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Psoriasis Club is a friendly on-line Forum where people with psoriasis or psoriatic arthritis
can get together and share information, get the latest news, or just chill out with others who understand. It is totally
self funded and we don't rely on drug manufacturers or donations. We are proactive against Spammers,
Trolls, And Cyberbulying and offer a safe friendly atmosphere for our members.
So Who Joins Psoriasis Club?
We have members who have had psoriasis for years and some that are newly diagnosed. Family and friends of those with psoriasis
are also made welcome. You will find some using prescribed treatments and some using the natural approach. There are people who
join but keep a low profile, there are people who just like to help others, and there are some who just like
to escape in the Off Topic Section.
Joining Couldn't Be Easier: If you are a genuine person who would like to meet others who understand,
just hit the Register button and follow the instructions.
Members get more boards and privileges that are not available to guests.
OK So What Is Psoriasis?
Psoriasis is a chronic, autoimmune disease that appears on the skin. It
occurs when the immune system sends out faulty signals that speed up the
growth cycle of skin cells. Psoriasis is not contagious. It commonly
causes red, scaly patches to appear on the skin, although some patients
have no dermatological symptoms. The scaly patches commonly caused by
psoriasis, called psoriatic plaques, are areas of inflammation and
excessive skin production. Skin rapidly accumulates at these sites which
gives it a silvery-white appearance. Plaques frequently occur on the
skin of the elbows and knees, but can affect any area including the
scalp, palms of hands and soles of feet, and genitals. In contrast to
eczema, psoriasis is more likely to be found on the outer side of the
joint.
The disorder is a chronic recurring condition that varies in severity
from minor localized patches to complete body coverage. Fingernails and
toenails are frequently affected (psoriatic nail dystrophy) and can be
seen as an isolated symptom. Psoriasis can also cause inflammation of
the joints, which is known as (psoriatic arthritis). Ten to fifteen
percent of people with psoriasis have psoriatic arthritis.
The cause of psoriasis is not fully understood, but it is believed to
have a genetic component and local psoriatic changes can be triggered by
an injury to the skin known as Koebner phenomenon. Various
environmental factors have been suggested as aggravating to psoriasis
including stress, withdrawal of systemic corticosteroid, excessive
alcohol consumption, and smoking but few have shown statistical
significance. There are many treatments available, but because of its
chronic recurrent nature psoriasis is a challenge to treat. You can find more information
Here!
Got It, So What's The Cure?
Wait Let me stop you there! I'm sorry but there is no cure. There are things that can help you
cope with it but for a cure, you will not find one.
You will always be looking for one, and that is part of the problem with psoriasis There are people who know you will be
desperate to find a cure, and they will tell you exactly what you want to hear in order to get your money. If there is a
cure then a genuine person who has ever suffered with psoriasis would give you the information for free. Most so called cures
are nothing more than a diet and lifestyle change or a very expensive moisturiser. Check out the threads in
Natural Treatments first and save your money.
Great so now what? It's not all bad news, come and join others at Psoriasis Club and talk about it. The best help is from accepting it and talking
with others who understand what you're going through. ask questions read through the threads on here and start claiming
your life back. You should also get yourself an appointment with a dermatologist who will help you find something that can
help you cope with it. What works for some may not work for others
I thought perhaps the wisdom of real people might help me out.
1. I HAVE always had very sensitive skin - I'm pale and as a kid I got rashes, etc whenever I touched a new plant or critter or used a new product.
2. I had adult acne problems until I went minimalist a couple of years ago ... pretty much any chemical products mess with my skin.
3. I was using a plain homemade coconut oil lotion at night and African black soap-based lotion in the day with pretty good results ...
4. About 2 months ago my routine changed a bit and I started using a (Badger Balm - Damascus Rose Antioxidant Face Oil) as well as a sugar scrub (Tree Hut, coconut lime) on my face; I also shortly used a homemade tallow-based moisturizer from a family member on my face at night (I've stopped now). I clean with facial pads Desert Essence (Desert Essence Natural Tea Tree Oil Facial Cleansing Pads)
5. About two weeks ago I got a BAD scaly and flaky red skin outbreak all over my face to the sides of my mouth ...
I started using a thick pure Bella Terra vitamin E oil on my face at night hoping that would help me heal. It seems to be just as bad today as when it showed up and I can't figure out what is setting it off. I guess I can (and will have to) discontinue all my facial products sand try to re introduce one at a time but I was wondering if anything sent up a red flag with others with this problem.
