Hello I'm Mrs Fred
Having been with Fred about 30 years I have come to know many of the good and bad sides of living with someone with Psoriasis. Over the years I have learnt when to talk or if he gets so down about it just be there. In the early years I remember when I was changing the bed and said "We know which side of the bed you sleep on" and he was very angry, I did not realize what a stupid remark it was.
Not so many years ago Fred had a very bad time and I phoned the hospital. They said to bring him in and they would look at him but he may have to stay. I told him they needed to see the problem but we will take an overnight bag just in case. His skin by then was very sore and bad so I know they would keep him in. When we got there and he know he had to stay he was very angry and being the person nearest I got full force. He told me to go home and I left in tears, I had a good cry in the car park. I know he did not mean to be nasty and if you had seen his skin you would understand.
It would be nice if you would like to share some of your experiences and to know someone understands.

Here is a list of the most common types of Psoriasis, If anyone has more input please let me know so I can make changes. the information is taken from various sources and this thread is only intended to give you an idea. "You should always seek medical advice if you think you have Psoriasis"

Please scroll down to find an explanation of the different types and some members photos. (or click a link below)

What Is Psoriasis ?

Plaque Psoriasis (psoriasis vulgaris)

Guttate Psoriasis also known as Eruptive / Raindrop Psoriasis / Paintbrush Psoriasis

Inverse (flexural) Psoriasis

Pustular Psoriasis

Erythrodermic Psoriasis

Nail Psoriasis

Napkin Psoriasis

Scalp Psoriasis

Psoriatic Arthritis

And Finally

Psoriasis is an auto-immune reaction where your body is attacking your skin. If it was this easy to treat auto-immune problems, then Multiple Sclerosis, Rheumatoid Arthritis, and other auto-immune disease would already be cured.

You will find lots of so called cures for psoriasis on the Internet. Don't Fall For It There Is No Cure! you will be wasting your money on nothing more than a diet and life style approach. Do a Google search for "psoriasis affiliate programs" instead and see how much people are making.

They will lead you in with claims like: I cured psoriasis find out how / Cure for psoriasis / Dr X reveals the secrets on curing psoriasis / Professors Predicted I Would Die With Psoriasis. or one of my favorites is a website about a product being a scam and still trying to sell it to you via the links.

*I challenge anyone to give us some free samples of their products or books to send out to our members and let them post the results here.

Like I said save your money. get a positive attitude, keep happy, avoid stress, use loads of moisturiser, then look at your diet.

Foods that are bad for psoriasis include:
Saturated Fats: Beef, Pork, Veal, Sausage, Salami, Burgers, Margarine, Etc.
Nightshades: Tomatoes, Tobacco, Peppers, Potatoes, Chili, Etc.
Shellfish: Lobster,Shrimp, Prawn, Crab, Etc.
And: Coffee, Gluten, Yeast, Fried Food, Pizza, Vinegar, Pickles, Spices, Strawberries, Peanut Butter, Alcohol.

An ideal diet for psoriasis would be:
7 Glasses of water.
80% of the following:
Fruit, But no strawberry's or citrus.
Vegetables: 3 that grow above ground and one that grows below ground.
Juices: some people swear by Juices. I'm sure if you do a google search you will find some.
20% of the following:
Grain, Rice, Pasta.
Oily Fish, White Fish.
Poultry, But no skin.
Lamb.
Skimmed Milk, Yogurt,
Others include Olive Oil, Light Tea, 2 Eggs per week.

Doing it and keeping to it is another thing (I Can't) but you will have saved your money on so called Cures that are nothing more than the above information.

There are lots of Myths about Psoriasis here are some of the most common ones.

1: Psoriasis is a contagious disease.
Fact: Research has shown that psoriasis is not, in fact, contagious at all. You can't catch it from, or pass it on to, another person.

2: Psoriasis is only a skin disease.
Fact: Psoriasis is actually an immune-system disease that causes abnormal growth of skin cells. A normal skin cell matures in 28 to 30 days and is shed from the skin's surface, but a psoriatic skin cell matures and moves to the surface in only three to four days, resulting in an excess of cells, which form raised lesions.

3: Psoriasis is the result of poor hygiene.
Fact: Researchers have found no link between the disease and hygiene. Again, psoriasis is an immune-system disease; it can be triggered by various factors, including weather, stress, infections, skin trauma, and certain medications.

4: Psoriasis is curable.
Fact: Psoriasis is a lifelong condition for which scientists currently have no cure. That said, the condition can be managed through proper treatment.

5: Psoriasis is easy to diagnose.
Fact: Unfortunately, it can be difficult to diagnose psoriasis, and the disease is often mistaken for skin conditions such as eczema. In a survey, 48 percent of respondents stated that their psoriasis had been mistaken by others for a different disease or condition.

