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Welcome to your February newsletter. As the temperatures drop here in the Northern hemisphere we are looking towards spring and the brightness of the prospect of summer to help our skins, and another year of sunflower competition for members ....read more about that later
I hope that your psoriasis is under control and the treatment you are on is still working well, if not why not come and talk about it, as you know we strive to keep a friendly atmosphere at the club and we would be delighted to see you back if you haven't been for a while
I'm always looking for ideas to improve the newsletter if you have a suggestion contact me or if you prefer any of the helpers HERE
If you are currently a subscriber to the newsletter you will receive notification with a link at the beginning of each month. If you don't currently recieve one and would like to receive an email when a new newsletter is made click Here!
Note: Subscribed members get an early view of the newsletter.
Please look at these introductions and come and welcome the new members that have taken the trouble to write an introduction. MarcusScone wrote .... Hi there
Been a lurker for sometime now. I’m in my mid twenties and have had psoriasis since I was 12. I’ve gone through the motions with various topicals, with only Enstilar and the protopic ointments being of any use. I only got my hands on these earlier last year, but they’re only help marginally with comfort, but the clearance hasn’t really happened.
Last year I also tried acitretin but this didn’t give much clearance either, so now have been suggested to try Skilarence. The private script I’ve been given however seems to cost around £1300 for a 14 weeks at one of the well known high street pharmacists which is pretty darn steep. Read the rest here Carla81writes .
.Hey all, never been in anything like this before, got diognosed with psoriasis in 2002 but recently having a bad breakout, sick of itching getting me down and just wanted to meet and chat to people who understand. I'm Carla by the way
Read more here
Members Treatments, Questions and comments . click on the links and see if you can help.
mjayb asks about exercise Hi there,
I'm new here - hello!
Wondering if anyone can help.
After I go for a run, +7miles, the psoriasis spots on my back on stomach flare up.
I'm assuming it is from the irritation from the clothing mixed with the sweat from exercising. Does anybody know that the best clothing is for running long distance as a Psoriasis suffer?
Thank you!
mjb
Click Here MarcusScone started Skilarence a few days ago Hi all,
I hope all is well. After the initial saga of trying to source Skilarence privately, I found that SuperDrug stocks it at roughly half the price of anywhere else, so decided to give it a shot in the first instance.
So far so good, with limited side effects, although last night I did get a hot flush in the middle of the night which woke me up as it was uncomfortable against my pillow. I was wondering if anybody had any tips for either heading these off or managing them once they hit? It didn’t last more than about 20 minutes but It wasn’t a pleasant experience!
Read more here Martin222 says he started cosentyx yesterday
hi all. started my new drug yesterday. cosentyx after stelara had failed. had 2 injections yesterday. 2 injections next monday and so on for 5 weeks. then its one injection per month. feel ok apart from feeling like im getting a cold. will update on my journey Read more or add your comment here Cableguy57 writes of his experience with cosentyx 100% clear skin finally after 12 years after just two months of treatment
please respond here FRP88 asks
I've been diagnosed with Psoriasis and Psoriatic Arthritis for just under three years.
Started off innocently, and took over a year to actually grab my attention.
Mid 2017 until Mid 2018 - All the first off meds such as Methotrexate etc...
Nothing with any results.
Beginning of 2018 the Plaque growth jumped exponentially.
No decent dermatologists in my country.
Had to find out about biologics on my own.
Went to the US to see a dermatologist. Prices we're absurdly high.
Was able to find Cosentyx marketed as Scapho in India.
Still extremely expensive but much cheaper than Cosentyx from the US.
.
Has anyone here ever deterred from the standard dosage? Read more or add your comment here jonam wrote
Almost cured naturally after 21 years It took 21 years to get almost rid of my scalp psoriasis. Very slight traces remain, but overall looks very good, and I do not see it coming back. I have now seen 15 days of complete clearance! This is incredible news for me personally. So I want to share what I actually did to get rid of this condition. Please note I am free and open to questions and I will try my best to answer as many people as possible.
Read more or add your comment here
Psoriasis News and other related items .
ZUDAIFU CREAM STOP USING IMMEDIATELY I've left this in the newsletter in case anyone missed it last month
The MHRA has been working to prevent the further sale of Zudaifu cream and advises anyone who has bought it online to stop using it immediately.
