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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Jims journey on Skilarence

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Jims journey on Skilarence
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
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Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#11
Fri-28-06-2019, 21:22 PM
Hope you have got sorted Jim , see my little piece on our local prescription service . I think that they are getting very tight on costs .
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phil Offline
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Posts: 40
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Location: west sussex
Treatment: fumaderm
#12
Sat-29-06-2019, 13:33 PM
Hi Jim
I have just been put on them and I got them from my Doctors no problem.
my dermatologist in London emailed me a letter addressed to my local Doctor
asking them to prescribe . dropped that into my Doctors in the morning
and collected a prescription later that day.

Phil
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#13
Sat-29-06-2019, 18:47 PM
(Sat-29-06-2019, 13:33 PM)phil Wrote: Hi Jim
I have just been put on them and I got them from my Doctors no problem.
my dermatologist in London emailed me a letter addressed to my local Doctor
asking them to prescribe . dropped that into my Doctors in the morning
and collected a prescription later that day.

Phil

Thanks Phil that will give me ammunition on Monday when I phone the doctor's and hospital I can tell them that others are getting them from their GP and ask them why there is a hold up
I'm stretching the few I have by reducing the dose and hoping Monday someone will supply me
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Kat Offline
Take my advice; I don't use it anyway.
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Posts: 9,829
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#14
Sat-29-06-2019, 19:26 PM
Hope you get it sorted soon Jim! Bigarm
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#15
Sat-29-06-2019, 19:36 PM
(Sat-29-06-2019, 19:26 PM)Kat Wrote: Hope you get it sorted soon Jim!  Bigarm
thanks Kat Bigarm
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JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

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#16
Sat-29-06-2019, 19:57 PM
Going to be interesting to see if you can tell any difference between Fumaderm and Skilarence (when you get them  Whistle)

As for the prescription debacle, it could be that your NHS Trust limit some drugs to hospital prescription.

My prescription can only be given by the Hospital Dermy and to make it worse can only be filled by Lloyds Pharmacy in the hospital. I can't take it to my local Pharmacy. Oh and they only open from 9:00 to 17:30. Not good if your appointment is at 17:45  Angry. And they don't open weekends. And no. The hospital's own pharmacy won't fulfill the script.
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#17
Sat-29-06-2019, 23:11 PM (This post was last modified: Sat-29-06-2019, 23:12 PM by jiml. Edited 1 time in total.)
(Sat-29-06-2019, 19:57 PM)JohnB Wrote: Going to be interesting to see if you can tell any difference between Fumaderm and Skilarence (when you get them  Whistle)

As for the prescription debacle, it could be that your NHS Trust limit some drugs to hospital prescription.

My prescription can only be given by the Hospital Dermy and to make it worse can only be filled by Lloyds Pharmacy in the hospital. I can't take it to my local Pharmacy. Oh and they only open from 9:00 to 17:30. Not good if your appointment is at 17:45  Angry. And they don't open weekends. And no. The hospital's own pharmacy won't fulfill the script.
Thanks John I can see I'm going to have fun Monday ....I'll let you know how it goes
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Bill Offline
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#18
Sun-30-06-2019, 13:31 PM
An interesting psoriasis story is not a good psoriasis story, Jim. I trust that you will promptly dispatch this bit of excitement tomorrow and return to boring good health. Thumb
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#19
Sun-30-06-2019, 13:33 PM (This post was last modified: Sun-30-06-2019, 13:33 PM by jiml. Edited 1 time in total.)
(Sun-30-06-2019, 13:31 PM)Bill Wrote: An interesting psoriasis story is not a good psoriasis story, Jim. I trust that you will promptly dispatch this bit of excitement tomorrow and return to boring good health. Thumb
Thanks Bill I hope to..... but will be recording blood results as before to see if there's any difference
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#20
Tue-02-07-2019, 20:14 PM
Well I was too premature starting this thread ...but I was excited at the prospect of starting skilarence

So the story so far
Dermatology meeting last tuesday the dermatologist was running over an hour late
Sat down and told her nothing has changed  she had a look and agreed I was virtually clear

She went and saw the consultant came back and announced that they were going to switch me to Skilarence

Wrote a prescription and told me to get Skilarence from my GP

Found out when I tried to collect tablets that they can't be dispensed by a GP only by hospital the doctor told me it was red flagged on the computer

Had a weekend without tablets as the NHS is asleep at weekends

Monday couldn't get through but today managed to get sense from a dermatologists secretary

She managed to get a prescription for me to collect today

Collected and took to pharmacy sat 30 minutes waiting for it to be filled
Got a call and she stood holding fumaderm tablets

I said the dermatologist wants me on skilarence not those ...the pharmacist said we keep fumaderm here for you and we don't have skilarence

And gave me two weeks supply of fumaderm telling me she would get on to dermatology and get it sorted before the box of fumaderm runs out

Talk about p*ss*ps and breweries
You would think the dermatologists would check to see what the pharmacy actually have in stock and tell them if I'm the only one on fumaderm to run them out with me and then switch when they are out of stock of fumaderm

I despair  Confused
Rant over
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