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+--- Thread: [split] Fumaderm (/thread-5240.html)
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[split] Fumaderm - Isabelle - Thu-29-09-2011
It is also not a fast-acting treatment, so if you're looking for a quick fix, this isn't it.
But I do think it's safer than almost any other treatment out there - and Germany has been using this therapy for over 20 years.
My own dermatologist has had 3 patients who were prescribed Fumaderm for a period of 3-4 years, whose psoriasis symptoms did not return once they ended treatment.. at least this is what he told me.. whether it's true or not I cannot say.. but he is a very good doctor and treats me with the utmost care, so I would have a hard time calling him a liar.
Having been treated with Fumaderm now for 3 months, I can see a slow but steady improvement in my condition. When I started on the old forum, my Psoriasis Score was 37.
Today it is 23.
In the next few months, I aiming for 0.
Edit by Fred: This is a split thread from: Fumaderm
RE: Fumaderm - Fred - Sat-01-10-2011
Thanks for sharing. I shall be watching this thread with interest and hope to see you reach Zero!
Keep us updated.
RE: Fumaderm - snookams - Wed-12-10-2011
FUMADERM
Hiya is there any1 on Fumaderm?? I started this drug in August and had the odd flush and tummy cramp/upset 2 or 3 times a week which i could handle and was advised it would ease off the longer i was on it............ I started the highest dose on Monday (6 blue per day) OMG The cramps in my stomach are worse than havin a baby, the flushes are soo bad im in a freezing cold shower 2 or 3 times a day and anything i eat is just running thru me Ive been on cyclo & mtx never had any side effects and my skin was clear within 7weeks only downside to them are the day u stop taking them it cums back with a vengence so this is why my Consultant recommended Fumaderm as its long term but im thinking of giving up as the side effects are so bad and my skin has only got better slightly. Please tell me if any1 is suffering the same symptoms.
RE: Fumaderm - Paul - Wed-23-11-2011
Hi Snookams
I'm a 35y old from Ireland and have had P for 30yrs, I've been moved onto systemic drugs as I can no longer use UV treatment as I've used it too much over the years and my Doc has said that I can't go back to it ever again, so I'm afraid I'm stuck with the tablets. I was taking Methotrexate for 1y and was completely free of P for the first time years. The Metho was messing around with my liver a bit so I had to come off it and onto Fumaderm. Within 3 weeks of stopping the Methotrexate I was covered in P again, unreal!
I started taking Fumaderm 6 weeks ago and I'm currently taking 5 tables a day since the start of week 6. I had very little side effect up to now. I think I got 3 stomach cramps in 5 weeks, that's it!! Oh boy am I getting them now, it just took me two hours to eat my dinner as the cramps were so bad.
I woke up last night at 4am and had to run to the toilet! I get hot flushes also which make me look a bit mental! My stomach is constantly groaning as if I'm starving and more air is coming out of my behind than I'd like. I find taking an over the counter pill for an upset stomach does the trick though so far, might be worth looking into getting some. I also starting drinking low fat milk every morning and during the day. I'm not going to stop taking Fumaderm and will let you know how it's going next week.
Keep the chin up.
RE: Fumaderm - Caroline - Fri-25-11-2011
Oww....
Can't help it, so must react to Paul and Snookams (what a name)..
I am not on Fumaderm but on an alternative called Psorinovo.
Psorinovo is also Dimethylfumarate see here Dimethylfumarates and Psoriasis, but then unlike Fumaderm without additives. Would make it even worse for your stomach and intestines if.... it was not enteric coated and slow release, but it is....
Which means that it will not be released in the stomach and is slowly released in the intestines. The effect of this is that:
1) almost no cramps, less diarrhea
2) limited flushes, I have them by day about once a week (20 minutes) and sometimes at night
3) higher doses than 6x120mg are possible
Psorinovo is also, like fumaderm I guess, based on the research of dr schweckendieck, but improved by dr L. Kunst into the current form.
Currently a scientific investigation is started in the large medical centers in holland, initiated by the patients community already using Psorinovo, in order to place it better on the map as a very well working treatment to beat psoriasis.
RE: Fumaderm - JustSuzy - Wed-30-11-2011
Thanks to everyone for the info.Never ever hear of it in 47 years in the us.
I will be asking my doc about it later this week.I also am wondering if I could take prednisone again since I allready replaced both my eyes.
Suzy
RE: Fumaderm - Fred - Wed-30-11-2011
(Wed-30-11-2011, 20:07 PM)JustSuzy Wrote: replaced both my eyes.