Anyway, as a total newbie I would love any advice or wisdom anyone might have to share. I try to use clean and natural products and stay as low on chemical saturation as possible ... I don't know what I've done wrong.
Posted by: AngelaT - Thu-18-05-2017, 08:01 AM
- Replies (15)
I am new here (obviously) and I am needing to talk to others who have psoriasis and can commiserate. I cannot say that this has ruined my life, but knowing how unsightly the flares are has put me under stress that I could easily live without. How do you keep your relationships together? How do you go out when you flare? What symptoms do you have with yours- I have fatigue and joint pain- doc says joint pain is pretty normal- and a pretty mild case, from what I have been told. "Only" had it for 5 years. Feels like forever.
Thanks for all of you who take the time to read this, and even more to those who reply.
hi im martin, had psoriasis 27 years, chronic over 90% covered head to toe. also psoriatic arthritis 20 years, neck back knees etc.after 17 years of no treatment whatsoever, i decided to go dermatology, after one of my customers, psoriasis sufferer also who is now completely free of psoriasis. told me she was on cosentyx i had an appointment 1 week ago,, iv tried all the treatments in the past, and nothing works, puva baths light treatment etc etc, greased up to the eye balls daily. any how my appointment i told the doctor i want to be put on cosentyx at that point doctor said its only for severe sufferers and not everyone gets to go on it, at that point i stripped off n said severe enough??? errrr yeah its pretty severe doctor said, BUT, we have to try other treatments b4 i put you on biological treatments , soshe gave me a prescriptionas long as your arm with creams and lotions,, ones iv tried b4 i mite add. and not worked. sorry about long message. but how long will it take for me to be put on cosentyx???? any replys welcome
Hi everyone, I am new to the boards but not new to psoriasis! I had it as a young child, went into remission, had outbreaks here and there, after giving birth, etc. and now I just had a strep throat and figured "uh oh" because last time I had it I got guttate psoriasis added to the plaque psoriasis I have already.....bummer
To let you know how long I had psoriasis on and off, Im now a senior citizen!
I have three kids, and none of them have it Thank G-d, and eight grandkids, and hopefully they wont get it either ...
but this outbreak makes me so upset.
what do any of you do for a strep outbreak?
do you go to tanning beds? I have been going there.
Had psoriasis for approx. 8 years, Knees, stomach, elbows, toe and finger nails. Tried a good few creams - Dovobet, Lotroderm, Trimovate etc. and received the "There is no cure" from the dermatology clinic.
I really like the look of this site, more down to earth and informal.
On week 3 and pleased with results so far. Can anyone share longer term experiences of skin improvement / failure assuming all the side effects are tolerated?
Hi lads, completely new to this so bare with me when I ask basic questions Im 20 and have had psoriasis for nearly 4 years, just started Fumaderm after many other methods such as light treatment and Otezla. I have been on it for 7 weeks now and my dose is 360mg a day until Saturday in which my dose will be 480mg a day. I have seen no change in my skin and am getting a lot of the side effects which are making re-think staying on the tablet. Is there a reason that it is not working yet or is it just standard?
All the best,
Michael
Posted by: Fred - Tue-09-05-2017, 16:43 PM
- No Replies
This study looked at adverse events associated with discontinuation of systemic treatments in psoriasis patients.
Quote:Background:
Little is known about the adverse events (AEs) that lead to suspension of systemic treatments of psoriasis in clinical practice.
Objective:
The study aimed to investigate to AEs associated with discontinuation of systemic therapy in patients with psoriasis in a clinical setting (Biobadaderm).
Materials and methods:
Multicenter, prospective, cohort study of patients with moderate-to-severe plaque psoriasis receiving systemic therapies from January 2008 to November 2015, in 12 hospitals in Spain. The incidence rate (IR) was used to compare biologics and classic systemic therapies.
Results:
A total of 4218 courses of treatment were used in 1938 patients. A total of 447 (11%) treatments were discontinued due to AEs. The IR of AE associated with discontinuation of systemic therapies was 13 events/100 patient-years (PY) (95%CI:12.14-13.93), 9.34 events/100PY (95% CI:8.44-10.33) for biologics and 19.67 (95%CI:17.9-21.6) events/100PY for classics (p< 0.001). Of 810 discontinuation-related AEs, 117 (14%) were serious. The highest IRs were for cyclosporine [49.18/100PY (95%CI:41.91-57.72)] and infliximab [26.52/100PY (95%CI:20.98-33.51). Ustekinumab presented the lowest IR (2.6/100PY (95%CI:1.83-3.69).
