Question about Cosentyx

[martin222]

Sorry Fred      I should read more carefully!

how are you getting on,, on stelara??? any good. nice to meet you too

[martin222]

Sorry Fred      I should read more carefully!

how are you getting on,, on stelara??? any good. nice to meet you too

anyone else on enbrel. humira. remicade. or stelara. just incase in offered thoes treatments? any advice would be grateful.

[Fred]

anyone else on enbrel. humira. remicade. or stelara. just incase in offered thoes treatments? any advice would be grateful.

I've been on all of those, but it ended up I couldn't handle the TNF type.

You can read about them all here:

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[Marcia1966]

Hi Martin, welcome to psoriasis club.  I have been on cosentyx since December 2016.  I was very severe - almost total body coverage even unable to wear clothes and leave my bed at worst stage.  Before I was put on cosentyx I had been on topical creams for many years, then I had a really bad time and ended up damaged from Light treatment, put onto Acitretin then Methotrexate tablets of 17.5mg for 6 years. Meth cleared me but stopped working and I had the worst flare up of my life, and ended up on cosentyx after attending a special case clinic of several local dermatologists.   After 2 months I started to clear and after 3-4 months almost totally clear apart from a few stubborn areas which I manage with dovovet and epiderm.   However I have been unwell with severe stomach proble

[martin222]

well all my creams and lotions that cost me an arm and a leg didnt work, hospital tomorrow, hopefully they will give me something that works,

[jiml]

well all my creams and lotions that cost me an arm and a leg didnt work, hospital tomorrow, hopefully they will give me something that works,

Hi Martin good luck tomorrow be firm and don't accept more creams .... ask for at least a systemic to help control the disease and be firm and tell them that you have given creams a fair try but aren't prepared to carry on that route, knowing from your searches of the forum that there are effective treatments which you should be given to try . There will be one that will work .....
I look forward to hearing what the dermatologist gives you when you return
Jim

[martin222]

well all my creams and lotions that cost me an arm and a leg didnt work, hospital tomorrow, hopefully they will give me something that works,

Hi Martin good luck tomorrow be firm and don't accept more creams .... ask for at least a systemic to help control the disease and be firm and tell them that you have given creams a fair try but aren't prepared to carry on that route, knowing from your searches of the forum that there are effective treatments which you should be given to try . There will be one that will work .....
I look forward to hearing what the dermatologist gives you when you return  
Jim

thanks jim, will let you know..

[martin222]

well all my creams and lotions that cost me an arm and a leg didnt work, hospital tomorrow, hopefully they will give me something that works,

Hi Martin good luck tomorrow be firm and don't accept more creams .... ask for at least a systemic to help control the disease and be firm and tell them that you have given creams a fair try but aren't prepared to carry on that route, knowing from your searches of the forum that there are effective treatments which you should be given to try . There will be one that will work .....
I look forward to hearing what the dermatologist gives you when you return  
Jim

thanks jim, will let you know..,,,,, well had my hospital appointment today,, and after chest xray and blood test, i begged for cosyntix  or stelera, but no chance its going to be methatrexate. and the doctor said i cant give you cosyntix cos im scared, theres to many unanswered questions about bio drugs n you might develop cancer?? lol but she did say there very very expensive, and that says alot. fobbed off?? maybe 

[jiml]

well all my creams and lotions that cost me an arm and a leg didnt work, hospital tomorrow, hopefully they will give me something that works,

Hi Martin good luck tomorrow be firm and don't accept more creams .... ask for at least a systemic to help control the disease and be firm and tell them that you have given creams a fair try but aren't prepared to carry on that route, knowing from your searches of the forum that there are effective treatments which you should be given to try . There will be one that will work .....
I look forward to hearing what the dermatologist gives you when you return  
Jim

thanks jim, will let you know..,,,,, well had my hospital appointment today,, and after chest xray and blood test, i begged for cosyntix  or stelera, but no chance its going to be methatrexate. and the doctor said i cant give you cosyntix cos im scared, theres to many unanswered questions about bio drugs n you might develop cancer?? lol but she did say there very very expensive, and that says alot. fobbed off?? maybe 

Hi Martin. I'm glad you have got something even if it is Methotrexate, it's a drug that's widely used and as I think we all warned you, it's one of the drugs that you have to try as it's part of the protocol ...but it could very well work for you....it worked for me ....but I just couldn't tolerate it.....many on here use it and it works for them without any problems

For your dermatologist to suggest the reason for not giving you Cosentyx is for fear of it giving you cancer, is scandalous ....all drugs as you can read on here have to go through rigorous trials before they come to market..The only reason they won't give it is the price is so high and Methotrexate is so cheap,

I wish you luck on the Methotrexate and hope you keep a record here if your progress  

Jim

[martin222]

well all my creams and lotions that cost me an arm and a leg didnt work, hospital tomorrow, hopefully they will give me something that works,

Hi Martin good luck tomorrow be firm and don't accept more creams .... ask for at least a systemic to help control the disease and be firm and tell them that you have given creams a fair try but aren't prepared to carry on that route, knowing from your searches of the forum that there are effective treatments which you should be given to try . There will be one that will work .....
I look forward to hearing what the dermatologist gives you when you return  
Jim

thanks jim, will let you know..,,,,, well had my hospital appointment today,, and after chest xray and blood test, i begged for cosyntix  or stelera, but no chance its going to be methatrexate. and the doctor said i cant give you cosyntix cos im scared, theres to many unanswered questions about bio drugs n you might develop cancer?? lol but she did say there very very expensive, and that says alot. fobbed off?? maybe 

Hi Martin. I'm glad you have got something even if it is Methotrexate, it's a drug that's widely used and as I think we all warned you, it's one of the drugs that you have to try as it's part of the protocol ...but it could very well work for you....it worked for me ....but I just couldn't tolerate it.....many on here use it and it works for them without any problems

For your dermatologist to suggest the reason for not giving you Cosentyx is for fear of it giving you cancer, is scandalous ....all drugs as you can read on here have to go through rigorous trials before they come to market..The only reason they won't give it is the price is so high and Methotrexate is so cheap,

I wish you luck on the Methotrexate and hope you keep a record here if your progress  

Jim

hi jim, yeah i thought it was out of order her going on about cancer, anyhow i start my methotrexate in two weeks if my bloods are clear and chest xray ok. ill keep you posted, fingers crossed