Posts: 5
Threads: 3
Joined: Oct 2017
Gender: Female
Location: South Dakota
Treatment: Taltz
This has been a long journey. Long story short I have used humira, methotrexate, taltz, topical cream, and the light. 4 yr journey. In September I landed in hospital with skin infection and was septic. By dec 2017 my skin was so bad I could barely walk as my feet were a mess, hands were so bad I wore gloves. It was in my ears, scalp, stomach. I have pustular psoarisis and Terrble joint pain. Dr. Prescribed me. Cyclosporine in Jan. Skin cleared but now a big jump in blood pressure. Took Tremfya Tuesday which I had trouble injecting, started otezla yesterday. Reducing the cyclosporine over next couple weeks. I have had congestion for about two months. Very nervous about new meds. I have felt sick all day,had diarrhea. I already suffer from insomnia before the new meds. Appreciate feedback thoughts, similar treatments, snd and suggestions
Thank you!
Posts: 71,226
Threads: 4,129
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
(Sun-06-05-2018, 03:47 AM)Snitter65 Wrote: Appreciate feedback thoughts, similar treatments, and suggestions
My feedback would be it sounds like you are having one hell of a cocktail of treatments. You have switched from humira, methotrexate and taltz, and now you are taking Tremfya, Ciclosporin and Otezla. I'm sorry but that just doesn't sound right to me.
Re the diarrhoea: There is a moderate warning of using Ciclosprin and Tremfya together and diarrhoea is mentioned.
Quote:
Contact your doctor immediately if you develop signs and symptoms of infection such as fever, chills, diarrhea, sore throat, muscle aches, shortness of breath, blood in phlegm, weight loss, red or inflamed skin, body sores, and pain or burning during urination
I would suggest you need a detox from all the treatments and start again with only one at a time for a fair trial. But I'm no doctor and it is my personal opinion.
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Yes when I read it I thought that's a lot of meds to combine , I would say it's little wonder you are getting the side effects you describe ....
I would suggest having a word with the dermatologist and asking why so many treatments together surely one or the other and give them time to work ...having so many at once will give you no idea knowing which one is helping you if indeed any of them are
Goof luck I hope you get some relief soon
Posts: 260
Threads: 9
Joined: Jun 2017
Gender: Female
Location: The Netherlands
Psoriasis Score: 0!!!
Treatment: Stelara
I thought they didn't combine so many meds with psoriasis, with this rate you don't even know what works or what may cause any nasty side-effects.
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