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New to the Club

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New to the Club
Klbuer Offline
Newbie


Posts: 2
Threads: 1
Joined: Apr 2017
Gender: Female
Location: Ten Mile
Treatment: Searching for new
#1
Mon-01-05-2017, 02:11 AM
But unfortunately not new to psoriasis.  My name is Kathryn.

I got my first spot at 23 and had only the one until my early 30's.  Then the system went nuts. I have all five types of psoriasis including the arthritis.  

At 35 my doctor told me I would be in a wheelchair within two years unless something changed.  From then on my life has been a constant round of any and all medicines and almost constant fights with a variety of insurance companies who fight to keep me off the very expensive medicines that  need.  I never got that chair and I am determined not to!

I found this forum while researching Taltz vs Cosentyx.  The dermatologist has decided to change me off Embrel and feels that Cosentyx is the best option but the insurance company is fighting for the cheaper option.  I didn't much care until I did the research and found that Taltz is not recommended for arthritis at all.

Now I would love to have cleared skin but I have taken everything under the sun from the early years of methotrexate and gold injections to more than 15 years of Embrel, Stelara and Humira.  If I have to choose skin vs joints - no contest!

Would love to hear what works best for other people with the arthritis.....
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Mon-01-05-2017, 08:25 AM
(Mon-01-05-2017, 02:11 AM)Klbuer Wrote: But unfortunately not new to psoriasis.  My name is Kathryn.

I got my first spot at 23 and had only the one until my early 30's.  Then the system went nuts. I have all five types of psoriasis including the arthritis.  

At 35 my doctor told me I would be in a wheelchair within two years unless something changed.  From then on my life has been a constant round of any and all medicines and almost constant fights with a variety of insurance companies who fight to keep me off the very expensive medicines that  need.  I never got that chair and I am determined not to!

I found this forum while researching Taltz vs Cosentyx.  The dermatologist has decided to change me off Embrel and feels that Cosentyx is the best option but the insurance company is fighting for the cheaper option.  I didn't much care until I did the research and found that Taltz is not recommended for arthritis at all.

Now I would love to have cleared skin but I have taken everything under the sun from the early years of methotrexate and gold injections to more than 15 years of Embrel, Stelara and Humira.  If I have to choose skin vs joints - no contest!

Would love to hear what works best for other people with the arthritis.....

Hi Kathryn and a warm welcome  Welcome  to the club. I'm glad you gave found your way to us, as here you will get unbiased advice from other members who are always pleased to share their experiences.

It's sad to read your post on how you haven't been able to get a treatment that works for your arthritis to keep you out of the wheelchair . But Taltz and cosentyx both target IL17 and seem very effective from what I've read,
I would push for cosentyx myself as the results members are getting are amazing, I would get in touch with cosentyx directly and tell them you are having problems getting it approved by your insurers. There's a web address for cosentyx on this link Cosentyx (secukinumab) I'm not certain but I believe they will fight for your approval on your behalf.

See Freds experience hereCosentyx for psoriatic arthritis Fred's journey
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,918
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#3
Mon-01-05-2017, 13:00 PM
Hello Kathryn Welcome to Psoriasis Club.

Yes go for Cosentyx. It's great and you will soon notice a change. I too would rather get the psoriatic arthritis sorted over the psoriasis, but Cosentyx does both and it does one hell of a job at it too. Smile

Regards.

Fred.
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#4
Mon-01-05-2017, 15:05 PM
Welcome! Cosentyx is working well for some of our members and I hope you see great results from it as well. So glad you're wheelchair free and hope you are able to stay that way. Thumb
mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,339
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#5
Tue-02-05-2017, 00:10 AM
Taltz works for both PsA and Psoriasis - Taltz just hasn't been approved for PsA yet (it will be) - it takes time. They both target the same thing similarly to the variety of TNFs. Either choice is a good starting point.
pingu Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 429
Threads: 19
Joined: Jun 2015
Gender: Male
Location: UK
Treatment: Dovobet
#6
Tue-02-05-2017, 12:27 PM
Welcome. I am sure the people here can answer anything you have and are very welcoming.
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,104
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#7
Tue-02-05-2017, 17:46 PM
Hi, it's nice to meet you Smile
dyorke Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 182
Threads: 4
Joined: Apr 2016
Gender: Female
Location: UK
Treatment: Acitretin
#8
Thu-11-05-2017, 12:42 PM
Welcome Kathryn -   you will find someone here who can share heir experience of this condition
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#9
Thu-18-05-2017, 00:52 AM
Hello Kathryn, Welcome to the club.

*This thread is closed. All introductions are closed after 90 days to save confusion.
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