6: Psoriasis is easy to cope with.
Fact: Psoriasis can have a profound psychological impact on sufferers. In severe cases, the effects can be debilitating, especially when the symptoms are easily visible. People with psoriasis may experience a range of emotions, from frustration and embarrassment to anger and depression. For this reason it's recommended that patients join a psoriasis support group; it can make a tremendous difference in the lives of those affected by psoriasis.

7: Misinformation about psoriasis is harmless.
Fact: Misconceptions about this condition can have serious consequences. “The perception that psoriasis is contagious leads to discrimination. Many people with psoriasis report discrimination in public places such as gyms, swimming pools. “The perception that psoriasis is not a serious condition leads some patients to not treat their disease. Failure to treat can lead to needless suffering from the disease itself and to an increased risk for other serious health conditions, such as heart attack, diabetes, depression, cancer, and obesity.” People whose psoriasis is undiagnosed or untreated may also be at higher risk of developing psoriatic arthritis — a chronic, painful, and disabling illness that often requires aggressive treatment.

I made the Psoriasis Score page to help me keep track of how my treatment is helping my psoriasis. Please note it is not the pasi score used by dermatologists but it will help you keep track of how you are doing. It can be used by Members and Guests. you can find it on the menu bar above.

Answer the questions on coverage and severity, ranking them from 0 - 4
0 = None / 1 = Low / 2 = Medium / 3 = High

After you answer all the questions push the score button, a window will pop up with you score. (if you get a score NaN it's because you missed a box, you need to tick all the box's)

It's private and no record is kept, so keep a note of your score to compare with your next visit.

Members can put scores in their profiles by clicking "User CP" / "Edit profile" / "Additional Information"
You can also post your score on this thread if you want and share how well you are doing.

We also have the Psoriatic Arthritis Score here: https://psoriasisclub.org/psoriaticarthritisscore.php

If you want more information about PASI see this thread What is the PASI score my dermatologist uses ?

Hello everyone some of you will know me to those that don't I have had psoriasis for well over 30 years now and psoriatic arthritis for about 25.

I can still remember the first signs, it was a small chunk on my head that just wouldn't go away. stupid doctor told me to try "Head & Shoulders" (Idiot). anyway eventually I got to see a dermatologist and off I went on a journey of Creams, Tar, & Light Therapy. It helped for a while but I soon found out there is no cure. Over the years I have tried most prescribed and some unusual home remedies. and I did manage to live with it apart from a few bouts of depression which I managed to sort myself out with.

Then about 5 years ago the psoriatic arthritis came back with a vengeance. It hit me hard, I couldn't move or even hold a cup to my mouth. reluctantly I went to the doctor who in turn got me straight in to see a dermatologist. I was pleasantly surprised on how things had moved on in treatments and was lucky enough to now be living in France which has an excellent health service.

I was given Remicade and my life totally changed my skin cleared and I could move again. just as I thought all was going well I had a reaction and moved on to Humira. again another reaction, moved on to Enbrel. the Enbrel was the best and it lasted about a year before psoriasis started coming back.

last year I went onto Stelara and so far so good my skin is about 95% clear with only a few niggly bits that just wont go and my arthritis is manageable. I do keep a blog and will be posting more on the forum on my treatment as I go along.

Well that's a bit about my life with psoriasis. as for me as a person in general you will have to join the forum to find out more, but be warned I can't stand bullies or spammers.

I'm just a genuine guy trying to help others with psoriasis and to those that think otherwise.

Regards.

Fred.

To be able to post on the forum and have access to all the other boards and privileges you need to register as a member, the reason we ask you to register is to protect the forum and our members from spam or misleading information.

#1 Click "Register" in the green bar at the top of home page / Scroll down read the statement and click "I Agree"  

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The left hand side has: Choose a Username / Password / Confirm Password / Email / Confirm Email / Choose Male or Female / Location / How did you find Psoriasis Club / Enter verification code / Enter security question.
The right hand side allows you to choose some preferences at registration but you can change these after registration.

#3 Click Submit Registration!.

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Please note we do use stopforumspam.com Genuine people shouldn't have any problems, but if you do please use "Contact Us" at the bottom left of the home page.

Welcome to the Psoriasis Club Forum. We started in 2010 with a free hosted forum and now we are pleased to launch our own hosted forum.

The idea of the forum is to give people who have or know someone with psoriasis a place to share information. We pride ourselves on running a friendly forum and we act quickly on spam/bullying/etc to protect our members.

Please come and join us and be part of a friendly community with others who understand what it's like to live with psoriasis. Maybe you can help a fellow sufferer? Or just want some answers from people who have lived with psoriasis. We are all in it together and sharing can help us all.

Never be alone with Psoriasis, hit the register button above and come and say hello. See what others think: Members quotes

I'll close this thread as it was causing confusion. We encourage new members to post an intro as it will help you settle in see here: Beginners guide to posting your introduction