Hello, I was diagnosed with Palma Plantar 2 years ago, no topical treatments worked at all. Light treatment helped my hands become more manageable, but feet have been a nightmare. Been reduced to a mobility scooter to get about as feet just too painful. Been on Acitretin for 18 months, had quite an improvement but side effects got too bad, loss of hair, reoccurring eye infections and painful lips, mouth and nose. Just started Fumaderm 2 weeks ago

Do u have stretch marks too?? Coz i have mine and it really bothers me so much. I was not able to wear shorts because i have them on my tights huhu i can also wear sleeveless shirts coz i also have them on my armpits. Any suggestion or any advice about this?thanks

Hi guys! Im suffering psoriasis for 6 yrs now. Im 18 yrs old from philippines. Im a new member of this forum and i would be glad to share to you what am i using.

I've been to many procedures since my psoriasis started. I was so depressed when i knew about this kind of skin problem. I already tried visiting a dermatologist I also tried chinese treatment. And to make the story short, im using a BL cream. I dont take in medicines, im just appling this ointment to affected parts and im happy to say that it disappears. It doesnt cure totally but im contented with the result. Even my friends dont believe that i had this skin problem. My psoriasis now is not obvious though it suddenly appear especially when im stressed but over all its a good thing for this ointment. Ive been using the ointment for 5yrs until now. I suggest you try this also. Maybe it could help.

I am a wife, mother and grandmother whose paycheck job is very stressful but decompresses through crafts and a non-profit that benefits foster children. Have been living with psoriasis for so long I have forgotten exactly what life was like before. Have had different meds tested over the years, most with little success. I has created problems with my job as well as home life. Some crafts are gathering dust because my hands are so chewed up it is impossible to not leave blood behind or destroy threads and yarn. It has created problems internally as well. I am hoping by joining this club I can meet others who have or are experiencing like problems and gain the strength that is sometimes needed to deal with this disease.

Hello everyone,

I'm obviously new here. I am a 28 year old male who was diagnosed with psoriasis in 2010 and it has changed my life for the good and the bad. I appreciate the more important things in life now(family/friends/experiences) and have learned soo much about nutrition and taking care of myself in general. I'm honestly in the best shape of my life from working out,swimming, and eating healthier than I ever have before but the psoriasis does get me down from time to time. It can be a full time job in itself and just mentally/physically exhausting. I've somewhat recently got out of relationship of 4 years and feel it will be difficult to start dating again although my condition is more on the mild side but seems to be getting progressively worse. I am anxious to read other posts/meet like minded people/and learning new methods to treating psoriasis. What has helped me the most is coconut oil, protopic, and tea tree oil soap/shampoo/conditioner.

Thanks

Hi guys,

I'm hoping someone can help, or give some advice.

I've suffered with Psoriasis for the best part of 20 years, started to appear just as i was finishing school. I've got it covering, my scalp, hands, arms, legs, back, feet, pretty much everywhere and i mean everywhere. After being made redundant its got a whole lot worse. Recently my adviser has decided i need help getting a job and has placed me on the Mandatory Work Activity, i heard from them the other day and they are sending me to the local recycling plant to sort through people's rubbish, because it'll help me get a job. (Just as a side note, for 15 years I've been a IT Analyst).

I've been basically told by unemployment to show up or no money, even though they agree wholeheartedly I should not be sent there because of my Psoriasis I've still been told I have to go. This scares me a great deal because of all the possible health implications. I've asked the company i've been assigned to if there was anything else they could have me doing, admin, charity shop work, anything apart from this I was pretty much told to deal with by the person on the phone. Although when asked about what safety gear I was going to get i was told A pair of boots high visibility vest and maybe some gloves.

I have to go tomorrow for a "risk assessment" my best mate thinks they dont believe me and want to take pictures or something. But I have to go or they stop my money, according to the job centre.

Has anyone come across anything similar or has any advice?

Anything anyone could say to help or put my mind at ease would be really great, because at the moment, i'm genuinely afraid.

Many Thanks for your time,

Bav

Hi everyone, hope it's okay, but I'm going to try and keep a diary of the progress with Stelera.  Just got my first injection about an hour ago.  Feeling really tired at the moment, but I don't think that would come on as quickly as a side effect.  Will try and upload pictures later of skin so that I can see when the medication kicks in

Hi All,

I was googling MTX vs fumaderm and found you.

I decided to join as I found the posts quite thoughtful and based on personal evidence.
I'm 44 and got the first spots of psoriasis in 91-92 I think.

did light treatments in Italy and they worked very well for me.
Once I moved to Ireland the local Dermatologist stated I definitely had way too much light treatments and prescribed some cream ( i'll check later the proper name). they obviously didn't work.

