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Hi and welcome to the December newsletter, this month, for us in the northern hemisphere it's time to wrap up warm and hope the winter passes quickly as those of you with Psoriatic arthritis know well that cold and damp equals more aches and pains and the lack of sunshine is not good for us plaque psoriasis sufferers ....I hope you will find something of interest in it. If you can find a few minutes to click on some of the links and perhaps post a welcome to a new member or answer one of their questions ....I know it will be appreciated The off topic boards have again been very busy with lots of interesting subjects discussed ..we hope to see you soon ..
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This Months Stats.
19 New Members | 65 New Threads | 2161 New Posts | 4 Newsletter subscriptions
This months new members
todlhunter - williamwatson - Deuce - seattlemom07 - ROBINSMOM - Evan - LizzieD - Boise30m - Pupcake - Isobel - AnotherBotDown - Closetpheonix - Raxyl - BreezyGem - Yogipower - deenochan - jerlee - kimmiecoco - littlestar17 -
New Introductions.
Please look at these introductions and come and welcome the new members that have taken the trouble to write an introduction. Todd asks has anyone tried E45, .
Newbie here, I have decided to look for a clinical trial that I can go on that me a be miracle cure for my chronic plaque psoriasis, whilst I was trawling my way around the t'internet I fell upon this group, helloooo!.........Read more here Seattlemom says ......Hey everyone...Newbie here new to this forum, but far from new to psoriasis. Diagnosed as a teen
Read More Here Evan asks......Has anyone tried Siliq .... Has anyone else tried this? My doctor put me on it this summer and I've been 100% clear since. No flare ups, 100% clear for the first time in 20 years. Very happy!............. Read More Boise30m wrote ...My name is Grant. I got my first psoriasis outbreak at the age of 30 last month same day as the fires in Santa Rosa. For almost a month I went to the doctors office and they did not know what I had they prescribed me prednizone steriods. Then I had this old physicians assistant tell me I had psoriasis on November 4. I made an appointment with a dermatologist for November 16. Since finding out I have psoriasis I have done a lot of research online. I quit energy drinks, coffee, sugar, have been going to the tanning salon doing relight therapy bed. I am taking a probiotic, milk thistle, tumeric, fish oil, l-lysine, vit d3, lotion, dead sea salt. I have it on my arms, legs, and stomach. Right now it is worst on my arms. It is awful, and to know that there is no cure it is chronic. I saw online some people who had it, and wanted to kill themselves. ............Read More Here Raxyl says g'day everyone ... Hi All, I hope your are all well and having a fantastic day.
I was googling my plaques off looking for info about acitretin when I came across this place and thought I should dip my toes in the water, so I guess I should do a brief bio;
I live in Tasmania, that tiny triangular island at the bottom of the Australian mainland and I have had plaque psoriasis for about 20 years. In that time I have ended up trying most treatments "snake oil" and otherwise..........
Read more here jerlee says hello ..
I would like to introduce myself, I'm Jerry and I have had psoriasis for over 20 years also. I have tried about everything and then 6-8 years ago I was put on the Humira injection and I went from 60% of my entire body covered in thick scale to less than 5%. It has also been a blessing with my arthritis.
Read more here
Members Treatments, Questions and comments . click on the links and see if you can help.
Kpthenut asks about psoriasis and other chronic illnesses I've been looking at what treatments are available. I'm not sure about any of the oral meds.
I have 2 chronic illnesses. An underactive thyroid for which I take 175mg thyroxine, I have this under control and don't think it would be affected.
I also have ulcerative colitis which is inflammation of the colon. I struggle to get keep it under control and it appears most of the oral meds can cause diarrhoea so I can think I'd have problems.
Does anyone else have similar
Read More Here Hanna writes .....Here we go again So summer is over, and over the last 3 months my psoriasis began to flare.
I started taking the pill 2 months ago and this seemed to speed my flare up, I was leaving flakes everywhere.
I havent felt like this in a long time, but I started to feel very self conscious.
With my oldest starting school I am meeting new people and I am aware again of my appearance, I would even be at friends and notice I was leaving flakes where I sat.
I want to take the boys swimming but just cant face it, not just because of how I look but the thought of the pain I will in after.
I havent felt this way for some time now......Read the rest here Awesomeman writes of his Cosentyx story Hey Everyone, I just wanted to share my feedback. I know Cosentyx is a new drug so I wanted to do my best to share my story in hopes of helping others. Quick Disclaimer, I take it for Rheumatoid Arthritis NOT Psoriasis, But I've gotten so much good info here I wanted to give back.......... The bad ....
