn't do it without you.   

Enjoy your celebrations and have a very happy and healthy new year, I'll see you on the other side. 

Regards.

Fred.

Well Ilumetri failed, I only made 1 year and it's time to move on yet again in the search for a bio that will keep the psoriatic arthritis away or at least let me live with it a bit more comfortable.

You can read my last journey here Ilumetri for psoriatic arthritis Fred's journey if you wish and there are others if you start digging, but the main reason I use a bio is because I want to be able to do things and move, this will be my 8th bio and I'm really hoping this one will ate least give me some comfort for a few years.

This time I'm starting on the recommended dose two injections of 160 mg each today then weeks 4, 8, 12, 16 and every 8 weeks thereafter.



Psoriasis Score: 4

Right Shin



Right foot



Mrs Fred got on of my scalp for me.



Psoriatic Arthritis Score: 7

Hands a bit painful.





One thumb showing the classic psoriatic arthritis lifting from the bed.



Wish me luck everyone I really could do with this one working as the psoriatic arthritis is getting me down a bit now.

Members are welcome to comment if they wish in this thread but I will also be keeping a locked copy in the members only boards of my posts for easy reference here: [Group Specific]

Hii to all, my fans (haha no kidding)

Hi everbody,

I will track my progress here for myself but also for people who would like to follow

Yesterday I went to the rheumy and she prescribed me the Cosentyx which I hope will help.The plan is to do a shot of 300 mg each week for six weeks and then I have an appointment again. Im curious If I will notice differences, hopefully yess. Im also following a physio program to strengthen my tendons, muscles, because mostly I have pain surrounding the attachments of the tendon (knee-elbow) and hopefully It will help with my tow which is quite swollen and red.

The conversation yesterday about switching the bio's went quite good, my rheumy listens well and is empathic and I am thankful for that.

My injection didn't go very smoothly I screwed it up a bit, I did it in the leg as well but quite painful and It spilled a bit, never happend before. Maybe next time the belly or where do you do it? Never happend with humira though.

But maybe I still have to progress in this field though, Im still sort of an amateur who will become a PROo haha

Allright till next week!

Hi,

I was wondering about how many hours people can work , while having PsA. I was wondering about this because I am kind of in the middle of searching appropriate jobs  as well. I used to work around 36 hours a week on the computer. But due to my PsA in the ellbow i couldnt do that anymore. When I work on the pc my arm starts to hurt after some time still.

And im wondering about people here,  could you work less hours because of your psa? Did you had to switch jobs maybe?

Like the rheum told me, I treat people working in construction who have psoriatic arthritis and some people I know with PsA run marathons.

But she also told me that, when you have PsA you are probably more sensitive on your tendons as well so you''ll be quicker to get an overload. Which kind of contradicts her statement about marathons and construction labor right?

It found that kind of confusing.

Or should this all be possible when you are on the right meds?

It seems to me that id better search for a job with a lot of variety, in standing walking sitting and may be an adapted workspace?

I wonder how you people do this, or had to make changes or anything.

Greetings 

Hi everybody i am Steven 31 and diagnosed with psa in late may. Im having ongoing tendons problems still, but im trying my first biological humira (hyrimoz) buttt my toe is still swelling, I had it before i know its dactylitis. But its a sign that the biological isn't working properly right? 

Im having a meet with my rheum in 2 weeks, want to try a different biological, i think cosentyx cause im mostly having irritation en pain around the attachment of the tendons in my elbow en knee for years now, really bad with walking etc can't walk long. And it  I was wondering if guys or girls;  might have suggestions on this part? On which biological might work regarding tendon issues.

Im doing fysio as well it helps a bit but it won't make it completely better. Still figuring a lot of stuff out, so feel free to respond if you have something on this matter!

Thank you!

My name is Jenna, and it's great to meet you! I used to be on this site quite a lot back in 2018 when I was still in college and first starting my journey with psoriasis. I have had a pretty bad flare up over the last few months, and kept thinking about when I used to be on here every day, and how absolutely awesome and supportive the people are.

Over the last few years I bounced from Humira to Taltz, and just recently started using Cosentyx. I've had a nightmare of a time getting on this new medication due to change of insurance (hence the recent flare up), and would love to hear if anyone else has experience with Cosentyx.

I'd also love to hear about other people's psoriasis journeys, and maybe make some new friends 

Hi All..new here, the leaflet on enstilar says do not use on genital area, my dermatologist told me to use it there!! Anyone had any issues with it, need to use on the foreskin.
Thank you.

Hi All,

I've suffered from psoriasis for over 20 years and just started Talz on October 1st. Since I started, I've noticed that my tonsils are swollen, and I snore. I don't typically snore. My daughter just got over a cold with a cough, so I wasn't sure if I was coming down with her cold or if the swollen tonsils and snoring were because of the medication. Has anyone else experienced this? Thanks!

Is it considered rude to scratch in public?  Or is it embarrassing to those around you if you do scratch?

We've moved into town from the countryside where there was a lot of privacy.  Our new house is not yet unpacked. We are laboring through this move, carrying heavy boxes, moving furniture, etc.  We had curtains open, window blinds open, neighbor houses surrounding us, sunlight shining in, and I reached both hands to my scalp and had a little scratching while standing and resting a moment.

"The neighbors will see you!" my partner exclaimed.

Huh?

That was the first indication I had from him that maybe my scratching is embarrassing to him.

What is the etiquette for scratching?

Are there different rules for scratching in public versus scratching in your own home?  I DO vacuum up any flakes I leave on the floor or chairs at home.  But I wonder, now, if my idle scratching within my home is unsettling to my partner and that he hasn't said anything, yet.

How do you cope with itching when you are with other people in general and with your intimate family in particular?