I gave up for 6-7 years with no treatment whatsoever as the temperatures in Ireland aren't that inviting to get undressed.

I'm going to see the dermatologist again tomorrow and I think i'll opt for the fumaderm but I'm curious about the psorinovo option discussed here.
Thanks All for your help.

Hello,

My name is Daniel and I started taking Cosentyx on 3/26/15.  I have tried Raptiva, Enbrel, Humira, Remicade, Stelara, and Soriatane (did not stay on too long because it severely chapped my lips) and the only thing that has ever worked for me was Raptiva (almost all clear with it) but that was pulled years ago.

I took my third set of shots last Thursday and am starting to see some results.  The plaque on my elbows, knees, and legs is less thick so it is starting to work.  I still have quite a ways to go but I am finally encouraged by a psoriasis treatment.  I have not suffered any side effects that I am aware of and think the injection pen is a lot better than other prior treatments; it doesn't hurt as much overall.  The first two weeks it was a little pinch and then nothing.  This past week it actually stung a bit more and left a small bump on each leg that went away the next day.  I don't know if that was due to the placement of the shots or something else, so I will have to see if that continues.

Overall I am cautiously optimistic that this might work.  Its been almost 6 years since I stopped taking Raptiva and started the merry-go-round of treatments that did not improve things (I know those help some people, just not me).  I look forward to the next couple months.

-Daniel

Currently I have psoriasis in various places on my body mostly on my legs and arms. I have seen short term results with Humira and Stelara but it never sticks more than 3 months. I just started Cosentyx last week after trying Humira, Stelara, and every other product on the shelf. So far the only side effect I have seen has been a stuffy nose.

This study looks at the sexual health and quality of life issues in psoriasis patients with genital psoriasis, it concludes that genital psoriasis dose indeed have a profound impact on sexual health issues.

Quote:

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Objective:
This study was designed to ascertain factors associated with the development of genital psoriasis and its impact on quality of life and sexual functioning.

Methods:
This was an observational, multicenter study of 354 consecutive psoriasis patients.

Results:
One hundred thirty-four patients (38%) had current genital involvement while 224 (63%) had a current and/or previous history of genital involvement. Eighty-seven percent reported itch, 39% pain, 42% dyspareunia, 32% a worsening of their genital psoriasis after intercourse, and 43% a decreased frequency of intercourse. Younger age of onset of psoriasis, male sex, more severe disease, and involvement of the scalp, flexures, and nails were associated with the presence of genital disease. There was no association with circumcision or obesity. Patients with genital psoriasis had more impairment in quality of life and sexual health as determined by the Dermatology Life Quality Index (P < .0001), the Center for Epidemiological Studies-Depression Scale (P = .01), and the Relationship and Sexuality Scale (P < .0001).

Limitations:
This was a descriptive study from 2 tertiary referral centers where patients were likely to have more severe psoriasis.

Conclusion:
This study highlights the high prevalence of genital psoriasis and its profound impact on quality of life and sexual health.

I've read about a new skin conditioner for P. from a Norway Pharmacuidiucal company. It was designed for excema and psoriasis to help moisturize & many other issues p. suffers have. It claims to be successful in their studies in Norway,France.& England. It's called Ganodex. Has anyone heard of it or used it? It also claims the following.

Immune-modifying ingredient which can reduce scaling, itch and irritated skin. What's that? Some antiinflammatory?
100% natural ingredients with no detected side effects. No detected side effects? YIKES ! No allergies from the ingredients in other words. No cortisone and parabenes, which can cause thin, damaged and irritated skin.
Quickly absorbed. No fatty, greasy skin after application. It claims to contains triple helix beta glucons? What's that ?

I have had this disease all my life. Scars from head to toe. Tried many creams and moisturizers that have really helped not greasy no cortisone or steroids, waxes, or Laural sulfates etc. in conjunction with prescription meds. I have three great moisturizers that will help keep my skin from drying and flaking. Which in my case is a precursor to a p. outbreak in most cases. It's another way to manage the disease. There is really only managing this disease and knowing your triggers.  Keeping the skin from drying out is a big trigger for me.

The main ingredients in Ganodex are Coconut fat, paraffin, stearic acid, honey, glycerol, cetyl alcohol, beta glucan, sorbate, benzoate. Nothing new there! I use lavender parifin wax & glycerin in my hand & foot spa then wrap in Baggies /occlusion treatment/ and put socks on over nite. Especially in winter. This is maintance , management not to let the skin dry out and keep the cracks moisturized. This is a huge trigger for P. for me Dryness.