Weight Loss(about 20 pounds or 12% loss in 7 weeks)......maybe a plus for some lol
Oral Candida(UGH sucks)
Sensation of passing out (noticing a fair amount of other RA guys are complaining about this)
Fatigue (noticing a fair amount of other RA guys are complaining about this)
Foggyness
Easy bruising
Click here to read the full story
Psoriasis News and other related items .
Tremfya improved Psoriatic Arthritis...Janssen Research & Development announced today longer-term results from a Phase 2 study investigating TREMFYA® (guselkumab), the first selective anti-interleukin (IL)-23 monoclonal antibody to show positive results in the treatment of active psoriatic arthritis. According to findings presented at the 2017 ACR/ARHP Annual Meeting, more than 70 percent of patients receiving TREMFYA® 100 mg subcutaneous injections achieved at least a 20 percent improvement in signs and symptoms of disease (ACR 20) using observed data at week 56.
Read the rest of the thread here Demira ends collaboration Dermira, Inc. and UCB (Euronext:UCB) today announced the companies have agreed to end their development and commercialization agreement for CIMZIA (certolizumab pegol) in psoriasis. Following positive Phase 3 clinical trial results, UCB and Dermira announced U.S. and EU regulatory submissions for CIMZIA for the treatment of moderate-to-severe chronic plaque psoriasis in July of this year. Pending regulatory approval, UCB remains committed to commercializing CIMZIA in psoriasis worldwide..
......... Read more about it Here About "Not relevant" responses to DLQI from psoriasis sufferers
This study suggests a reconsideration of the use of the DLQI for medical and financial decision-making in psoriasis patients is needed. ....... Read more here Novataris will announce new evidence on Cosentyx for Psoriatic arthritis ...
New evidence on the efficacy of the innovative biologic Cosentyx® (secukinumab) demonstrating its potential to reduce structural disease progression in patients with specific rheumatological conditions will be presented at the 2017 ACR/ARHP Annual Meeting in San Diego, United States. The Cosentyx late breaking presentations will include new 4-year data from the MEASURE 1 study in patients with ankylosing spondylitis (AS), and 24-week data from the FUTURE 5 study in patients with psoriatic arthritis (PsA), two debilitating autoimmune diseases with a high risk of mobility loss.
........Read More Here Taltz shows good results for Psoriatic arthritis .
Eli Lilly and Company announced today patients with active psoriatic arthritis (PsA) treated with Taltz (ixekizumab), who were previously intolerant or had inadequate responses to TNF inhibitors, showed improvements in the signs and symptoms of PsA across treatment groups for up to 52 weeks.
Over the 52-week extension period, the majority of patients treated with Taltz achieved at least a 20-percent improvement in disease activity, as defined by the American College of Rheumatology (ACR 20), the primary endpoint of the study extension. Patients also maintained improvements in key secondary endpoints, including skin clearance and physical function, as measured by the Psoriasis Area Severity Index (PASI) and the Health Assessment Questionnaire Disability Index (HAQ-DI) respectively..........Read More Here Road to Biological psoriasis treatment is still long...
A considerable disease period often precedes initiation of a biologic in patients with psoriasis. Little is known about this important period in patients’ lives. Evaluation of this ‘journey’ can reveal important insights and opportunities for physicians and health care decision makers.
Objectives
(1) To describe patient and treatment characteristics until the start of biologic treatment in patients with severe psoriasis, (2) to assess shifts in early (2005-2009) versus established (2010-2015) biologics prescription periods, (3) to assess changes in hospital/day care admissions before vs. after starting biologics.......Read More of this study Here TNF and FAE psoriasis treatments effect on male fertility...
This study looked at male fertility and sperm quality in patients with psoriasis that use TNF-alpha inhibitors or fumaric acid esters. .........Read More Here Cal/BD psoriasis treatment Foam v Gel study...
This study looked at patient preference for fixed combination calcipotriol 50 μg/g (Cal) and betamethasone 0.5 mg/g as dipropionate (BD) foam vs gel in psoriasis patients. .........Read More Here Tremfya gets FDA approval ...
Following on from this thread Tremfya seeks FDA approval the FDA have approved Tremfya (Guselkumab)........ Janssen Biotech, Inc. (Janssen) announced today that the U.S. Food and Drug Administration (FDA) has approved TREMFYA™ (guselkumab) for the treatment of adults living with moderate to severe plaque psoriasis who are candidates for systemic therapy or phototherapy. TREMFYA™ is the first and only approved biologic therapy that selectively blocks only IL-23, a cytokine that plays a key role in plaque psoriasisRead More Here Cosentyx works for nail and palmoplantar psoriasis
Novartis today announced first-of-its-kind long-term data showing that Cosentyx® (secukinumab) provided sustained improvements in nail and palmoplantar psoriasis out to 2.5 years. These data are unique as it is the first time any biologic has demonstrated long-term efficacy and safety in nail and palmoplantar psoriasis.