Limitations:
Observational study with potential selection bias.
Conclusion:
Biologic therapies are associated with a lower rate of discontinuation-related AEs than are classic therapies in real clinical practice. Ustekinumab showed the lowest incidence.
just thought I would join up to see how many people are going through the same PsA as me. I have been told back in 2007 that this is what I have. I had been on humira for 6 years which was great for me but sadly it stopped working for me so now I am to start cosentyx. Anybody tried this drug?
Posted by: Lisa - Fri-05-05-2017, 23:43 PM
- Replies (11)
Hi, I'm Lisa and I have been newly diagnosed with sebopsoriasis, although I have been dealing with these symptoms on my face for about a year. I'm married, have three grown children and work full time. I've browsed this site since yesterday and I am very pleased to be accepted as a member.
Posted by: CC66 - Fri-05-05-2017, 10:32 AM
- Replies (4)
After my last trip to the rheumy, i've been swapped from Sulfasalazine to leflunomide.
fingers crossed it is more successful
i am also being scheduled in for a shot to my thumb, have others had much success with steroid injections? my thumb is pretty much useless now and i'm hoping the shot will let me at least be able to move it
Posted by: Lisa - Fri-05-05-2017, 04:02 AM
- Replies (10)
Hi, I have been suffering with a painful itchy rash on my eyelids, corners of my eyes, and my upper cheekbones for about a year. I have tried eliminating skin care products, detergents, moisturizers, almost everything over the last year and nothing seems to help. I even modified my diet, but that does not seem to matter either. The only way I can keep it under control is to use an OTC steroid cream. I use it around my eyes about 4-5 nights a week. I do not like using steroids on my face, but I feel it is the only thing that keeps it at bay. I have been to two dermatologists and an allergist. I had the "thin layer rapid use epicutaneous patch test" back patch test and all 36 items were negative. They have called it sebopsoriasis, so now I am learning about this problem. My sister has had similar problems for about 40 years and she only uses OTC Cetaphil. I started using this recently and it helps somewhat, but not entirely. Any suggestions would be appreciated.
Posted by: Fred - Wed-03-05-2017, 16:18 PM
- Replies (2)
This study looked at the risk of Schizophrenia patients getting Psoriasis.
Quote:Background:
Schizophrenia is a complex disease proceeds from an interaction between genetic background and environmental factors. Recent studies showed T helper 17 (Th17) signaling, which is the main downstream immune response of psoriasis, is activated in schizophrenia.
Objective:
To investigate if patients with schizophrenia have higher risk of psoriasis.
Methods:
In this nationwide retrospective cohort study, we analyzed the 1-million-enroll cohort from Taiwan's National Health Insurance Research Database. Psoriasis and schizophrenia were ascertained by International Classification of Diseases, 9th revision, Clinical Modification coding. The study cohort was comprised of enrollees diagnosed with schizophrenia during the period from January 1, 1996 through December 31, 2010, while the comparison population consisted of enrollees who had not been diagnosed with schizophrenia during the study period. Hazard ratio (HR) and 95% confidence interval (CI) were calculated for the risk of psoriasis associated with schizophrenia using Cox proportional hazards regression.
Results:
The adjusted HR of psoriasis associated with schizophrenia was 2.32(95% CI = 1.81-2.98). After 15 years, the cumulative incidence of psoriasis in patients with schizophrenia and comparison population was 2.82% and 1.17%, respectively. The Kaplan-Meier curves for the cumulative incidence of psoriasis in individuals with and without schizophrenia differed significantly(P<0.0001, log-rank test).
Conclusions:
Patients with schizophrenia have higher risk of psoriasis, which may be due to common genetic susceptibilities and/or immunologic mechanisms in both diseases. Th17 signaling and pro-inflammatory cytokines may act as a link between these two diseases and are potential therapeutic targets for schizophrenia.
Posted by: Hitech70 - Wed-03-05-2017, 05:09 AM
- Replies (5)
I just developed Sebopsoriasis for the first time ever in the last 40 yrs i have never had to deal with it but typical plaque psoriasis on elbows and knees. Has anyone else had a major flare up this year?
