Fumaderm - questions.

[Debbie]

Hi everyone

Just a wee quick update .  Still on 5 a day, lymphos still 0.5.  Side effects - still not good.

Had rubbish weekend, stayed in as couldn't go far from loo. Lots of lost sleep, and I think I have counted the tiles in the bathroom lots and lots !  That's when I'm not trying to get rid of the pins and needles in my feet from sitting for so long! Ha ha

Just when I think my system is getting used to them I seem to go backwards.  Not sure why as I don't change anything. Can go 2 days with just one visit to the loo - though usually woken up at an ungodly hour. Then ok for rest of day , then crash, bang, wallop next three days horrendous. I've actually reduced to 3 over the last three days as bloody tired of it.

Skin much the same, arms ok, legs rubbish, some scale appearing back on ears and eyebrows .  So not sure the next step.

I have derm appointment tomorrow so will see what she thinks -- not holding my breath for any good suggestions from her as I find it's a case of keep taking the meds and see you next time.

I hope your all well.

Angie  
[/yes I am also having same side effects, on,y been on Fumaderm for 7 weeks now, but psoraisis getting worse - awake half the night itching! has hospital yesterday and keep taking neds it can take months before it works!   ]

That could be correct Debbie, if I remember well it took me three months.
It is a known reaction that the psoriasis could worsen first.
So annoying that you cannot order/use Psorinovo, i am quite sure that would be a different experience.

Hi Debbie I'm in agreement with Caroline regarding the timescale. You are still early in the treatment and it may well get a bit worse before it gets better, Angie was unfortunate in that it didn't work after 7 months
I would say if your bloods are good you should stick with it a while longer as you have probably had the worst of the side effects. And the drug should start working on your skin soon
Fumaderm has a very good track record and works for over 70% of people I'm hopeful you will be among them, and will soon be enjoying life scale free .....and side effects down to a minimum mainly just odd flushes


Edited by Jiml to correct error time on drug should read 5 months not 7
Thanks Angie  

Hi Angie, this Fumaderm seems such a strange drug in the way it does not seem to be consistent- have a few days no side effects and then all change! Then the same with ny psoraisis, just seems to be getting better for a few days and then the next day I,m 2 steps back again!
I saw someone today, who lives near me, at the leisure centre as I try and swim when I can, he says you,re walking today, last week I saw tou in your mobility scooter? i,m sure some people think I put it in - if only lol!