Zudaifu cream is not a licensed medicine and has been marketed in the UK as a “natural” Chinese herbal remedy for the treatment of a range of skin conditions, most commonly eczema, psoriasis and rosacea.
Our analysis of the product found the presence of the steroid clobetasol propionate. This is the active ingredient in Prescription-Only medicines used for the treatment of a range skin conditions such as psoriasis and eczema.
Read full report Here 308-nm excimer light treatment for scalp psoriasis
Scalp psoriasis is a major therapeutic challenge due to the hindrance caused by hair. Treatment with the 308‐nm excimer lamp is purported to provide many benefits over conventional phototherapy. This retrospective study evaluates the efficacy, safety, and effective dosage of 308‐nm excimer light in the treatment of scalp psoriasis.
Read the rest of the study click Here undiagnosed psoriatic arthritis is high in patients with psoriasis This study suggests improved Psoriatic Arthritis (PsA) screening is needed in patients with Psoriasis (PsO)
Despite increasing awareness of the disease, rates of undiagnosed psoriatic arthritis (PsA) are high in patients with psoriasis (PsO). The validated Psoriasis Epidemiology Screening Tool (PEST) is a 5‐item questionnaire developed to help identify PsA at an early stage.
Read the rest Here Psoriasis and pregnancy (what do dermatologists think ) This French study looked at the dermatologist's position and the patient's preoccupations as to psoriasis and pregnancy.
While some information on psoriasis impact on pregnancy is available, very little is known on the preoccupations of women afflicted by the disease or on the dermatologists’ (D) positioning as to psoriasis and pregnancy. The “Objectifs Peau” project demonstrated a 4.7% prevalence of psoriasis in women aged 18‐45 years in France.
This project sought to further address these issues in view of a targeted action plan.
A questionnaire was made available to 361 D of different types.
.
Click Here to read the study Health literacy could help with psoriasis
This study looked at the Health literacy (HL) strengths and weaknesses in psoriasis patients.
The background of the study
Health literacy (HL), the ability to seek, understand and utilize health information, is important for good health. Suboptimal HL has been associated with poorer health outcomes in other chronic conditions, although this has not previously been studied in patients with psoriasis.
The aim of this study was to investigate the HL strengths and weaknesses of a cohort of patients with moderate to severe psoriasis. Another aim was to examine possible associations between patients’ quality of life, their demographic, clinical and self‐management characteristics and dimensions of HL.
Click Here to read the study Family history of psoriasis and psoriatic arthritis has impacts :
Psoriatic arthritis (PsA) has a genetic background. Approximately 40% of patients have a family history of psoriasis or PsA, which may affect disease features. The aim of this study was to assess the effects of family history of psoriasis and PsA on disease phenotypes.
The data from 1393 patients recruited in the longitudinal, multicenter Psoriatic Arthritis‐International Database (PsArt‐ID) were analyzed. The effects of family history of psoriasis and/or PsA on characteristics of psoriasis and PsA were investigated using logistic regression.
Read the rest Here Psoriasis and donating blood Fred wrote ...Do any of our members donate blood ?
I was talking with Mrs Fred about donating blood and the fact that we have never been able to donate blood in France. As far as I know we still can not donate because we lived in the UK between 1980 to 1996 and they wanted to remove the risk of Mad Cow. (No I'm not getting into the politics of it all)
I also said that I doubt I would be able to donate blood anyway as I have been on Bio's for around 12 years, I also don't think anyone taking Oral or Bio treatments for psoriasis can donate. But it got me thinking and I don't know if any of our members do donate blood.
Thoughts ?
Read more here or add a comment Fumaric acid and monitoring distinct T cells This study suggests the monitoring of distinct T cell subsets rather than just absolute lymphocyte counts may provide more meaningful insights into both the treatment safety and efficacy of Fumaric acid esters (FAEs) especially in psoriasis patients of middle to older age.
Quote:
Fumaric acid esters (FAEs) are used to treat psoriasis and are known to cause lymphopenia in roughly 60% of the patients. Much remains to be elucidated about the biological effects of FAEs on lymphocytes.
The Objective is
To evaluate the influence of long‐term FAE (Fumaderm®) treatment on peripheral blood CD4+ and CD8+ T cells, CD19+ B cells and CD56+ natural killer (NK) cells in psoriasis.
Read the rest Here
Want More
A lot of members only threads and journals have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
Fred's Music Column.
