I began with this disease 6 months ago, plaque psoriasis in all my body.

2 moths ago i began to take Artemisia Annua pills, is a plant, now i'm almost fully recovered.

Cheers and I hope  all of you will heal.

A question, has anyone the experience that in the two days before the injection, complaints like stifness comes back?

I feel more stifness, more fatigue, my knees start to hurt, my lower back pain is coming back on the 12th day. On the 14th day i will inject myself an the day after the injection, all these complaints vanish again.

Does anyone recognize this?

Morning folks!  New member Kellie here.  Hoping to find insight on Otezla side effects.  I've been on it about 6-weeks and have worked through the usual nausea and headache but am experiencing one symptom not discussed.  

Anyone experience very sensitive skin on this stuff?  I have moderate plaque psoriasis that's responding very well to Otezla but now I'm getting this weird reaction.  It almost feels I'm feverish but my temp is fine..  Today the sensitivity is throughout my torso but not limbs.  So bizarre.  I'm not even sure it's the Otezla causing it.  Anyone have thoughts or info?

Thanks very much for your replies!

Hey y'all
It's been a couple years since I've posted anything in the forum. I've had so much going on, it's been crazy. I'd been thinking about this forum a lot in the last couple months and had been wanting to find support somewhere. Y'all were so supportive before and I know y'all are excellent folks. 

I had joined because I have had psoriasis since I was a teen. I'm 38 now. I've been on creams and done light therapy with short relief over the years. 

In 2019, when I joined, my Dr put me on methotrexate. It seemed to work. But the side effects were something else. Brain fog, fatigue, easily distracted. I honestly believe that it brought out adult ADHD that I didn't know I have. Well, the med capped off and stopped working this past April.

In April, my Dr prescribed Humira 40mg. It seemed to work at first. But in June, my psoriasis came back with a vengeance. It is worse than it has ever been. It's everywhere except my face and feet. It's even on the palms of my hands. It is debilitating and is killing my self-esteem. And my fatigue is worse than ever. I'm thankful my bf has been so very supportive or I'd feel worse. If that's even possible. 

So, my Dr has put me on Taltz 80mg. I am to begin the first double dose, week 0, tomorrow. I'm quite nervous. Humira didn't hurt at first but towards the end, the injects started to be a bit painful. I do not like to infect pain on myself. But, at this point, I don't care. I just want the itching, burning, and pain to end. 

Does anyone have any tips or thoughts on Taltz?

Does anyone know what happens after we have used our single use syringes and am I doing it right ?

Once I'm finished here is what I do.

1. The swab I use to clean the skin goes in the bathroom waste bin.
   
2. The cardboard box, inner packaging, leaflet and needle cap I put in the recycle bin.
   
3. The syringe goes in my yellow sharps bin.
   

Hello!  

Thank you for membership in this forum.  I look forward to getting to know you, to your help, and to learning more about psoriasis.

I saw a dermatologist in April 2021 and had two punch biopsies.  Before the biopsies, the doctor said that it looked like I had Psoriasis.  However, pathologist report said it was possibly a "drug-induced psoriasis or psoriasiform drug eruption."  

The literature for Humira says that a user may develop new or worsening psoriasis. I have been on Humira for Crohn's Disease since 2007.  Humira has given me a wonderful remission from Crohn's, and I have returned to an active lifestyle following many years of illness.  

I am 56-year-old female who developed Crohn's at the age of 21. With this remission, I returned to the love of my teenage years--roller skating--and found the sport of Artistic Roller Skating (think figure skating) was open for all ages.  The rashes are annoying wherever they are on my body, but the part that is most concerning involves my feet since they spend a lot of time in skates.

My dermatologist gave me prescriptions for Augmented Betamethasone ointment (and lotion for scalp) as needed when psoriasis is present.  He said that it could take a few months to see results.  The prescription contains 11 refills for a one-year period.  He also prescribed a Desonide ointment for delicate skin.  I assumed that with so many refills, this medication could be used long-term. 

The rash was originally located in only a couple places on my shins and arms and in my scalp.   Now it is on my legs from hip to toes, a little on my front torso, on my back torso, and lightly on my forehead.  

I developed thin skin and bleeding in my instep, ankle, and on the two fingers I most commonly used to apply the ointments (I always washed hands with soap and water after applying), so I quit using the ointments on August 25, 2021, but resumed the today (August 31) on a few spots that had become extra painful/itchy.  

Through this forum, I am learning that topical steriods are not good long term . . . or maybe not good at all.  I hope to learn more.   Did the use of the ointments possibly cause more rashes?  I have been using Lubriderm lotion or Cetaphil Cream after morning showers and bathing with colloidal oatmeal on most afternoons, hoping that moisturizing will help.

