Cosentyx and some Side effects

[madpaddy]

Hi 

Before i begin i have to say its a credit to the creator and administrators of such sites. People who honestly give up their time and money just so the internet and world can become a much more open and sharing space.. Well done. 

Ok. 

I live in Australia and i have been on Cosentyx since feb. Its the first bilogical i have used and from reading other posts i am very grateful for the health system we have over here... Seeing a dermo took about 1 week and getting on the biological took about a year. But we did try the less expensive and ones first. 

Cosentyx is amazing.. i feel like a new person... especially when my kids say how happy they are i can now take them swimming. 

Anyway... just want to get in touch with someone who is on cosentyx and a few issues which may or may be caused by it. 
Keep getting eye infections. Have been using antiboitc drops which work but obviously cant use them for ever. 
Also for all us pale skin people out there have you noticed that parts that are not exposed to the sun are taking longer to go away. 

Seen the specialist on Thursday and my scrore went from 18.5/20 to 2.7/20.... buns and guns will be out for summer... so if you hear screaming, thats just people running away.

[Caroline]

Hello Madpaddy,

Welcome from the other side of the world, I'm coming from Holland, to this club, with only Psoriasis patients and their knowledge from experience.
As far as I know you are our second Australian member. And also I think Bill is not in the same way that enthousiactic on your medical system.  
Anyway you are on Cosentyx, already known in this forum for its excellent operation. There are more Cosentyx users on the forum and no doubt they will contact you. Fred himself, the driving force behind the site, uses it also.

Do you only have Psoriasis or do you also have Psoriatic arthritis?

The site is packed with real life information on all kinds of treatments, all seen from the view of the patient and enhanced with references to pieces of research that are valuable for the understanding of our common disease.

Really great is to read of the enthousiasm of your children, take care in the sun when you are going to confront your skin with it, we don't want the sun to run away.  

Eh, Madpad, is that from Apple? Just like the iPad, or has it some other meaning?    
.
.
Just kidding, you will get used to that, if you hang around a bit longer.  

Caroline

[jiml]

Hi 

Before i begin i have to say its a credit to the creator and administrators of such sites. People who honestly give up their time and money just so the internet and world can become a much more open and sharing space.. Well done. 

Ok. 

I live in Australia and i have been on Cosentyx since feb. Its the first bilogical i have used and from reading other posts i am very grateful for the health system we have over here... Seeing a dermo took about 1 week and getting on the biological took about a year. But we did try the less expensive and ones first. 

Cosentyx is amazing.. i feel like a new person... especially when my kids say how happy they are i can now take them swimming. 

Anyway... just want to get in touch with someone who is on cosentyx and a few issues which may or may be caused by it. 
Keep getting eye infections. Have been using antiboitc drops which work but obviously cant use them for ever. 
Also for all us pale skin people out there have you noticed that parts that are not exposed to the sun are taking longer to go away. 

Seen the specialist on Thursday and my scrore went from 18.5/20 to 2.7/20.... buns and guns will be out for summer... so if you hear screaming, thats just people running away.

Hi madpaddy and welcome   to probably the best psoriasis forum on the internet. It is packed full of members experiences and latest advances in treatments...
You have joined a unique club that is run by the members for the members with no outside influence or advertising ever.
I'm glad cosentyx has been such a great success for you and hope some of our cosentyx users may have answers to your eye problem.
I know the excitement you must be feeling looking forward to a normal summer with your children . I hope you have a great one.
I look forward to hearing more from you in the future.

I will add your question to our newsletter where it may get more replies  

If you haven't signed up for our free monthly newsletter and you would like to receive one you can join by clicking this link Groups and clicking on join group .

Jim

[Fred]

Hello madpaddy   to Psoriasis Club.

Thank you for the kind words, we do work very hard in the background keeping Psoriasis Club safe and free from Spamers, Scammers and Trolls. And we will never be involved in money, so No advertising, No sponsors and No donations.

I have been on Cosentyx just over 6 months now and like you, I'm a new person it is the best Bio that I have ever tried and it has given a new life.

As for the parts not exposed to the sun taking lobger. I would say yes it did take a little longer, but to be fair I didn't have much psoriasis anyway as I had been using Stelara. I have a thread about my journey on Cosentyx if you want to read:  Cosentyx for psoriatic arthritis Fred's journey

Now the eye infections: I have not had that problem and don't know of any other members reporting it. But I would report it to your dermatologist and get their opinion on it. It's probably not related but it's important to report anything unusual just to be sure.

We currently have 19 other members with Australia in their profile, so you're not alone in upside down world.

Regards.

Fred.

@Caroline My guess would be his username is more related to him being a Mad Irishman  

[Bill]

Welcome Paddy.

Please post some before and after pics as it is of interest to yourself and other sufferers. Keeping a journal of your progress is even better. I am glad to see some fellow Aussies getting proper treatment instead of inquiring about the merits of banana peels, but I still think the system in Australia is abysmal for leaving people like you without effective treatment for a year. You also face the prospect of waiting several years without effective treatment if three biologics fail you. What do you think about that?

Now before you go calling me a whinging welfare bludger and a public health system parasite I will have you know that I have been self-medicating very effectively without any publicly subsidised medication for nearly 4 1/2 years at a drug cost of less than $20 a year. In contrast, the management of psoriasis, psoriatic arthropathy and ankylosing spondylitis (I have all three-lucky me) with biologics cost Aussie taxpayers about $200 million last year, or about $20,000 a patient, and the cost is increasing by about $20 million annually.

What disgusts me is how much better my self-treatment has been than that which could be provided by the health system in Australia. It took me less than two weeks to get my drugs. I had no requirement to endure inferior and dangerous medications and wait at least six months with a severe and unmanaged illness (I really dont know how you could meet this requirement without becoming an invalid or destitute.). I had a ~90% reduction of disease within a few months of starting treatment, and I have almost no disease now. My last ESR was 2. I am a guinea pig, so I have experimented with doses and supplements, but I seem to have found a safer and more effective treatment that has not lost its efficacy by doing this. I am hopeful that my ongoing experimentation will further improve my treatment.

Sorry to be so full on. The last Aussie on Secukinumab here straight out attacked me then disappeared like a fart in the breeze. Admittedly he was from Sydney, so I should expect that sort of moronic rudeness from those southern cockroaches, but it still made me bloody angry. As Jim said, Fred has set up the best psoriasis website here. You will find very kind and helpful people. Fortunately none are quite as bonkers as me.

Cheers,

Bill

[Fred]

Admittedly he was from Sydney, so I should expect that sort of moronic rudeness from those southern cockroaches

Bill please try to moderate the way you talk about other members. I don't mind people speaking their mind and as you know I did say I doubt he will be back. But I don't want to see our members slagging each other off. I would rather you put your effort into what you do best, and support our members and give good advice.

Thank you.

Fred.  

[Bill]

Sorry, Fred. It's rugby league terminology. State of Origin is nigh.

[Fred]

Sorry, Fred. It's rugby league terminology. State of Origin is nigh.

Accept my apologies then Bill. I didn't know that. I only watch proper rugby (Union)  

Carry on.

[Caroline]

I told you so MadPad.. Our Bill has a different opinion on the Australian Health system, but... he is one of the good guys of the forum. I learnt a lot from him and from his experiments. So certainly don't feel offended by his flowery words, there is nothing but well meant goodness in them.

[Fred]

I told you so MadPad..     Our Bill has a different opinion on the Australian Health system, but... he is one of the good guys of the forum. I learnt a lot from him and from his experiments. So certainly don't feel offended by his flowery words, there is nothing but well meant goodness in them.

Yep