Blind Blues: Whilst listening to some old blues the other evening, I got thinking about the amount of Black artists with the name "Blind" there were out there. Blind Lemon Jefferson, Blind Willie McTell, Blind Willie Johnson, Blind Boy Fuller, and Blind Blake to name a few. On digging around a bit I was surprised to find there were a lot more blind blues artists than I first thought and a lot didn't use the name blind.
So why were there so many Black blind blues artists ? When you think about the answer is obvious. They came from very hard working and poorly paid families, and as they were unable to work in the fields they came up with the idea of entertaining the workers with their music in juke joints and barrelhouses.
But why did so many of them use "Blind" in their names? My guess is they didn't and it was the White record producers that decided to give them the name Blind something as it would get the sympathy vote and help sell records. So not only did the White Man make the Black people do hard manual work for next to no money, they even used them to make money from their talent.
You could argue that the White Man did help get the Black artists out there and we are lucky that they did. They probably also helped some of them make a decent bit of money, but I can't help wondering if a lot of them did indeed get what they were worth.
Quiz Time: The quicker you get it the more points you get. Who am I ?
For 5 points: Known for my singing I have also been in 43 films and 16 TV shows.
For 4 points: I actively support 14 charities.
For 3 points: I have been in two video games.
For 2 points: I was a Go-Go Dancer and a Playboy Bunny before starting my music career.
For 1 point: As lead singer in a New Wave band I soon became a Punk Icon.
Debbie Harry from Blondie. 5 points: Film work from 1975 - 2014 many genres. TV work included Muppet Show and Absolutely Fabulous.
4 Points: She got into philanthropy and her preferred charities include those devoted to fighting cancer and endometriosis.
3 Points: "Double Switch " an interactive movie video game and a voice over in "Grand Theft Auto: Vice City"
2 points: In the 60s she also worked a secretary for the BBC and a waitress at Max's Kansas City.
1 point: Did you know there was a "Blondie is a group" campaign in 1979 as most fans thought Debbie Harry was "Blondie"
Members recommendations: As it's Valentines I asked our members to give a recommendation on the theme of "Red"
wooleyb suggested: Roxanne by The Police Kat suggested: Red Solo Cup by Toby Keith Caroline suggested: Red by King Crimson Grizzly Bear suggested: Lady In Red by Chris de Burgh Raxyl suggested: I See Red by Split Enz JohnB suggested: Witch Queen of New Orleans by Redbone jiml suggested: Red Dirt Girl by Emmylou Harris Mrs Fred suggested: Red Song by Hey Rosetta D Foster suggested: Red Sails In The Sunset by Tab Hunter Fred suggested: Blue, Red, And Grey by The Who
Watch out for my monthly thread on the forum when I ask for your music recommendations.
Enjoy your music, and don't forget to tune in next month.
Recipe Spot
Lentil soup ...with variations
Well this recipe very nearly didn't make it. I upgraded my desktop just before Christmas with one of those whizzy solid state drives and very nice it was too. Cloned my HDD no problems but it was just dangling in the case because the only spare power outlet was by my DVD drive. So trawled ‘tinternet for a new power lead. IT came, looked ok, plugged it all in, fitted it into its slot all nice and comfy, switched the PC on and all the magiic smoke escaped from my whizzy new drive. AAAARRRRGGGH!!!
Anyways you are here for a recipe not my IT issues so here is this months effort;
Its a soup, quick, dead easy and nice and tasty.
Start by hacking up a stick of celery, a carrot and a medium onion into small cubes followed by a three or four rashers of smoked back bacon. Sorry you guys the other side of the pond you really must learn how to make decent bacon. I think the closest for you would be the Canadian style stuff or some decent lardons. That stuff that's really fatty and as thick flies wing you call bacon just wont do it. Oh and don’t use that cheap crappy stuff that sheds twice its body weight in water and you end up boiling the bacon in a bath of white frothy scum instead of frying it.
So in a decent sized saucepan, splosh in a good glug of a good oil, olive or rape is a good choice. Throw in all the veggies and the bacon and cook over a medium low heat until the onions are translucent and the carrots and celery are tender.
In the meanwhilst have a kettle full of water coming to the boil. When the stuff in the pan (the Italians have a name for this mix, but I have forgotten it) is done, half fill your pan with water and empty a pack of Red Lentils (normally 500kg) add a cup full of milk and top up the pan with water. Bring to nearly on the boil and simmer for about 40 minutes to an hour you will know when its ready, the lentils will have broken down. I don’t think you can overcook it, but be careful – it has a propensity to stick to the bottom of the pan and can burn so keep stirring it occasionally. Season with salt and ground white pepper. I tend to like my soups thick so this will be around the thickness of a good custard, but not as thick as a Dahl.
