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Jims continued use of Fumaderm

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Jims continued use of Fumaderm
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#51
Fri-21-07-2017, 09:09 AM
Jim, I am very happy to hear that you can enjoy the sun and surf, and it does make me try to think what I did other than get more sun. As you point out, there are many unknowns. I am looking forward to my next blood test in a few days, and consequently hope to increase my dose. What a good drug!

Keep well, mate.
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#52
Fri-21-07-2017, 09:21 AM
(Fri-21-07-2017, 09:09 AM)Bill Wrote: Jim, I am very happy to hear that you can enjoy the sun and surf, and it does make me try to think what I did other than get more sun. As you point out, there are many unknowns. I am looking forward to my next blood test in a few days, and consequently hope to increase my dose. What a good drug!

Keep well, mate.

I look forward to hearing the results of your blood test and hope the lymphocyte count has increased enough that you are comfortable increasing your dose  Thumb

Yep I have to agree it beats all the other treatments I have had throughout my life. I have never experienced such a long period of clearance...... I just wish I had got it earlier in my life. As my disease shaped my life and I would have made some different choices, mainly sport related which I have always yearned to be involved but my self consciousness held me back
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#53
Fri-21-07-2017, 20:26 PM
Great to hear the psoriatic arthritis is remaining at mild Jim. Smile

Copy moved. Thumb
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#54
Fri-21-07-2017, 20:28 PM
(Fri-21-07-2017, 20:26 PM)Fred Wrote: Great to hear the psoriatic arthritis is remaining at mild Jim.  Smile

Copy moved.  Thumb

Thanks Fred Thumb
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JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#55
Fri-21-07-2017, 22:21 PM
Good to hear Fumaderm is still being kind to you. Long may it continue.  Thumb
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#56
Fri-21-07-2017, 22:43 PM
(Fri-21-07-2017, 22:21 PM)JohnB Wrote: Good to hear Fumaderm is still being kind to you. Long may it continue.  Thumb

Thanks John
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,183
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#57
Sat-22-07-2017, 11:26 AM
You seem to be doing really well Jim long may it continue.
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#58
Sat-22-07-2017, 11:29 AM
(Sat-22-07-2017, 11:26 AM)D Foster Wrote: You seem to be doing really well Jim long may it continue.

Thanks Dave ....I'm extremely happy Thumb
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jiml Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#59
Thu-07-09-2017, 21:02 PM
Been to have another blood test with the nurse today, so got my Late July  results to add here .

I've enjoyed a fair amount of sun on me this summer and a lot of swimming in the sea although with the autumn arriving early and the coast feeling cold, I don't foresee me having many more dips this year

My psoriasis is still good and I still have the stubborn spot on my elbow that looks as if it might get flakey but a drop of coconut oil on it and you can't tell it's there ....I think I have a little in the folds behind my ears it's not much but I'm aware it's very dry if I don't moisturise

Important Blood results are
Lymphocytes 1.26
Neutrophils 5.91
Both well within the normal range

Liver and kidney function good

On an aside my Prostate specific antigen ( PSA ) is still undetectable so my cancer is staying away  Smile
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#60
Thu-07-09-2017, 21:21 PM
Great news Jim especially about the prostate problem. Thumb

How is the psoriatic arthritis? I remember you mentioning it being mild I'm wondering how it d going now the cooler climes are coming.
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