Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Hi superpsy
Nice to see you and glad to hear you have started on cyclosporine after your bad experience on acetretin
I know nothing of cyclosporine and to ensure that other members see your posts it might be an idea to start a thread if your own in prescribed treatments [forum=10]
Good luck
Posts: 26,088
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
(Sun-18-12-2016, 01:02 AM)superpsy Wrote: hi, i have just started the treatment in the last 2 weeks, had a few side effects, my doses is 250mg a day so i guess quite high. but it does seem to be working. i have had a few issues, like burning stomach, feeling ill, and stomach churning and gas, but seems to be getting less.
Hopefully this is the one as aceterin was a horrible experience leading to an ingrown toenail.
Yes I had ingrowing toe nails with aceterin in fact funnily enough I still had problems until I started on Stelara. Cyclosporine was horrendous for me ,I thought that I had died and woke up just shows how different we are. Best of luck with the treatment.
Posts: 18
Threads: 5
Joined: Apr 2016
Gender: Male
Location: england
Treatment: Amgevita
Hi again everyone
So I've stopped taking the cyclosporine now as advised by my dermatologist, been off it for about 2 weeks and the psoriasis is coming back quite badly.
Im hoping the derm is happy to put me straight on the new treatment as imo it is quite obvious the psoriasis is going to come back as bad as before... i guess we'll see!
Anyway... Just a little update
Jamie
P.S. Cyclosporine is amazing... I'm sad to see the back of it, been 100% clear now for months. Its also given me hope that other treatments will work whereas before i had no hope whatsoever.
Merry Christmas!
Posts: 71,229
Threads: 4,130
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
(Wed-28-12-2016, 17:45 PM)yorkshire_lad Wrote: Im hoping the derm is happy to put me straight on the new treatment as imo it is quite obvious the psoriasis is going to come back as bad as before... i guess we'll see!
Always good to have bad psoriasis for your dermatology visit, it makes them look further for something different.
Good luck.
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Hi Jamie good to see you, it's a shame that you are off cyclosporine but I'm sure the dermatologist has his reasons
Have you been reading up on the alternatives you might be offered ? Let's hope what ever it is it's effective
I will keep my fingers crossed for you
Happy new year to you
Posts: 594
Threads: 38
Joined: Nov 2011
Gender: Female
Location: sussex, UK
Treatment: Nothing!
Ive been on this drug a couple of times, when it came to the end of a round i was weaned off slowly to try and slow the rebound affect.
Fingers crossed it doesnt flare to bad for you.
Posts: 18
Threads: 5
Joined: Apr 2016
Gender: Male
Location: england
Treatment: Amgevita
So I'm starting on something called Humira in a few weeks time, haven't had chance to read up on it yet so not sure how its going to go.
FINGERS CROSSED!!!!
Posts: 71,229
Threads: 4,130
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
(Tue-03-01-2017, 20:42 PM)yorkshire_lad Wrote: So I'm starting on something called Humira in a few weeks time, haven't had chance to read up on it yet so not sure how its going to go.
FINGERS CROSSED!!!!
You can find out more about it here: [post=165]
You can also find more if you use the
Search
Good luck and don't hesitate to start a new thread about your journey in [forum=10]
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
i hope you do well on the humira I look forward to reading more when you start
Health Boards
