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Cosentyx for psoriatic arthritis Fred's journey

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Cosentyx for psoriatic arthritis Fred's journey
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,983
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#401
Wed-03-10-2018, 19:44 PM
(Wed-03-10-2018, 18:37 PM)artemie Wrote: Good choice Fred! It works for what bothers you most, so keep it up as long as you can =]

Thank you Artemie. That was my thinking too.

Better the devil you know as they say.

Smile
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,983
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#402
Tue-01-01-2019, 15:10 PM
New year update, three months on since going back to every 4 weeks.

Still over the moon with the psoriatic arthritis. Very slight stiffness in my shoulders some mornings, but it soon passes once I get moving. Even in the damp weather I have had no problems, not even with my toes which was always one of the worst places.

So I can keep the psoriatic arthritis score at 1 which I am very pleased with.  Smile

As for the psoriasis I'm scoring it at a 4 as I just can't seem to get it to keep away, and that is even with the use of Enstilar for a month. I think I will go back to using the diprosone as and when I need it which isn't often, but it's less messy and just as effective.

All in all I'm very happy with Cosentyx. Not great for the psoriasis, but excellent for the psoriatic arthritis which is what I wanted it for.
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,183
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#403
Tue-01-01-2019, 15:50 PM
(Tue-01-01-2019, 15:10 PM)Fred Wrote: New year update, three months on since going back to every 4 weeks.

Still over the moon with the psoriatic arthritis. Very slight stiffness in my shoulders some mornings, but it soon passes once I get moving. Even in the damp weather I have had no problems, not even with my toes which was always one of the worst places.

So I can keep the psoriatic arthritis score at 1 which I am very pleased with.  Smile

As for the psoriasis I'm scoring it at a 4 as I just can't seem to get it to keep away, and that is even with the use of Enstilar for a month. I think I will go back to using the diprosone as and when I need it which isn't often, but it's less messy and just as effective.

All in all I'm very happy with Cosentyx. Not great for the psoriasis, but excellent for the psoriatic arthritis which is what I wanted it for.

Glad to hear that you are very happy with the Cosentyx ,still don't know what to do as I have P very bad and PsA less so or at least not as dibialating as the P. May think about changing from the Stelara later in the year.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 66,983
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#404
Tue-01-01-2019, 15:57 PM
(Tue-01-01-2019, 15:50 PM)D Foster Wrote: Glad to hear that you are very happy with the  Cosentyx ,still don't know what to do as I have P very bad and  PsA less so or at least  not as dibialating as the P. May think about changing from the  Stelara later in the year.

When I read other threads here from members using Cosentyx they all seem to do better than me for the psoriasis, but the psoriasis I do have is still better than it was on Stelara.
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Kat Offline
Take my advice; I don't use it anyway.
*
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Posts: 9,829
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Psoriasis Score: 3
Treatment: Clobetasol Topical
#405
Tue-01-01-2019, 17:20 PM
I've wondered about it as well since my issue is with psoriasis (and possibly the beginning of psoriatic arthritis) but if primary doc doesn't see an issue, I'll be switching to Cosentyx and hope that it helps further clear up my psoriasis. It seems like yesterday that I had my bad flare, but it's been a year on Stelara now... and as I sit here scratching, I'm not where I want to be.

So glad it's been working well for you Fred. I know you had good success with Stelara and now with Cosentyx.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 66,983
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#406
Tue-01-01-2019, 17:40 PM
(Tue-01-01-2019, 17:20 PM)Kat Wrote: I've wondered about it as well since my issue is with psoriasis (and possibly the beginning of psoriatic arthritis) but if primary doc doesn't see an issue, I'll be switching to Cosentyx and hope that it helps further clear up my psoriasis.  It seems like yesterday that I had my bad flare, but it's been a year on Stelara now... and as I sit here scratching, I'm not where I want to be.  

So glad it's been working well for you Fred.  I know you had good success with Stelara and now with Cosentyx.

Thank you Kat.

A year! I thought you had only started it a couple of months ago. Someone please slow the world down.
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Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
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Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#407
Tue-01-01-2019, 21:38 PM
Glad to see that Consentyx is working wonders for you Fred, long may it continue working for you mate Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,983
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#408
Tue-01-01-2019, 22:51 PM
(Tue-01-01-2019, 21:38 PM)Grizzly Bear Wrote: Glad to see that Consentyx is working wonders for you Fred, long may it continue working for you mate  Thumb

Thank you GB 78
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#409
Wed-02-01-2019, 00:19 AM
It's great to know that it's still working well enough to keep you happy Fred  Thumb although not perfect on your psoriasis it's liveable with it the way it is as long as the arthritis is well under control  Thumb
Here's hoping you get many more years of relief with it
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
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Joined: Dec 2012
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Treatment: Dimethyl fumarate
#410
Wed-02-01-2019, 10:36 AM
Better that it keeps the arthritis at bay Fred. Great that it continues to deliver for you. Thumb
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