Wed-17-06-2015, 19:12 PM
(Wed-17-06-2015, 18:39 PM)Angie Wrote: Hi all
Just a wee update. Have had all tests for pre- stelara. All good so far. Awaiting results of tb test .
Still taking only 2 Fumaderm a day. Still getting D and flushes. But nothing like previously. Lymphos now at 0.8. Still appear to be taking a while to increase.
Skin not good. Small patches on face, which pro topic usually takes care of, so will increase usage of that.
Legs - rubbish. All dots joining up nicely! Back to only being able to lie on one side as skin on hip sore. Arms not great either.
I'm thinking of maybe just stopping Fumaderm altogether as still having the side effects and low lymphocyte count and absolutely no benefit to skin. Though I would not know if the 2 a day are maybe holding it off a little.
May try occlusion, after reading Quest's advice elsewhere.
I'll keep updating with anything new.
Hope all are well.
Angie
Glad things are looking good for stelara lets hope the TB test comes back ok
I'm like you thinking the fumaderm is not doing much except giving you the side effects .... It's a problem not knowing what will happen if you stop... It may come back or it might stay as it is ..
Any idea when you might get started on stelara, have they given you a date
Yes Quest swears by occlusion it may well be worth a go
Thanks for the update and very good luck, it can't be long to wait now