Heck I'll just thro it all in the blender add bees wax or paraffin wax.. Walla !   Home made hand cream for P. Or grab a few herbs from the garden and my fav kudzu tea! LOL
Or just use coconut oil and glycerin. After all glycerin is in the DERM layers of skin.
It's not in the US yet. THATS why I asked if some of you across the seas have heard of it or tried it?

Coal tar has been another biggie for my P. It's OTC and cheap. Another hand made help to stop the itching is i mix NON-ALCOHOL-Witch Hazel ( a natural anti inflamatory ) with Glycerine,50/50 % in a small spray bottle. Cuts down the built up plaque and stop the itching. Also sunburn spray stops the burn and the itch!

Quest4Cure

59 year old male suffering from psoriasis for 30 years. Tried everything, as most have, started Cosentyx today. Fingers crossed.

I've had psoriasis on and off for a number of years this particular 'attack' has lasted for 2 years so far and started when I stopped breastfeeding my little girl.

My entire torso is one big patch and my arms and legs are covered in spots of varying size but I try not to let it bother me but today my hairline was really bad and covered in really obvious flakes which after 4 washes with capasal I have finally got rid of.

I was meant to take my daughters to street dance but instead I cracked, burst into tears and my wonderful hubby (who was meant to be working from home) took them instead.

I have an emergency appointment with my gp in an hour to get more cyclosporin as a short term stop gap until my next dermatology appointment which could be any time as the hospital is in chaos cos all the dermatologists left in the same month. Cyclosporin doesn't work well for me but combined with epidermis and dovobet it's better than nothing.

So how many of you have hidden from you children in the bathroom crying....or is it just me? ;-) xxx

Hi everyone, I've come here for some help, some hope and some answers. Hopefully I find one or all of those things. My story starts just recently, about a month and a half ago. I begin getting one stop on my stomach. It was perfectly round and very itchy. Then I noticed several more spots over the course of a month: two on my shoulders, about 7 on my neck. They are all the same: they start as tiny little red bumps, almost like a pimple and itch like crazy. Then over the course of a few days they begin to expand out and raise up. They begin to flake on the top of the bump. They are never more than a dime in circumference. They usually last about 2-3 weeks then reduce in size and itch, leaving a bit of a mark.

I went to the doctor twice about this. The first time she suspected ringworm and gave me a fungal cream. That actually seemed to help, but my 2 week skin scraping test for ringworm came back negative. After, I got some more spots so I went to a different doctor who said it looked like psoriasis. I've looked at pictures on the internet of psoriasis and mine doesn't really look like it.

the Doc gave me a steroid cream to put on, and I feel like it's not helped at all, but it's only been 2 days. According to me story does this sound like psoriasis? I do also have another autoimmune disorder and I've heard that usually if you have one AID you'll have another.

I'm getting really stressed about this as every day I wake up and find a new stop in a totally random place! And they itch SO MUCH. Any thoughts? Does my issue sound like psoriasis?

Hi! Am new and appreciative of finding this site via google.
Think I am lucky to have only lived with psoriasis since I turned 40, am 44. It coincided with job difficulties and heavy drinking. I have it on the palms of my hands and soles of my feet, also my lower legs. A week ago the scales which often split turned into puss blisters and my diagnosis is now palmer-plantar pustular psoriasis, I was still prescribed dovobet. I had to go a walk in clinic rather than my GP. My  knuckles are alsoswollen.
Previously I have pretty much used under foot blisters to ease the pain of the cracks on my feet, which helped. But this time when I changed the blisters to keep them clean, the skin peeled off too leaving raw soles and making it impossible to walk on one foot and painful on the other. Does anyone have any suggestions how I might relieve this pain. Am used to thick scales with cracks, not large patches of raw skin?
Also has anyone's psoriasis disappeared when they have stopped heavy drinking (and not come back)?
Excuse  me for asking questions on my very first post.
Hope this finds a lot of you well and coping.
Kind  regards

Hi all

I would like to share another clinical study. It's about palm Psoraisis and Dupuytrens contractore. I have it very bad palmoplantar P. and have managed to contol it thru a constant regime. If anyone is interested I will be happy to share. It's on the bottoms of my feet too!

What the clinical study I read about actually found a connection between Dupuytrens Contracture & a high % of the patients had DC also had palm Psoriasis. Much is not understood by many doctors about treatment of DC.

