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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Tremfya for psoriatic arthritis Fred's journey

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Tremfya for psoriatic arthritis Fred's journey
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator Newsletter Group 
Posts: 47,065
Threads: 3,145
Joined: Aug 2011
Sex: Male
Location: France
Psoriasis Score: 2
Psoriatic Arthritis Score: 2
PQOLS: 2
Treatment: Tremfya / Coconut Oil
#1
Sat-29-02-2020, 14:05 PM
This will be my new thread for my journey on Tremfya.

I've had 3.5 years on Cosentyx but it's now failed in it's job at keeping the psoriatic arthritis away. You can read that journey here: Cosentyx for psoriatic arthritis Fred's journey

Tremfya is only prescribed for psoriasis in France at the moment but it is going for approval to treat psoriatic arthritis soon and I will be one of the first trying it for psoriatic arthritis.

Unlike other bio's Tremfya doesn't have a loading dose as such, you take 1 shot of 100mg followed by another at week 4. Then the maintenance dose is 100mg every 8 weeks. I have been doing bio's for well over 10 years now so it will be a simple task doing the shots myself.

It comes in two types of shot. A pre filled Syringe and an Auto injector (Pen). I prefer using the syringes as seen in this image.

[Image: vr4g5kv.jpg]

Psoriatic arthritis is more important to me but I shall be using the score systems on Psoriasis Club to keep track of my progress.

Pscore

PsAscore

Psoriasis score: 8

Psoriatic arthritis score: 14

Psoriasis on one of my skins:
[Image: fJyd7X8.jpg]

Psoriatic arthritis middle finger:
[Image: gF1onAz.jpg]

Annoying red itchiness on forearm
[Image: PNJadNf.jpg]

Notes for reference: Before taking my first shot I feel like I have a mild cold and a bit of upset stomach. Also the annoying red itchiness has come back again. I'm putting this here so I know I had those problems before starting Tremfya.

I will do regular updates and you are welcome to post in this thread, but please keep it On Topic.



I will also have a locked copy without comments for easy reading in Members Journals, but you need to have made 10 posts to read it.
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bluejeans Offline
Novice
Newsletter Group 
Posts: 6
Threads: 3
Joined: Feb 2016
Sex: Female
Location: Long Island
Treatment: Stelera
#2
Sat-29-02-2020, 15:20 PM
It is approved in US- I have been on for 6 months and results are good, I switched from Steelers because it became less effective after 5 years
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator Newsletter Group 
Posts: 47,065
Threads: 3,145
Joined: Aug 2011
Sex: Male
Location: France
Psoriasis Score: 2
Psoriatic Arthritis Score: 2
PQOLS: 2
Treatment: Tremfya / Coconut Oil
#3
Sat-29-02-2020, 15:23 PM
(Sat-29-02-2020, 15:20 PM)bluejeans Wrote: It is approved in US- I have been on for 6 months and results are good, I switched from Steelers because it became less effective after 5 years

That's good to know Bluejeans. France are usually a couple of years behind the USA, but as it is prescribed for psoriasis I can try it.

*You may want to change the treatment in your profile. Wink
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jiml Online
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Posts: 44,826
Threads: 345
Joined: Oct 2013
Sex: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#4
Sat-29-02-2020, 15:38 PM
Good luck Fred I hope it's good for both psoriasis and psoriatic arthritis ....and hope it clears those itchy bumps up
I will follow with great interest Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator Newsletter Group 
Posts: 47,065
Threads: 3,145
Joined: Aug 2011
Sex: Male
Location: France
Psoriasis Score: 2
Psoriatic Arthritis Score: 2
PQOLS: 2
Treatment: Tremfya / Coconut Oil
#5
Sat-29-02-2020, 15:40 PM
(Sat-29-02-2020, 15:38 PM)jiml Wrote: Good luck Fred I hope it's good for both psoriasis and psoriatic arthritis ....and hope it clears those itchy bumps up
I will follow with great interest  Thumb

Thank you Jim. It's also more user friendly as it's only one shot every 2 months instead of 2 shots per month with Cosentyx.
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KatT Online
100 + Member I Just Cant Stop !
100 + Member I Just Cant Stop ! Newsletter Group 
Posts: 3,425
Threads: 15
Joined: Sep 2019
Sex: Female
Location: Canada
Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + azathioprine
#6
Sat-29-02-2020, 18:02 PM
Hope it works quickly!  That finger looks really painful  Confused
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JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both
100 + Member I Just Cant Stop ! Newsletter Group 
Posts: 4,439
Threads: 31
Joined: Jan 2016
Sex: Male
Location: Lancashire UK
Psoriasis Score: 25
Psoriatic Arthritis Score: Lucky - so far
PQOLS: 10
Treatment: Enstilar.
#7
Sat-29-02-2020, 20:33 PM
Good luck with the new juice Fred Thumb 

It will be interesting to see how it fairs.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator Newsletter Group 
Posts: 47,065
Threads: 3,145
Joined: Aug 2011
Sex: Male
Location: France
Psoriasis Score: 2
Psoriatic Arthritis Score: 2
PQOLS: 2
Treatment: Tremfya / Coconut Oil
#8
Sat-29-02-2020, 22:27 PM
(Sat-29-02-2020, 18:02 PM)KatT Wrote: Hope it works quickly!  That finger looks really painful  Confused


Thank you KatT it's not that painful to be honest, but I think I have over the years got used to the pain. My toes used to look like that at one time, so it's just a little blip.

(Sat-29-02-2020, 20:33 PM)JohnB Wrote: Good luck with the new juice Fred Thumb 

It will be interesting to see how it fairs.

Thank you John, yes It will be interesting as it's still not yet approved for psoriatic arthritis in Europe. France are usually a year behind Europe so my trial although not official will be interesting.
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Raxyl Online
100 + Member living the dream
100 + Member I Just Cant Stop ! Newsletter Group 
Posts: 4,299
Threads: 22
Joined: Nov 2017
Sex: Male
Location: Launceston, Tasmania
Psoriasis Score: 2
Treatment: Cosentyx
#9
Sat-29-02-2020, 23:44 PM
Good luck Fred, l hope it works well for you.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper Newsletter Group 
Posts: 16,347
Threads: 80
Joined: Nov 2011
Sex: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 9
PQOLS: 14
Treatment: Got back to DMF slow release
#10
Sun-01-03-2020, 08:37 AM
The fact that it is not approved, will not say that it wouldn’t work, luckily.
It only proves that paper and people around the paper are slow.
I did hear in the gossip trajectories, that the European rules on registration of new medicine by the way are being revised and will be speeded up.
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