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Wow I can't believe it's September already, where has this year gone, I hope you are keeping well and the psoriasis isn't getting you down too much .... If it is why not come in and have a chat in the chatting thread Here
...There have been a lot of new members and posts. ...There is a timely warning about a misdiagnosis which should be read if you are using topical treatment...... I hope you enjoy reading this months newsletter and will log in a a read a few of the posts If you haven't logged-in for a while please do pop in and tell us how you are doing, or come and meet some of our new members. Or read some of the studies that have been posted. I'll look forward to seeing you ...
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Note: Subscribed members get an early view of the newsletter.
Members Treatments, Questions and comments . click on the links and see if you can help.
Yvonne4021 writes of this misdiagnosis and is a warning for us all I have had Psoriasis for 17 years ..scalp, toenails, knees etc and then about a month ago I noticed red patches on both sides of my mouth that went up to the edges of my nose. It was itchy, burning and very painful. It felt as though I had food caked onto my face.
I seen my GP straight away who confirmed my worst fear. The P had began on my face. She prescribed a betamethasone cream which helped at first but then got worse WAY worse.Read More Here Moonscribe asks about acetretin and tattooing .....I've had PPP for about five years and about six months ago it became pretty much unbearable, so I caved in and told my dermatologist I'm ready to try the oral meds. Three months ago I started on Neotigason/Acitretin .......Read more
Here Cory wrote .....No I'm not Amish . ......Ahhh... What an wonderful HOT smoldering fine summers day!!....where's my long sleeve??.... Read more Turnedlight wrote ....Not sure if this is a natural product or to become prescribed - I've just come across articles on something called endolysins see more here na1299 wrote Started a thread about her experience with aloe vera and argon oil Read more here
tarny79writes about her Acetretin/PUVA experience ....I was diagnosed with psoriasis 10 years ago, before that I struggled on and off with eczema since I was a child Read more here
New Introductions.
Please look at these introductions and come and welcome the new members that have taken the trouble to write an introduction. Hedgehog wrote ........ I only joined to ask one question but since adolescence i had really bad dandruff, but after a few years, lesions appeared on my private areas, which made me go to the doctor, leading to my diagnosis of inverse psoriasis. this was about 10 years ago. these days i get lesions on my back and stomach too, and recently my arms and legs have joined in on the fun..... Click here to read more Cory wrote .... Thank you Fred! I apologise for coming into this site like a bull in a China cabinet, but I have literally never navigated the internet. I'm calm now. ? Thanks for the help! Now that I'm here, I'm excited for the opportunity to talk to others with my condition. Right now I'm going to take it slow and figure out this " interweb"..........Read more here Tedbakergirl wrote ........I'm a 43 year old woman who has suffered on and off all my life. Over the last couple of years my scalp has got so much worse. I've tried every shampoo and lotion there is and nothing helps.
Read More Here aecrawford1 wrote ...... Hello everyone.......I've had plaque/scalp psoriasis since I was 17 (Now 30). I have been anywhere on the scale from mild to moderate to severe. Tried tons of medications, from topicals to injections to pills....... Read More Crowfriend wrote....Hi ....I've had psoriasis since my late 20s, in my mid 50s now. I also have other autoimmune conditions like interstitial cystitis and what I thought was Hashimotos thyroidosis, but that just got challenged by a new ND who said she thought it wasn't, that I had hypothroidism for sure but not Hashis.Read More Here Yvonne4021 wroteI found my first patch back in 2000 it was small just at my hairline on top of my forehead. I was 33 then. I didn't give it much thought chalked it up to the hair colour I had just applied Read more JDS Pipin wrote Hi all - I just wanted to introduce myself and share my story in a succinct manner.
- Diagnosed with psoriasis in 1988 after a bout of pneumonia.Read more here Lou84 wrote ....I'm new here I found the club by searching for something about psoriasis on google...I started getting scalp psoriasis in 2011 ...... Read more here
This Months Stats.
26 New Members | 61 New Threads | 2735 New Posts | 5 Newsletter subscriptions
Dovonex available in the U.K. without prescription....
Today the Medicines and Healthcare products Regulatory Agency (MHRA) announced the approval of Dovonex Psoriasis 50microgram/g Ointment which will be available through pharmacies without prescription.
Read More Here Methotrexate drug survival rates is low in psoriasis patients This study looked at the drug survival rate of methotrexate in psoriasis patients and suggests only 15% stay on it past 5 years.
......... Read More Here Psoriasis and Fatigue
This study suggest almost 50% of psoriasis patients suffer with substantial fatigue ......
Read more here
Threads for helping and chatting
This thread is for anyone who is feeling depressed It doesn't have to be psoriasis related depression , although often psoriasis is a factor. On this thread you can unload your concerns, and will always get a sympathetic ear...or it can just be used to contact a member who has said they will listen Read More Here
The Chatting thread was started as a place that any member can go and talk about anything, whether it's a concern or if you are lost in the forum it's always easy to find and post in any subject
we encourage new members to come and break the ice here if they are not sure how to start
To start a conversation........
A lot of members only threads have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
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Information
Please remember no posts and no log-in for 12 months, your account will be deleted. For more information about this policy See Here!
Want to be a columnist?
Would you like to have a column in the newsletter?
If you have an idea for a column in the newsletter and you could come up with something each month or just a one off contribution ....it can be about anything, it doesn't have to be Psoriasis based ....it could be a favourite recipe....or tell us about a concert or show you have seen, or a happy occasion you would like to share with us.....you choose the topic and we will consider it for publication ...please let me know if you are interested via PM or
Post Here
Members photos.
Content has been removed by request
Sneaky peak
We have an active Off Topic Board and we thought we would share some sneaky peaks with our lurkers.
What's your favourite conspiracy theory ? .
Not psoriasis related but has been aimed at some psoriasis sufferers... The FDA took decisive action to prevent the use of potentially dangerous treatment
There is a selection of psoriasisclub photos you can use in your posts if you wish ....
Log in for some popcorn and come to the cinema
See more of them Click Here
Then just enter the code in your post to use them
Hints and tips
Each month I will add a tip or a helpful link to assist with your posts
Using the portal
Have you ever looked at the Portal ? it's at the top of the page just under the club banner It's a great way of keeping track of the last 20 posts... look at the right hand column and the list is in the order of posting ... See the thread you want to read and click on "last post" It's a good way of seeing if you've missed something you are interested in ........See here
Should you get stuck ask a member of the forum team who are always pleased to offer assistance
The sunflower competition is still going strong, and a lot of members have posted pictures of their plants, and they are looking good, come and see The latest shots
When I overheard one of my cashiers tell a customer, "We haven’t had it for a while, and I doubt we’ll be getting it soon," I quickly assured the customer that we would have whatever it was she wanted by next week. After she left, I read the cashier the riot act.
"Never tell the customer that we’re out of anything. Tell them we’ll have it next week," I instructed her. "Now, what did she want?"
Coming from New York and winning lots of awards you will find a mix of rhythm and blues, rock n’ roll and rockabilly.
A new band formed in 2012 and building up a big fan base, their new album "Love You To Live" was released this month and is getting noticed. You will find some great guitar playing along with some powerful vocals, there are some moments I felt it was heading a little Country then I was drifting into Jazz.
The title track will get your toes tapping and "Til the Well Runs Dry" will get you wanting to dance around the kitchen whilst making breakfast.