So for the variations;
Add a heap of Paprika to give it an unctuous smoky flavour when you put the water and lentils in.
If you like it on the spicy side a liberal sprinkling of Cayenne pepper does the job nicely.
And one I learned this week, throw a tin of chopped tomatoes in when you add the lentils. I have a feeling that this might just benefit from a bulb of freshly roasted garlic squeezing into it during the cooking.
Serve piping hot with a good crusty bread
Enjoy
Johnb
To read more recipes or to add your own
Click here
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Information
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In This Issue
The Ask Threads
Some of our members have an Ask Thread. These are threads where other members can ask the thread starter a question about themselves, it's a good way of getting to know some of our members and can also turn out some interesting traits.
Members can find the all the current Ask Threads HERE
Top Tips for newly diagnosed psoriasis sufferers
If you have recently been diagnosed with Psoriasis or even if you have sufferered for years, members have been posting things they feel may help you cope, you can follow the link below to see more tips that members have posted
Talk: Don't keep it to yourself. Share with your friends, family, colleagues and our members here.
Read: You have Psoriasis, so try to get some knowledge about your disease, it will make you a better partner for your dermatologist in order to find the best treatment for you.
To see the full list of top tips Or if you have one to share
Click Here
Sneaky peek
We have an active Off Topic Board and we thought we would share some sneaky peeks with our lurkers.
Grizzly bear asked if it was possible to add a wordsearch to the forum....so here's the first one and if it gets used I'm sure there will be more
.. Wordsearch Here Another popular thread is Change one why not come and have a go at this simple game of change one where you change one letter in the word in capitals to create another word....then you can fit it into a meaningless sentence and post it .... Change one thread here
Poetry section
Turnedlights poetry corner ..
The Centipede .....
The centipede he took up dancing
Tried ballroom, but got in a flap
With one hundred shoes
All his feet got confused
So decided his best dance was tap
Author Turnedlight
Sunflower Competition 2019
.. Back by popular demand it's getting near time to start thinking about entering for this years competition, same rules as other years ....there are no rules
Anything you grow and can show will be acceptable and like last year everyone that took part was a winner in one of the categories ,
Sunflower Competition Here .
THOUGHT OF THE DAY
If we do not feel grateful for what we already have
What makes us think we'd be happy with more
.
Each month I will add a tip or a link to assist you using the forum .
Using the portal
Have you ever looked at the Portal ? it's at the top of the page just under the club banner It's a great way of keeping track of the last 20 posts... look at the right hand column and the list is in the order of posting ... See the thread you want to read and click on "last post" It's a good way of seeing if you've missed something you are interested in ........See here
Should you get stuck or need help just ask a member of the forum team who are always pleased to offer assistance
Psoriasis Club is self funded, we don't rely on sponsorship or donations. We offer a safe
friendly forum and are proactive against spammers, trolls, and cyberbullying. Join us here!
No Advertising.
No Corprate Sponsors.
No Requests for Donations.
No Cyber-Bullying.
No Scams or Cures.
No Recruitment Posts.
No promotions or offers.
No Trolls.
No Spam.
Just a small bunch of friendly people with psoriasis sharing information and support.
Psoriasis Cure!
Stop Press
Kristie Wright returned to tell us about some skin camouflage Hi All
Dermablend is ok, it is formulated for people with skin conditions so doesn't aggravate. However, they have limited tones and even their lightest makes me look like I have really badly applied a fake tan. There is a company called Keromask who have a range of tones and mixers that you can buy to get a perfect tone match with your skin, it applies well, lasts a long time and gives great coverage. I wore it at a friends wedding in the summer as I didn't want to have to cover my arms and it camoflaged my psoriasis patches really well
Read more HERE
Blind Blues: Whilst listening to some old blues the other evening, I got thinking about the amount of Black artists with the name "Blind" there were out there. Blind Lemon Jefferson, Blind Willie McTell, Blind Willie Johnson, Blind Boy Fuller, and Blind Blake to name a few. On digging around a bit I was surprised to find there were a lot more blind blues artists than I first thought and a lot didn't use the name blind.
..