Dupuytrens is the thickening of palm tendons & nodules pulling the tendons in while also pulling the fingers into a curl. There is no cure. It's the collagen constantly attacking the tendons as the antibodies send out signals to the tendons the same way that plaque psoriasis is in overdrive building up skin before shedding can occur. Thru the interluken pathway found in psoriasis, a lot of new drugs block that pathway the IL-17 or the
IL-23 both for Psoriasis and psoriatic psoriasis. Both which are the same pathways extra collagen is building up on tendons causing Dupuytrens Contracture. That was the connection in the clinical study.

I have had surgery, needle apenuroctomy and biologic drug injections in the fingers called XIAFLEX. The bio drug opened the 4th & fifth fingers from a closed position that surgery caused. At the time of surgery palmoplanter psoriasis flared and also the Dupuytrens flared in all four fingers.

Long story short the XIAFLEX also removed all the scar tissue from the surgery to open my frozen shut fingers. Now the bio drug is in another study to help burn victums and removing scar tissue from burn victims, surgeries etc. This is not a bio drug for the faint of This bio drug has many painful side effects. My fingers are still painful after 2 months and swollen. A splint is worn nightly for a year. Hand therapy for use to strengthen fingers is important for continued use, hopefully. my hand is still in a claw position and does not lay flat on a table with limited movement.

The bad news my fingers are curling again. I am suspicious that there could be another issue in my case at work here.

The Keobner Phenomenon. This is when anything can set off a reaction such as surgery, insect bite with DC & Psoriasis in my case then causes a flare . In my experience every time I try something to help my claw hand, it just makes it flare and far worse. However, at least the XIAFLEX a enzyme totally eliminated the thicken scar tissue and now my two fingers are not curled in a fist like position. I can put on my garden gloves. and shake hands.

If you have hand P. & you have nodules on the tendons & thickened tendons that predominantly show up in your palm or both it could be DC.

I hope this makes sense. Please google the psoriasis & Dupuytrens contracture clinical study for more info.

Have a good day !

Hi everyone, I used to post on Psoriasis-help, but the website just randomly disappeared one day.

I suffer from plaque psoraisis, PPP and Psoriatic Arthritis.  I'm currently on Cyclosporine, and just about to begin Stelera.

Not much else to say, any questions feel free to ask

Humira is now available in the EU for the treatment of severe chronic plaque psoriasis in children and adolescents from four years of age who have had an inadequate response to or are inappropriate candidates for topical therapy and phototherapies.

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AbbVie announced today that the European Commission (EC) has granted marketing authorization for HUMIRA® (adalimumab) for the treatment of severe chronic plaque psoriasis in children and adolescents from four years of age who have had an inadequate response to or are inappropriate candidates for topical therapy and phototherapies. With the EC decision, HUMIRA now has approval for use in this indication in all member states of the European Union.

"Several treatments have been shown to be effective in subgroups of patients with pediatric psoriasis. However, a limited body of supporting data is available. The approval of adalimumab is an important milestone in particular for children with severe disease because it extends the armamentarium of the physicians who are working to reduce the burden of this chronic disease in this sensitive young patient population," said Marieke M.B. Seyger, MD, PhD, Associate Professor of Dermatology, Radboud University Medical Center in Nijmegen, Netherlands.

The marketing authorization is based on the positive results of a Phase 3 study, which will be presented at an upcoming medical meeting. Since first gaining approval 12 years ago, HUMIRA has been approved in more than 87 countries. It is currently being used to treat more than 851,083 patients worldwide1 across 11 globally approved indications.2

"With the approval from the European Commission, HUMIRA is now the only biologic approved in Europe to treat children with this condition starting at four years of age, offering an important new option for physicians treating pediatric plaque psoriasis," said Michael Severino, M.D., executive vice president, research and development and chief scientific officer, AbbVie. "This new indication contributes to the increasingly broad spectrum of indications for HUMIRA, and supports its strong record of efficacy and safety in treating pediatric populations who are managing challenging chronic diseases."

Good news for people with Psoriatic Arthritis in the Haverhill area as West Suffolk Hospital announce Haverhill's rheumatology clinics will increase from one per month to four per month.

The first rheumatology clinic for Haverhill was set up in September 2012 and caters for all types of inflammatory and non-inflammatory rheumatic disorders, including rheumatoid arthritis, psoriatic arthritis, polymyalgia rheumatic and osteoporosis.

They will be held on the first and third Wednesday of every month, and staffed by a consultant rheumatologist and specialist nurse. They accept referrals from local GPs, and new patients will now wait just two weeks for an appointment.