The cost for the office visit with biopsies was nearly $700, with my co-pay being $60.  When I was 21-years-old and met the gastroenterologist who diagnosed Crohn's Disease, the initial consultation cost was only $55.  I don't know how US medicine became so expensive.

Thank you for reading.

During lockdown here on Exmoor, I was looking online for something and I came across black cherry juice concentrate.

In title, it said something about how good black cherry juice is for arthritis, gout etc etc and I thought to myself; “I wonder if it would work on PSA sufferers ?”

Well, I purchased a couple of bottles and when they arrived on my doorstep, I mixed some with with my Pepsi Max and drank it for around two weeks.
I noticed that the swelling went down in my fingers and the aches & pains had eased right up in my body.

Now, black cherry juice is NOT a cure for psoriatic arthritis, but it does take around 75% of the pain away and to be honest, that’s better than nothing and better than taking pills !

Where to purchase black cherry juice ?

Supermarkets, health food shop’s, online auction sites etc.

For the poor PSA sufferers out there, give black cherry juice a go, you’ve nothing to loose, well, around £13

GB

I was just looking at the forum stats and this is what our guests see

Most viewed threads:

Types Of Psoriasis Explained (339,593 views)
Stelara round two (219,577 views)
Newsletter Subscription (214,152 views)
Back Into Hell (191,109 views)
Cosentyx for psoriatic arthritis Fred's journey (188,610 views)
[split] Dimethylfumarates and Psoriasis (174,968 views)
Bill's pure dimethylfumarate thread (161,239 views)
Fumaderm and hormone injections (145,550 views)
Starting MTX (113,652 views)
Dovobet And Dovonex (What's the difference ?) (106,457 views)
Baking soda for psoriasis (104,555 views)
How I Cured My Psoriasis By Diet (88,203 views)
Acitretin (83,546 views)
Methotrexate Injection (72,104 views)

But when it come to Most Replied To Threads they see nothing, but our members see this:

Last person wins (12,645 replies)
Related word association (10,333 replies)
The Bar (8,576 replies)
Change One (5,234 replies)
*JOKES READ AT YOUR OWN RISK* (4,738 replies)
Answer with a question (4,405 replies)
What you listening to? (4,046 replies)
The Chatting Thread (3,147 replies)
Caroline's photo's (3,126 replies)
Jim's photos (2,429 replies)
What Are You Thinking ? (2,259 replies)
[Closed] Today (1,941 replies)
Grizzly Bears photo journal (1,724 replies)
Fred's Photos (1,332 replies)

Ha we don't just talk about psoriasis. 

Just thought I would let our guests know that they are missing so much. But if they do decide to join you would be well advised to avoid Grizzly Bears photo journal 

New guy here. I did an intro post with most of my details. Have had PS since somewhere around 2010. Currently on Humira but want to get my diet in order and then come off the Humira.

I have done some research on PS and anti-inflam diets. WOW. Everything I currently eat is a big no no. Well,I guess then its no wonder i have PS lol.

Im trying to comprehend how this will work because we are talking about a huge lifestyle change for me.



Long story short. I DONT COOK.    Well, make that I "DIDNT" cook. I guess I do now.

The main snag I see is that I am a meat eater and I need my proteins. I lift weights. I hate the use the term "bodybuilder" (since i dont look like one lol) but thats the general idea. I see "no red meat" listed. Ok, that sucks but maybe not the end of the world. Then I see proteins listed as Salmon and Trout. lol. ok. Thats it???

What I dont see much guidance on is CHICKEN?!? I see eggs sometimes listed as bad, sometimes not. But I dont see much listed about actual chicken. If I were to dream that I could be on a strict bodybuilder type diet...that would typically be tons of chicken breast. So is chicken ok or is it no good or what??


Any guidance on these foods would be nice:


chicken?

veal?

any other good meat options besides fish?

eggs? I sometimes see them listed as a no no. What about egg whites? what about egg substitutes?


fruits in general. i see "no citrus fruits" and then i see on the "good" side stuff like blueberrys and cherries. lol. ok. Thats it though? What other fruits are ok?


What about green grapes? I see that "sour grapes" may be a no no. Are all green grapes considered sour? I hope not lol



what about protein powders? I am assuming most would have gluten? or would they be considered too "processed"?


The main snag for me (besides the obvious huge lifestyle change) is I dont see how i will get enough protein. Say, 200grams per day or thereabouts.



Thanks for any suggestions or ideas.  

Peace, JonJon

JonJon here. Currently 54 years old. Ive had Psoriasis since somewhere around 2010. Maybe even some symptoms as far back as 2008ish? It started on my elbows and I didnt pay much attention to it but you know how that goes.

Some years back I was taking Methotrexate and one thing lead to another and now i am on Humira.

Other than Humira I am not on ANY meds. Even with the Humira I still have plenty of scalp issues and some visible spots including one on my face which has been there a good while.