Up to 90% of psoriasis patients may develop nail psoriasis or palmoplantar psoriasis, which affects the palms of the hands and soles of the feet. Both nail and palmoplantar psoriasis heavily impact patients' quality of life leading to reduced mobility, functional impairment and physical discomfort.Read more here
Want More
A lot of members only threads have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
John's Recipe
Cola Ham
Dead simple recipe this.
Sorry I cant really give hard and fast measurements or timings. It doesn’t really lend itself to it. Rest assured you would have to be trying hard to make a mess of it, it can take a lot of punishment.
But be warned. Your pan will look hideous after.- all black and nasty. It will clean up - honest
Take 1 Ham or Gammon joint. I prefer a smoked joint but it doesn’t matter. Its size is dependant on how many you have to feed.
In a large pan, throw your joint in along with a couple of onions, carrots a medium potato and a stick of celery. As long as they are clean they don't need peeling, just roughly hack into quarters. Chuck in half a dozen cloves, half a dozen black pepper corns, a star anise and a couple of bay leaves. Get a 2 litre bottle of the cheapest nastiest full fat cola you can buy (don’t waste your money on the expensive stuff and don't use sugar free) and top your pan up with the cola.
Bring to the boil and simmer for an hour to an hour and a half depending on the Ham’s size and whether you are going to bake it as well. Try to keep the ham covered in the liquid. If you run out of cola just use water. when you've finished cooking remove the joint from the liqor, throw all the veggies and liquid away. Its done its job
Now it can be eaten just like it is but I like to let it cool for a bit, strip the skin off leaving a little layer of the fat. Cross cut it into a diamond pattern and stud the intersection with cloves. Drizzle with honey and a good coat of Demerara sugar whack it in a pre heated oven at 180C and bake for 40 minutes or so.
Remove from oven and let rest for 20minues before carving.
It can be eaten hot or cold. Serve with a good coarse grain mustard or chutney.
I like to serve mine with a braised Red Cabbage and potatoes that have been par-boiled, a section of the spud carved out with a teaspoon to form a lid. Scoop out a little more potato and fill with Crumbly Lancashire Cheese. Stick the lid back on over the cheese and roast for about 50 mins or until crisp and golden and the cheese al nice and melty.Then
Tuck in JohnB
To read more recipes or to add your own
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Members photos.
A few pictures of Autumn from Caroline
No sequential story this time. Just some pictures of the so called Arborethum. A collection of trees from all over the world.
Some of them are quite unique as there are only a few of them still left.
See more pictures here If you would like your photos featured let me know and they will feature in a future newsletter
Sneaky peak
We have an active Off Topic Board and we thought we would share some sneaky peaks with our lurkers.
Has anyone else used Qwant .It's a French search engine (available in all languages) and it follows EU rules on privacy, unlike Google that racks everything you do even if you tell it not to.
So far I'm finding it's giving good results, but wondered if anyone else had tried it.
GREAT TRUTHS THAT LITTLE CHILDREN HAVE LEARNED:
1) No matter how hard you try, you can't baptize cats..
2) When your Mom is mad at your Dad, don't let her brush your hair.
3) If your sister hits you, don't hit her back. They always Catch the second person.
4) Never ask your 3-year old brother to hold a tomato.
5) You can't trust dogs to watch your food..
6) Don't sneeze when someone is cutting your hair..
7) Never hold a Dust-Buster and a cat at the same time.
8) You can't hide a piece of broccoli in a glass of milk.
9) Don't wear polka-dot underwear under white shorts.
10) The best place to be when you're sad is Grandma's lap
There is a selection of psoriasisclub photos you can use in your posts if you wish ....
See more of them Click Here
Then just enter the code in your post to use them
Hints and tips
Each month I will add a tip or a helpful link to assist with your posts ..
Adding internal links to your posts
I'm often asked how can I post a link to another post It's not that difficult when you read the tutorial ........See here
Another question we are often asked is can I use BB codes on here , yes you can and there's a list of them
Something a bit different from me this month as I've hit the Merlot whilst doing my column.
Phases is the new album by Angel Olsen. I'm guessing not many of you will know about her music, but this album is a mix of her early demo’s and some previously unreleased material along with a couple of new tracks and B sides.
If you track down some live video's of just her and a guitar you will see how engrossed she is in her music. This album will give you a taste of her work and some of the differences in the vocals.
My top three from the album are:
Fly on your wall
Endless Road
Sweet Dreams
She has her own style but if you take a bit of Karen Dalton, Vashti Bunyan, add a bit of Nico and Joan Baez then slip in a little Roy Orbison you will get Angel Olsen. (She will probably hate me for saying that, but it's the only way I could think of explaining her voice.)