What
RE: Fumaderm - Caroline - Wed-30-11-2011
(Wed-30-11-2011, 20:07 PM)JustSuzy Wrote: Thanks to everyone for the info.Never ever hear of it in 47 years in the us.If you mean about Psorinovo, I can imagine, first tries are from beginning 80's, at their site is a woman photographer, that uses it already since 1988.
The site is a Dutch site: psoriasistherapie (so add .nl at the end). Unfortunately for you it is completely Dutch.
(Wed-30-11-2011, 20:07 PM)JustSuzy Wrote: I will be asking my doc about it later this week.He probably will not know about it. As far as I know knowledge is not spread outside of Europe.
Hope your eyes are ok.
RE: Fumaderm - JustSuzy - Wed-30-11-2011
(Wed-30-11-2011, 20:07 PM)JustSuzy Wrote: Thanks to everyone for the info.Never ever hear of it in 47 years in the us.
I will be asking my doc about it later this week.I also am wondering if I could take prednisone again since I allready replaced both my eyes.
Suzy
(Wed-30-11-2011, 20:20 PM)Fred Wrote:(Wed-30-11-2011, 20:07 PM)JustSuzy Wrote: replaced both my eyes.
What
(Wed-30-11-2011, 22:17 PM)caroldanon Wrote:(Wed-30-11-2011, 20:07 PM)JustSuzy Wrote: Thanks to everyone for the info.Never ever hear of it in 47 years in the us.If you mean about Psorinovo, I can imagine, first tries are from beginning 80's, at their site is a woman photographer, that uses it already since 1988.
The site is a Dutch site: psoriasistherapie (so add .nl at the end). Unfortunately for you it is completely Dutch.
(Wed-30-11-2011, 20:07 PM)JustSuzy Wrote: I will be asking my doc about it later this week.He probably will not know about it. As far as I know knowledge is not spread outside of Europe.
Hope your eyes are ok.
They are now. Taking prednisone as perscribed gave me cataracts and within about 3 months I went blind.It was scarry as when driving I realized my sight was going a little each week untill I finally couldn't drive or read even with glasses. I freaked out and it took awhile to figure out the cause of it. I had 2 cataract surgeries that replaced both lenses and now can see as good as any 40+ can....Still need reading glasses though.
It was just a thing that happened to me and doesn't happen to everyone who takes pred.
I make lots of lemonade,lol!
Suzy
P.S. I am going to give my doc that website!
RE: Fumaderm - snookams - Thu-01-12-2011
Hi Paul
Ive just recently been back to see my consultant and he's cut me down to 4 Fumaderm blue tabs a day as my body cant tolerate 6 per day, not sure if its cos im very slim?? My Psoriasis is now almost clear and i only get the flushes/tummy upsets once or twice a week
Im goin to try and push it up to 5 a day and see how i go but if the symptoms get any worse il cut it back again!! Hopefully i'l remain on them as we tend to go abroad 2 or 3 times per year and this would be bliss
If any1 is wondering why "Snookams" is such a strange name my 6yr son picked it, its his favorite moshi monster but shouldnt need to explain myself!!
Anyway let me know how u get on... My consultant also said that Fumaderm prob would not be licenced in the UK until mid 2012, my GP wasnt happy about me getting prescribed an unlicenced drug however a Consultant is a few steps above a GP so he can take a hike, if it helps me then that makes me happy
Take Care
Hi Snookams
I'm a 35y old from Ireland and have had P for 30yrs, I've been moved onto systemic drugs as I can no longer use UV treatment as I've used it too much over the years and my Doc has said that I can't go back to it ever again, so I'm afraid I'm stuck with the tablets. I was taking Methotrexate for 1y and was completely free of P for the first time years. The Metho was messing around with my liver a bit so I had to come off it and onto Fumaderm. Within 3 weeks of stopping the Methotrexate I was covered in P again, unreal!
I started taking Fumaderm 6 weeks ago and I'm currently taking 5 tables a day since the start of week 6. I had very little side effect up to now. I think I got 3 stomach cramps in 5 weeks, that's it!! Oh boy am I getting them now, it just took me two hours to eat my dinner as the cramps were so bad.
I woke up last night at 4am and had to run to the toilet! I get hot flushes also which make me look a bit mental! My stomach is constantly groaning as if I'm starving and more air is coming out of my behind than I'd like. I find taking an over the counter pill for an upset stomach does the trick though so far, might be worth looking into getting some. I also starting drinking low fat milk every morning and during the day. I'm not going to stop taking Fumaderm and will let you know how it's going next week.
Keep the chin up.
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