At this point my plan is to totally change my diet and to come off of Humira entirely. it is what it is.

When I look at "Psoriasis diets" or anti inflam diets, they basically rule out EVERYTHING I eat. Of course that is also a good clue as to why I ended up with Ps in the first place

I am also quite overweight. about 236lbs at 5.8".....which I read is also a contributor to chronic inflammation. Since I have a goal to be around 185lbs anyway, there is no way around a massive diet overhaul.

Stats. 7-29-2021

54 y.o.

5'8" 236lbs (goal 185ish)

taking Humira. Plan to come off of it eventually. Am on no other meds.

Ill be asking some diet and cooking questions im sure! lol

Cheers, JonJon

Its been well over a year since I stopped my treatment, due to problems with my eyes. Still have problems but very mild.

Last night, I had my fist injection of ilumetri. See how that goes. Scared it will affect my eyes, if I tell the truth

ANYWAY. 
A few weeks ago I was given oral steroids (prednisone) for inflammation in my nose. Had them a few years ago. Not a problem.
Only a short 5 day treatment but boy did it clear my skin .
After 5 days its pretty amazing. I didnt even know Prednisone was used to clear Psoriasis. Apparently its only short term and works way better in men.
I cant find anything about it on here.

Hi everyone, it's been a while since I last posted.

So I've been trying to dodge covid while slowly getting covered in psoriasis. My derm convinced me to hold off going on to any meds while covid was in full swing and over the last year or so im now at a point where I have no choice. 

I was previously on Fumaderm which was a miracle drug for me where I got full clearance on just 1 full strength tablet. I then got moved to skillerence but I  had very bad stomach pains and ended up stopping them.

So a year later im in need of more meds and for my sins I asked to try skillerence again. I got on so well with Fumaderm I want to give it another go. 

So I'm now on 3 initial tablets a day and although I've had stomach pains im determined to see it through. 

Second time lucky? Fingers crossed.

Along with my regular psoriasis I now have sebopsoriasis around my nostrils and down the sides of my nose. It is so sore (obviously not helped by having to wear face masks - but not for much longer!), dry, itchy, unslightly. Dermatologist prescribed protopic but that’s not helped. Does anyone else suffer from this and has any tips on how to manage it? I’m really self conscious of it.

Hi all. I have a question for those who are familiar and have personal experience with TALTZ. I got on TALTZ because I have inverse psoriasis in the under carriage area. My face (though it’s flared in the past) had been clear for about 6 months before getting on TALTZ. I have had 2 injections. My face is now flaring pretty bad. Is that a temporary side affect? Should I press on? Or quit immediately?

As I reported in my introduction topic, I would talk to my rheumatologist about starting Mtx. His assistant nurse had called me a few weeks back, about de Mri results, and she had said that they would start with Mtx and if that didn't help they would switch to Humira.

But why start with Mtx if you're not sure what it does for PsA? I also told in my introduction topic, that I had found a video on Youtube in which my rheumatologist himself indicates that it is unknown whether Mtx actually works for PsA. 
Given the many negative reports, but also positive reports about Mtx, I myself had a hesitant attitude towards it. Why start with Mtx if you, as a rheumatologist, don't support it yourself? And why not immediately start on the Humira?

So last Tuesday I went for a consultation with my rheumatologist and told him what my reluctance was towards starting Mtx. 
Of course he indicated that it is an insurance policy thing and also the guidelines within the Netherlands, so Mtx is the first choice of treatment, blabla bla bla...

To which I indicated: Yes that's a good story, but not enough for me, because I read that several studies indicate that Mtx does not do much for PsA, that they do not know what it does anyway. And besides, there is a video of you on Youtube in which you indicate that you also do not know whether it really works. So how do you substantiate the choice to start with Mtx?

He looked at me in surprise 
I said: I told you that I have Autism and that I am not a patient like others, I research everything in advance, down to the semicolon, so substantiate your story  

He started laughing really hard and he said “shit, I'm getting caught on my own words here, very good!.
 
He didn't mind at all that I confronted him about the research end video and was impressed that I had sorted out so much information.
He said, “As a rheumatologist I can bound the rules, my assitent nurse is not allowed to do that. I understand that she stated to start with Mtx. But I can deviate from the rules. Obviously is by Mri and also diagnosed, you have axial PsA, and if you don't want to use Mtx, I immediately will let you start with Humira, which I also think is the best option for you.
So I said: that's what I want, no Mtx, but the Humira.

And today I will start with the Humira. I have to pick up the injections at the pharmacy of the hospital later this day. Than go to the rheumatism nurse for a injection instruction and my first injection of Humira will be immediately made.

