Posts: 8
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Joined: Aug 2016
Gender: Female
Location: Sussex
Treatment: Toctino
wentnto the hosp today. For my usual appt, been taken off Toctino which made my skin worse, now on myfenox. 2 500 mg twice a day. So will see how we go. Any one got any feed back about these tablets. Was told be about 3 weeks if they will agree with me.
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Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Hi tinkerbell and welcome to the club, I'm afraid I don't know about myfenox as a treatment for psoriasis
But the toctino are retinoids and usually prescribed for eczema from the little I know .and not likely to help psoriasis.
I hope someone here can help, in the meantime read through the prescribed treatments here and see what others are using .....none that I know are on those tablets
Thanks for joining and feel free to ask as many questions as you wish
Posts: 47,972
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Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Thu-04-08-2016, 01:19 AM
(This post was last modified: Thu-04-08-2016, 12:48 PM by jiml.)
Hi again I looked up myfenox, but couldn't find anything .....could it be myfenax as I have read about that...it is an immunosuppressant and used as an anti rejection drug with transplant patients. I have seen one report of it being used for psoriasis but was unsuccessful in that case
I hadn't heard of it being used that way before, although methotrexate as an immunosuppressive works so maybe you could be lucky
I will keep my fingers crossed, however if it doesn't start to show results in a few weeks tell your dermatologist you would like to go on one of the more conventional treatments. They are all listed here [forum=10]
Posts: 182
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Treatment: Acitretin
Hi Tinkerbell
Welcome to the club - am interested to see how you do on the new tablets.
Looks like we also have something else in common too
Tink x
Posts: 8
Threads: 2
Joined: Aug 2016
Gender: Female
Location: Sussex
Treatment: Toctino
I have a feeling these will not work. He said three weeks to kick in, trouble is Toctino has made my hands sore and skin peeling off , so the new tablets have really got to work hard. I used to have psorriassis on my feet legs and parts of my body, that cleared on its own, just left now with it on my hands, so I have dermovate twice aday for on fortnight, cannot stand using steroid creams , tablets . And a cream to use at night , generally they give me presnidone if they are really bad , but. Or this time, just grin and bear it , will give it 10 days if no difference then back to to see consultant,
Hopefully it will clear up
Posts: 47,972
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Joined: Oct 2013
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Hi Tinkerbell have a read through this board here [forum=10]
So if it doesn't work you will have some ideas of what to ask your dermatologist for next
I have a feeling that he's not following guidelines with either of those drugs for psoriasis ...but then I'm not a dermatologist and he is ...and you should follow his instructions and hope he has got it right
Posts: 71,225
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Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
Yes I'm with Jim, it doesn't sound to me that you are on a good path with your treatment.
Can I ask, have you been offered a steroid based cream and refused it? The reason I ask is because your dermatologist has a protocol to follow and if you refused to try something like say Dovobet then it is making their job difficult.
Welcome to Psoriasis Club by the way.
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Treatment: Got back to DMF slow release
Hi Tinkerbell

,
Welcome to psoriasisclub !
Caroline
Posts: 8
Threads: 2
Joined: Aug 2016
Gender: Female
Location: Sussex
Treatment: Toctino
Using hydromol of an evening bit like a tub of lard, that is to try and make my hands not so dry, when I buy hand creams have to look at the ingredients , to see if it is suitable, I do use the steroid creams/ointments don't really like them make your skin thin, what medication are you all taking or creams ,
Posts: 71,225
Threads: 4,129
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
(Thu-04-08-2016, 21:26 PM)Tinkerbell Wrote: what medication are you all taking or creams
We have a wide range of members taking or trying all sorts of things. I would say have a good look at some other threads and see if something is of interest to you and ask questions, but remember that what works for one may not work for others.