Bit random but has anybody experienced hair loss cause by their P? 

I have been clear of P for about 6 years on adlimumab and have recently had a breakout of guttate P after being ill for a few days. At the same time as the P coming back i developed a bald patch the size of a coin in my beard, this has grown to about the size of a tea bag.

Ive had a beard since i left school, this is doing my head in!

Regarding weight I totally agree. I think it's very personal and only matters if a person is happy. In my case I do know that I need to lose some weight to be healthier and happier.

I wasn't disagreeing with Caroline but was curious as to if there was any documented research that shows a correlation between psoriasis and being overweight. I've gained weight since being diagnosed and my psoriasis is better now and I currently am not on meds for psoriasis which is another reason I was curious.

I often have different opinions than others on some things, but that's all it is, an opinion. I'm the first person to say I don't know what I'm talking about.

Hi

I was diagnosed with guttate psoriasis in early childhood. I've been on loads of treatments over the last 20 years including topicals, light treatment and a short stint on cyclosporin. About 4 years ago I decided to stop all treatment for a while and see how my skin was, I changed my diet and lifestyle and worked on my stress levels which is a huge trigger for flare-ups. I've flared a couple of times a year since coming off treatment and always have a baseline level of active patches which I had just learnt to accept. I'm not particularly self-conscious about the appearance of my psoriasis so that helped me not worry so much about having a break from treatment. 

After catching covid in January I have been in a constant cycle of flaring up then my skin settles for a couple of days before flaring again. Over the last couple of weeks, I've had a HUGE flare-up, my skin is a mess and the patches are everywhere - on my face, in my ears on my scalp and everywhere else imaginable. I can't sleep and I'm struggling to concentrate on anything other than my skin, it really is horrid.

I am ready to try some treatment again but I want to start with topicals again rather than just being given a referral to dermatology straight away which has happened in the past.

I'm hoping someone has some advice on the best topicals to ask for so I can go to the GP armed with loads of information, I always found dovobet to be really effective, is this still an option? 

Any advice welcome on how to go back into treatment after such a long break. xx

I am 63 years old and have only had psoriasis for two years. It started in my face, but after a few weeks my whole body was covered with spots, bumps and flakes. Once the diagnosis was made, the search for a remedy that would adequately combat the symptoms began.
- Skilarence gave me severe diarrhea after a few months, so I couldn't continue with it.
- Methotrexate (MTX) had little effect on my psoriasis. Because the drug can be a heavy attack on the liver and other organs, the disadvantages outweighed the benefits.

Then the biologicals came into the picture.
- Hyrimoz adalimumab (an injection every two weeks) did work a bit, but my legs especially remained full of flaky spots.
- Ilumetri Tildrakizumab (an injection every three months) has made the psoriasis spots almost completely disappear in a few months. The starting injection was at the end of March 2022 and from April 2022 the injection must be repeated every three months. The effect on the psoriasis is excellent. I barely have any flaky spots. But...

HERE COMES MY QUESTION
In May 2022 I started experiencing joint pain in varying places. It often starts at the end of the afternoon or in the evening. Sometimes in an ankle, then in a finger, sometimes a whole hand or just one toe, shoulder, knee or elbow. Sometimes it is so intense that I can hardly walk or that the pain keeps me from sleeping. The pain is almost always gone the next day and the affected joint is still a bit stiff. Almost every day there is a joint that hurts at night.

Joint pain is not a known side effect of Ilumetri, but even a rheumatologist had no logical explanation and found it suspicious that these complaints only occur after starting this biological.
Because Ilumetri is a relatively new drug, this joint pain may still be missing from the list of possible side effects. 

I am curious if there are other patients who receive Ilumetri injections and have joint complaints.

Has anyone had psoriasis in their ear canal?  Did you also have an ear infection?  Not the outer ear, but the inside part a Q-Tip might reach?  Would you apply a little steroid ointment, using a Q-Tip?

Anyone here heard of or been on bimzelxs for psoriasis? About to start and keen to hear others experiences

The last dose of Methotrexate was on May 5, 2022.  The daily nausea side effect gradually worsened over the five months I tried the medicine.  My skin did mostly clear, though, leaving only very small patches and discoloration where the worst patches were, but it was mostly smooth and free of itch.

Gradually, the skin grew new patches with variable itchiness.  

I increased my dose of Humira (primarily used for Crohn's Disease since 2012) on June 9 to taking it every week rather than every other week.  

First off, I felt better, overall, quickly.  My breathing improved noticeably (I have Crohn's in my lungs as well as gut).  And my energy levels improved.  

My gastroenterologist and I came up with this plan to give weekly Humira a try, just in case it would help the rashes (or make them worse) before switching to something else.  Blood tests had shown the levels of Humira in my sample were barely inside the therapeutic range.  

I'll repeat a spirometry breathing test in August and consult with pulmonologist afterward to see if the breathing  improvement is in my imagination or verifiable.  So many doctor co-pays!  Sigh.

So . . . in the first couple of days after I take the weekly dose of Humira, the rashes look better.  They are mainly where I sweat while skating, lower legs and groin.  But they are nowhere near as wide spread and uncomfortable as they were before using Methotrexate.

I'm using a mild steroidal ointment only between a couple toes on each foot and only rarely.  I've used an over the counter hydrocortisone cream on the spots in my genital area a little more often but not daily.  If I use the steroid ointments later on, I'll be much more cautious because I believe they made the patches worse in the long run as I used them last year under the advice of the first dermatologist I saw (he was an arrogant man who did not give good advice for steroid usage).

My second dermatologist (she's very good!) is on maternity leave but will return soon. I have an appointment with her on August 2.

That's my update for now.  Thanks for reading.