Hello,my name is terina. I have had psoriosis since I was 18. I just started stelara after my humira didt work. I thought I was the only person going through this wierd type of hell. But I stumble upon this and I find it so helpful and great. I will learn how to do everything properly. Enough rambling. I really just wanted to touch base on myself. And thank everyone in advance.
Posted by: Klbuer - Mon-01-05-2017, 02:11 AM
- Replies (8)
But unfortunately not new to psoriasis. My name is Kathryn.
I got my first spot at 23 and had only the one until my early 30's. Then the system went nuts. I have all five types of psoriasis including the arthritis.
At 35 my doctor told me I would be in a wheelchair within two years unless something changed. From then on my life has been a constant round of any and all medicines and almost constant fights with a variety of insurance companies who fight to keep me off the very expensive medicines that need. I never got that chair and I am determined not to!
I found this forum while researching Taltz vs Cosentyx. The dermatologist has decided to change me off Embrel and feels that Cosentyx is the best option but the insurance company is fighting for the cheaper option. I didn't much care until I did the research and found that Taltz is not recommended for arthritis at all.
Now I would love to have cleared skin but I have taken everything under the sun from the early years of methotrexate and gold injections to more than 15 years of Embrel, Stelara and Humira. If I have to choose skin vs joints - no contest!
Would love to hear what works best for other people with the arthritis.....
Posted by: madpaddy - Sun-30-04-2017, 04:07 AM
- Replies (13)
Hi
Before i begin i have to say its a credit to the creator and administrators of such sites. People who honestly give up their time and money just so the internet and world can become a much more open and sharing space.. Well done.
Ok.
I live in Australia and i have been on Cosentyx since feb. Its the first bilogical i have used and from reading other posts i am very grateful for the health system we have over here... Seeing a dermo took about 1 week and getting on the biological took about a year. But we did try the less expensive and ones first.
Cosentyx is amazing.. i feel like a new person... especially when my kids say how happy they are i can now take them swimming.
Anyway... just want to get in touch with someone who is on cosentyx and a few issues which may or may be caused by it.
Keep getting eye infections. Have been using antiboitc drops which work but obviously cant use them for ever.
Also for all us pale skin people out there have you noticed that parts that are not exposed to the sun are taking longer to go away.
Seen the specialist on Thursday and my scrore went from 18.5/20 to 2.7/20.... buns and guns will be out for summer... so if you hear screaming, thats just people running away.
I have joined this forum for my father, Jim, who has Plaque Psoriasis.
My father is 60 years old and he had the first flare in about 2007 and it all started for there. It started from a little spot underneath his knee cap and then just started to spread all over his body until his upper back within a year and at that point my father consulted a doctor - this is when we found out that this is called Psoriasis. The doctor had given my father some steroid type of medication and it all went away for 3-4 months but then it came back twice as much when he was taken off the medication.
In mid 2008, we consulted a homeopathic doctor and with his medication it almost cleared up almost the entire body with a few spots on the body until recently in mid 2016. During his homeopathic treatment we also had various other treatments which are still ongoing to relieve everyday pain:
Olive Oil as a moisturizer
Vaseline as a moisturizer
Turmeric in a glass of warm water - I read somewhere this has worked for people with psoriasis so we started this.
For the last 8 months or so it started to come back and has gotten worse to the point where his entire body until his ears has been effected. We recently consulted a dermatologist and he has put him on Humira and Triamcinolone Acetonide Ointment, 0.1% starting February 23, 2017. At first the doctor gave him 2 shots in the first visit, 1 more shot the following week, 1 shot 15 days following that, 1 shot 15 days following that, and now has recommended a shot every week due the recent flare up.
I would appreciate any information on what else we could be done or anything that has worked for any member on this forum. I will post pictures of his current status when i get home later this evening or tomorrow morning.
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Psoriasis Cure!
How many people have Psoriasis?
In 2012 there were approximately 36.5 million prevalent cases of psoriasis, and by 2022, GlobalData epidemiologists forecast that this figure will reach approximately 40.93 million.
The condition affects individuals of both sexes and all ethnicities and ages, although there is a higher prevalence of psoriasis in the colder, northern regions of the world.
The prevalence of psoriasis in the central region of Italy is 2.8 times greater than the prevalence in southern Italy.
Caucasians have a higher prevalence of psoriasis compared with African-Americans, but African-Americans in the US tend to suffer from a more severe form of the disease.