Hi from Australia - Neotigason/Acitretin and cosmetic tattooing

[Wooley]

 Hi Moonscribe, welcome to the group......

I have just been diagnosed with PPP (I am the same age as you AND trust me that is very young  ) early days for me just yet so i am currently going to hospital twice a week for PUVA (not holding out much hope though) and think eventually I will be on some drug or other.....

This is a great group by the way....people are lovely.

Welcome again 

[jiml]

I'm glad you found us Moonscribe...... I had many many years struggling with the disease and feeling alone. So finding this oasis of fellow sufferers certainly helped me.... and I hope you will keep us updated on your progress with acetretin, it's effectiveness and the side effects. That will give you something to look back on in the future
I will be interested to hear what solution you come up with for the eyebrows ..... and if the hair loss  gets too much ......... phone and tell them  

[glenda grant]

Hi Moonscribe welcome to our group I hope you can find something to help you.You will learn a lot here we all have various types of psorosis and have tried all kinds of treatments.I sure hope you can find the right one for you!This group has been so much help for a lot of people.Again

[Moonscribe]

Thank you!
I had to stop taking acitretin/Neotigason because of the severe side effects. It's taken my skin a few weeks to settle back down to something 'normal', apart from the PPP, that is! Looks like methotrexate is the next on the list. Gosh I hope it works. I've been dreading it. I start at the end of the month. Chest x-ray came back fine (which is good news anyway) and I presume bloods are okay too.
Wooleyb, I hope the PUVA helped somewhat. No-one wants to get onto the drugs, but it seems inevitable for many of us to get some relief. Waiting for a miracle...

[Kat]

Welcome Moonscribe!

I was part of the Acitretin group and it worked well for me. I currently do not take anything and have stayed "ok" although not totally clear. I was fortunate that the side effects were minimal.

I think staying with eye liner is preferred over tattooing. I wouldn't take the chance. My niece is an esthetician and does eyelash extensions. I haven't had it done but they last for about 3 months I think she said. Something to think about perhaps or ask your doctor about.

[dyorke]

Hi Moonscribe

I am a PPP sufferer and was on Acitretin (35mg/day) for a year.  I lost all the hair on my body and the hair on my head, thankfully, only thinned a bit.

Although I fretted for a while - as we girls know our eyelashes and Brows are sacred to us - nobody really noticed -most of my friends and family just thought I'd stopped using Mascara and brow gel !!

I do now use a great brow product I bought on line for the USA (Brow Stamps)  -  google it or search on face book 
(Fred - am I allowed to name the Seller ?)  they are just makeup but easier that trying to draw with a pencil...

I was told by my Consultant not to have tattoos as any trauma of the skin can cause Psoriasis to erupt.

as soon as I stopped the Acitretin my eyelashes came back and my brows are catching up - Ilstill use the stamps though.

Hope this was helpful

[Fred]

 
(Fred - am I allowed to name the Seller ?)

No, sorry Tink It would be advertising.

[Wooley]

Thank you!
I had to stop taking acitretin/Neotigason because of the severe side effects. It's taken my skin a few weeks to settle back down to something 'normal', apart from the PPP, that is! Looks like methotrexate is the next on the list. Gosh I hope it works. I've been dreading it. I start at the end of the month. Chest x-ray came back fine (which is good news anyway) and I presume bloods are okay too.
Wooleyb, I hope the PUVA helped somewhat. No-one wants to get onto the drugs, but it seems inevitable for many of us to get some relief. Waiting for a miracle...

Hey Moonscribe.....

It looks like i am going to go onto acitretin by the looks of it.....PUVA is working a treat on my hands but my feet, although they seem a lot better this week, are still so sore and just feels like i am walking on broken glass.....

What dose acitretin were you on?  Really worried about going on it to be honest, but I really hope methotrexate works for you big time!!  You will have to keep us posted on how you get on with it, fingers crossed eh.....oh and same here waiting for that miracle too.......good luck though......

[Caroline]

Latest research from the source of the scientific magazine Nature says:

Chemical nanoparticles from tattoo-ink travel through the body and amongst others end up in the lymph glands. Scientists conclude: "These long enduring changes in the bio molecules will probably add to skin infection and other problems when having a tattoo."