I'm glad I got into the discussion with my rheumatologist and he went along with it. I'm realy glad I chose him as my rheumatologist. When I told him that the pain is sometimes unbearable, my quality of life is really F.ckedup , that I sometimes couldn't stand it anymore, he also indicated that he understood that very well. (sometime it's very nice to be heard).

If the Humira does not help me, the pain in my neck remains unbearable, he has promised to send me to the pain clinic. So at least he won't let me down and won't send me away like all the other rheumatologists in the past nine years who send me away to the psychologist 

I am curious, I hope the Humira will work for me, that I will hardly get any side effects and that I will finally be freed from stiffness and pain after more than 9 years, I hope so! The most important thing for me is that my quality of life gets better than it is now, that's what I'm going for! 

Y’all, I’m scared!!   

I’m about to do my first auto injection of Taltz and I here it hurts like a mother. I had a regular injection of the stuff at my derm’s office 2 weeks ago and THAT even hurt more than a regular shot. Autoinjecter is supposed to be much worse.

So my questions: 

Which site on the body is best??
Any tips for making it less painful?? 

Thanks all!

Hey, everyone. I’ve never been in a forum before, so I hope I’m doing this right (not over sharing or whatever )  .

My skin issues started in 2019, with scaly crinkly skin under my eyes and around my mouth… and also on the lady bits (hence the concern with over sharing). I had no idea wtf was happening because while I’d dealt with occasional eczema patches between my fingers, at 42 years old I’d never had anything like psoriasis. Also, it’s not in my family. 

I had just stopped using a very strong cortisone cream. I think using it for so long (which apparently I wasn’t supposed to do) and then quitting it is what triggered an autoimmune disorder that most resembles inverse psoriasis down below and plaque psoriasis on my face. Which is why I’m here. 

My latest doc got me on TALTZ. I’ll go to the treatment page to ask questions about that. 

But as far as intros go: I’m 42, married (though I cannot fathom why he hasn’t hit the door yet since my issues have kept us from…. Over sharing again, sorry). I have 3 kids. 

Anyway, I hope to not feel so alone by talking to other people who deal with this, as well as get answers about how to cope. 

This months poll asks: How embarrassing do you find psoriasis

*Thank you to Jim for the suggestion

Members and guests can vote in the poll above, and our members are welcome to post in this thread too if they wish.

*Members usernames will not be shown in the poll.

This might be a silly question, but I'm going to ask it anyway  
Hopefuly users of Methotrexate can tell me more.

If you use Methotrexate, it has an effect on your immune system, the chance of contracting viruses and bacteria and resulting infections is greater.
But what about saying hello to people? Do you have to take this into account? I mean shaking hands and kissing? 

Unfortunately, here in the Netherlands we give eachother three kisses when we see eachother and also when we leave... 
For me thats on a weekend with friends, and there are always around 30 men, it will be 90 kisses when i see them and then usually also 90 when I leave. .. I also try to sneak out ... but thats not always possible  

But have you received any advice about this when using Methotrexate? I can't find anything about this form of contact.

I've been reading on this Forum for a while now, it was Caroline who told me about this Forum, so thanks Caroline!  And now I'll introduce myself. My name is Yvon and I come from the Netherlands.

I have psoriasis since I was a child and I got physical complaints when I was 38, I am now 48 years old.
Complaints like back pain, terrible fatigue, painful knees, all my joints hurt, at least the attachments/tendons.

Hospital in and out. I got diagnoses like fibromyalgia, osteoarthritis and the worst "it must be psychological go see the psychiatrist".
Last year the pain became so bad, that I once again went to visit the general pratitioner, who wanted to send me away again, she said that it would be muscle overload. At my insistence, I was referred to the rheumatologist (the fourth), this time a rheumatologist who specializes in psoriatic arthritis.

During the first conversation he immediately confirmed my own suspicion, I also have psoriatic arthritis. He found it unimaginable that I was sent away so much in those 10 years because the signals for PsA were obvious.

Because here in the Netherlands it has to be demonstrated on the basis of redness and swelling and possibly confirmation via an ultrasound and this was all absent with me, I could only get the nsaids/painkillers.
This didn't work and I kept calling the rheumatologist, also because I got an unbearable nerve compression in my neck. Then they did an MRI of my neck and pelvis. It showed that the vertebrae were inflamed, deformities on my vertebrae and there were many spots on my pelvis and sacrum that indicated that there had been inflammation in the past.

In a week I will start with Methodextrate by injection, which I am not looking forward to. But Mtx is also the first choice in the Netherlands for treating PsA, only if that does not work well or you get too many side effects, you can switch to biologicals such as Humira. That's an insurance story here. While research here in the Netherlands indicates that MTX does not work sufficiently for PsA.

Anyway, I hope it will work, because the pain is driving me crazy. And in the meantime, I enjoy reading this Forum, to read your experiences. It's nice for me to see so much recognition, then you're not alone.