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Psoriasis Club is a friendly on-line Forum where people with psoriasis or psoriatic arthritis
can get together and share information, get the latest news, or just chill out with others who understand. It is totally
self funded and we don't rely on drug manufacturers or donations. We are proactive against Spammers,
Trolls, And Cyberbulying and offer a safe friendly atmosphere for our members.
So Who Joins Psoriasis Club?
We have members who have had psoriasis for years and some that are newly diagnosed. Family and friends of those with psoriasis
are also made welcome. You will find some using prescribed treatments and some using the natural approach. There are people who
join but keep a low profile, there are people who just like to help others, and there are some who just like
to escape in the Off Topic Section.
Joining Couldn't Be Easier: If you are a genuine person who would like to meet others who understand,
just hit the Register button and follow the instructions.
Members get more boards and privileges that are not available to guests.
OK So What Is Psoriasis?
Psoriasis is a chronic, autoimmune disease that appears on the skin. It
occurs when the immune system sends out faulty signals that speed up the
growth cycle of skin cells. Psoriasis is not contagious. It commonly
causes red, scaly patches to appear on the skin, although some patients
have no dermatological symptoms. The scaly patches commonly caused by
psoriasis, called psoriatic plaques, are areas of inflammation and
excessive skin production. Skin rapidly accumulates at these sites which
gives it a silvery-white appearance. Plaques frequently occur on the
skin of the elbows and knees, but can affect any area including the
scalp, palms of hands and soles of feet, and genitals. In contrast to
eczema, psoriasis is more likely to be found on the outer side of the
joint.
The disorder is a chronic recurring condition that varies in severity
from minor localized patches to complete body coverage. Fingernails and
toenails are frequently affected (psoriatic nail dystrophy) and can be
seen as an isolated symptom. Psoriasis can also cause inflammation of
the joints, which is known as (psoriatic arthritis). Ten to fifteen
percent of people with psoriasis have psoriatic arthritis.
The cause of psoriasis is not fully understood, but it is believed to
have a genetic component and local psoriatic changes can be triggered by
an injury to the skin known as Koebner phenomenon. Various
environmental factors have been suggested as aggravating to psoriasis
including stress, withdrawal of systemic corticosteroid, excessive
alcohol consumption, and smoking but few have shown statistical
significance. There are many treatments available, but because of its
chronic recurrent nature psoriasis is a challenge to treat. You can find more information
Here!
Got It, So What's The Cure?
Wait Let me stop you there! I'm sorry but there is no cure. There are things that can help you
cope with it but for a cure, you will not find one.
You will always be looking for one, and that is part of the problem with psoriasis There are people who know you will be
desperate to find a cure, and they will tell you exactly what you want to hear in order to get your money. If there is a
cure then a genuine person who has ever suffered with psoriasis would give you the information for free. Most so called cures
are nothing more than a diet and lifestyle change or a very expensive moisturiser. Check out the threads in
Natural Treatments first and save your money.
Great so now what? It's not all bad news, come and join others at Psoriasis Club and talk about it. The best help is from accepting it and talking
with others who understand what you're going through. ask questions read through the threads on here and start claiming
your life back. You should also get yourself an appointment with a dermatologist who will help you find something that can
help you cope with it. What works for some may not work for others
Posted by: Fred - Thu-08-09-2011, 23:48 PM
- Replies (12)
I made the Psoriasis Score page to help me keep track of how my treatment is helping my psoriasis. Please note it is not the pasi score used by dermatologists but it will help you keep track of how you are doing. It can be used by Members and Guests. you can find it on the menu bar above.
Answer the questions on coverage and severity, ranking them from 0 - 4
0 = None / 1 = Low / 2 = Medium / 3 = High
After you answer all the questions push the score button, a window will pop up with you score. (if you get a score NaN it's because you missed a box, you need to tick all the box's)
It's private and no record is kept, so keep a note of your score to compare with your next visit.
Members can put scores in their profiles by clicking "User CP" / "Edit profile" / "Additional Information"
You can also post your score on this thread if you want and share how well you are doing.
