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Cosentyx for psoriatic arthritis Fred's journey

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Cosentyx for psoriatic arthritis Fred's journey
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#291
Mon-16-10-2017, 21:13 PM
(Mon-16-10-2017, 21:10 PM)Caroline Wrote: You can try to go back to Stelara. But I don’t know if your body made anti-bodies for that, in that case you will get some reaction.

It's an option, but I'll wait till I speak to my dermatologist. She is very busy and din't get back to me today.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,520
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#292
Mon-16-10-2017, 21:19 PM
(Mon-16-10-2017, 21:13 PM)Fred Wrote:
(Mon-16-10-2017, 21:10 PM)Caroline Wrote: You can try to go back to Stelara. But I don’t know if your body made anti-bodies for that, in that case you will get some reaction.

It's an option, but I'll wait till I speak to my dermatologist. She is very busy and din't get back to me today.

If she doesn’t get back to you tomorrow, you should try to reach her again.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#293
Mon-16-10-2017, 21:24 PM
(Mon-16-10-2017, 21:19 PM)Caroline Wrote:
(Mon-16-10-2017, 21:13 PM)Fred Wrote:
(Mon-16-10-2017, 21:10 PM)Caroline Wrote: You can try to go back to Stelara. But I don’t know if your body made anti-bodies for that, in that case you will get some reaction.

It's an option, but I'll wait till I speak to my dermatologist. She is very busy and din't get back to me today.

If she doesn’t get back to you tomorrow, you should try to reach her again.

No I'll wait. She knows if I'm desperate I will let her know. Wink
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#294
Tue-17-10-2017, 08:17 AM
Got another Cold sore. I've noticed I seem to be getting a lot more than usual. Where I used to get 1 a year if that sometimes, it's feeling one per month at the moment.

Oral herpes is on the uncommon list (around 1 in 10 )of possible side effects so I will keep a note.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#295
Tue-17-10-2017, 09:02 AM
(Tue-17-10-2017, 08:17 AM)Fred Wrote: Got another Cold sore. I've noticed I seem to be getting a lot more than usual. Where I used to get 1 a year if that sometimes, it's feeling one per month at the moment.  

Oral herpes is on the uncommon list (around 1 in 10 )of possible side effects so I will keep a note.

That’s unfortunate Fred the one thing that’s worked wonders for the arthritis has caused this to break out, hopefully it’s not bad enough to pull you off cosentyx and can be treated successfully
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,520
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#296
Tue-17-10-2017, 09:08 AM
(Tue-17-10-2017, 08:17 AM)Fred Wrote: Got another Cold sore. I've noticed I seem to be getting a lot more than usual. Where I used to get 1 a year if that sometimes, it's feeling one per month at the moment.  

Oral herpes is on the uncommon list (around 1 in 10 )of possible side effects so I will keep a note.

Eat some extra fruit Fred. I think vitamin C normally helps for this.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#297
Tue-17-10-2017, 09:15 AM
(Tue-17-10-2017, 09:02 AM)jiml Wrote: That’s unfortunate Fred the one thing that’s worked wonders for the arthritis has caused this to break out, hopefully it’s not bad enough to pull you off cosentyx and can be treated successfully

The Coconut Oil helps with cold sores I have found. But it's not good to keep getting so many.

(Tue-17-10-2017, 09:08 AM)Caroline Wrote: Eat some extra fruit Fred. I think vitamin C normally helps for this.

I don't think the Vits are the problem Caroline I get plenty of vit C from our own fruit and veg. I have never had this many in succession and they seem to be coming more often.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#298
Tue-17-10-2017, 09:29 AM
I’ve just been reading and I’m sure you have read to be extremely careful not to spread this virus to other parts such as through open wounds (like your legs where the Psoriasis has broken the skin )
If you’re using coconut oil on your lips and legs, just take care not to cross contaminate ...
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#299
Tue-17-10-2017, 09:36 AM
(Tue-17-10-2017, 09:29 AM)jiml Wrote: I’ve just been reading and I’m sure you have read to be extremely careful not to spread this virus to other parts such as through open wounds (like your legs where the Psoriasis has broken the skin )
If you’re using coconut oil on your lips and legs, just take care not to cross contaminate ...

I feel like on big cold sore at the moment Jim, but yes you are right it's a best to try and avoid contamination.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#300
Tue-17-10-2017, 18:37 PM
Ok had a word with my dermatologist and she is going to move my appointment to November instead of January.

We're going for the next shot of Cosentyx as usual next week and she is sending me a prescription for another topical to try and get the psoriasis down, it does feel a little bit better today so hopefully it will help. We will then review it at my earlier appointment.  

There is one caveat I have to see my GP and get him to have a look at the cold sore just to make sure it's not too bad and there is nothing else going on. If he thinks it's "Live" (her words not mine and I think she means it's spreading and not healing) then I'm to send her a picture before taking the shot. If he says it's ok then I can continue.
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