Posts: 11
Threads: 1
Joined: Jun 2016
Gender: Male
Location: Hampshire
Treatment: Cosentyx
Hey -
I had great clearance with Cyclosporin for about 2 years (then randomly stopped working) . Not many side effects if any and got total clearance in about 2 months.
It's a great drug and not quite as dangerous as MTX. You can have the add alcoholic drink too (so my derm told me)
Consider taking Folic acid with it too.
Alex
Posts: 26,088
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
It always amazes me how everyone is different and how the side effects are different
Posts: 18
Threads: 5
Joined: Apr 2016
Gender: Male
Location: england
Treatment: Amgevita
hi again everyone,
Been a while since I've been on..... basically the cyclosporin cleared all of my psoriasis apart from my scalp, this summer has been brilliant! Shorts and T-shirts everyday with not even the slightest bit of paranoia!
To anyone who is wondering about wether to try this drug i would definitely recommend it, its been brilliant for me, haven't really suffered any side effects.
Anyway... Had an appointment with the derm last week and he said i am being taken off the cyclo as long term there are risks for liver damage, i am going to be trying a topical treatment, he mentioned one that was injected.
Anybody know which one i am likely to be trying first up??
Cheers
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
(Mon-05-09-2016, 22:00 PM)yorkshire_lad Wrote: hi again everyone,
Been a while since I've been on..... basically the cyclosporin cleared all of my psoriasis apart from my scalp, this summer has been brilliant! Shorts and T-shirts everyday with not even the slightest bit of paranoia!
To anyone who is wondering about wether to try this drug i would definitely recommend it, its been brilliant for me, haven't really suffered any side effects.
Anyway... Had an appointment with the derm last week and he said i am being taken off the cyclo as long term there are risks for liver damage, i am going to be trying a topical treatment, he mentioned one that was injected.
Anybody know which one i am likely to be trying first up??
Cheers
What great news, that it worked so well for you and gave you a good summer of enjoyment in the sun
Cyclosporine isn't one that I have tried. But it's good to read good reports about it, what a shame you are being taken off it
I don't think you meant topical treatment, but systemic treatment which is likely to be injectable
The injectable you may get is possibly methotrexate. Or one of the biological drugs Humira , or hopefully Stelara .....what ever it is I hope it will work as well as the cyclosporine
Posts: 26,088
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
For me Cyclosporine was very bad , I thought I was dieing in fact it's the worse treatment for P that I have had. Just shows again how we are all different. I have had MTX and that worked for me to about 80℅ clearance but I was very bad to start with. I am now on Stelara and if they offer that jump at it, all the best just keep us updated. Dave.
Posts: 71,229
Threads: 4,130
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
(Mon-05-09-2016, 22:22 PM)jiml Wrote: I don't think you meant topical treatment, but systemic treatment which is likely to be injectable
The injectable you may get is possibly methotrexate. Or one of the biological drugs Humira , or hopefully Stelara .....what ever it is I hope it will work as well as the cyclosporine
Yes a "Topical" is applied to the skin and a "Systemic" is taken orally or by injection.
If it's injectable it could be like Jim said "Methotrexate" but my guess would be one of the Bio's. As for which one, they used to start with "Remicade" but it's not so popular today. I'm with Dave if you get offered "Stelara" snatch their hand off.
You can find out more about the Bio's here: [thread=77]
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
If they were taking you off cyclosporin for the sake of your liver then an injectable would probably be a bio. I hope you continue to get a good run with your treatment.
Posts: 18
Threads: 5
Joined: Apr 2016
Gender: Male
Location: england
Treatment: Amgevita
Yeah actually thinking about it he did say biological treatment, I have to give not taking anything a go first to see it the p comes back.... Which it will then he said we can look at bio treatments.
How often are the injections? Side effects?
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
(Fri-09-09-2016, 10:17 AM)yorkshire_lad Wrote: Yeah actually thinking about it he did say biological treatment, I have to give not taking anything a go first to see it the p comes back.... Which it will then he said we can look at bio treatments.
How often are the injections? Side effects?
Firstly let's hope that the psoriasis stays in remission that would be the best result but if it does return Fred put a link about all the treatments and that tells of the frequency of injections and possible side effects click this link to learn more [thread=77]
Posts: 2
Threads: 1
Joined: Jan 2016
Gender: Male
Location: uttoeter
Treatment: dovobet
hi, i have just started the treatment in the last 2 weeks, had a few side effects, my doses is 250mg a day so i guess quite high. but it does seem to be working. i have had a few issues, like burning stomach, feeling ill, and stomach churning and gas, but seems to be getting less.
Hopefully this is the one as aceterin was a horrible experience leading to an ingrown toenail.
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