Posted by: Fred - Thu-08-09-2011, 23:29 PM
- Replies (6)
Hello everyone some of you will know me to those that don't I have had psoriasis for well over 30 years now and psoriatic arthritis for about 25.
I can still remember the first signs, it was a small chunk on my head that just wouldn't go away. stupid doctor told me to try "Head & Shoulders" (Idiot). anyway eventually I got to see a dermatologist and off I went on a journey of Creams, Tar, & Light Therapy. It helped for a while but I soon found out there is no cure. Over the years I have tried most prescribed and some unusual home remedies. and I did manage to live with it apart from a few bouts of depression which I managed to sort myself out with.
Then about 5 years ago the psoriatic arthritis came back with a vengeance. It hit me hard, I couldn't move or even hold a cup to my mouth. reluctantly I went to the doctor who in turn got me straight in to see a dermatologist. I was pleasantly surprised on how things had moved on in treatments and was lucky enough to now be living in France which has an excellent health service.
I was given Remicade and my life totally changed my skin cleared and I could move again. just as I thought all was going well I had a reaction and moved on to Humira. again another reaction, moved on to Enbrel. the Enbrel was the best and it lasted about a year before psoriasis started coming back.
last year I went onto Stelara and so far so good my skin is about 95% clear with only a few niggly bits that just wont go and my arthritis is manageable. I do keep a blog and will be posting more on the forum on my treatment as I go along.
Well that's a bit about my life with psoriasis. as for me as a person in general you will have to join the forum to find out more, but be warned I can't stand bullies or spammers.
I'm just a genuine guy trying to help others with psoriasis and to those that think otherwise.
Posted by: Fred - Thu-08-09-2011, 22:19 PM
- Replies (1)
To be able to post on the forum and have access to all the other boards and privileges you need to register as a member, the reason we ask you to register is to protect the forum and our members from spam or misleading information.
#1 Click "Register" in the green bar at the top of home page / Scroll down read the statement and click "I Agree"
#2 You will now see 2 columns.
The left hand side has: Choose a Username / Password / Confirm Password / Email / Confirm Email / Choose Male or Female / Location / How did you find Psoriasis Club / Enter verification code / Enter security question.
The right hand side allows you to choose some preferences at registration but you can change these after registration.
#3 Click Submit Registration!.
#4 You will be sent an Email to verify your account. click the link in the Email. you should now be logged in.
We recommend you click "Control Panel" in the green bar at the top of home page and choose you options for your profile.
Please note we do use stopforumspam.com Genuine people shouldn't have any problems, but if you do please use "Contact Us" at the bottom left of the home page.
Posted by: Fred - Thu-08-09-2011, 21:55 PM
- No Replies
Welcome to the Psoriasis Club Forum. We started in 2010 with a free hosted forum and now we are pleased to launch our own hosted forum.
The idea of the forum is to give people who have or know someone with psoriasis a place to share information. We pride ourselves on running a friendly forum and we act quickly on spam/bullying/etc to protect our members.
Please come and join us and be part of a friendly community with others who understand what it's like to live with psoriasis. Maybe you can help a fellow sufferer? Or just want some answers from people who have lived with psoriasis. We are all in it together and sharing can help us all.
Never be alone with Psoriasis, hit the register button above and come and say hello. See what others think: Members quotes
I'll close this thread as it was causing confusion. We encourage new members to post an intro as it will help you settle in see here: Beginners guide to posting your introduction
You have to register before you can post on our site.
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Psoriasis Cure!
How many people have Psoriasis?
In 2012 there were approximately 36.5 million prevalent cases of psoriasis, and by 2022, GlobalData epidemiologists forecast that this figure will reach approximately 40.93 million.
The condition affects individuals of both sexes and all ethnicities and ages, although there is a higher prevalence of psoriasis in the colder, northern regions of the world.
The prevalence of psoriasis in the central region of Italy is 2.8 times greater than the prevalence in southern Italy.
Caucasians have a higher prevalence of psoriasis compared with African-Americans, but African-Americans in the US tend to suffer from a more severe form of the disease.