Anyone got pustular psoriasis? Advice wanted!

[Sammikins]

Hi I am new to this! 
I've suffered with pustular psoriasis on my hands and feet for nearly 3 yrs now. I've tried every cream, light therapy but still no relief so I was put on Methotrexate which gave me horrendous side effects which is why I was given Humira which I've been on for about 4 wks so far. In that 4 wk period my psoriasis has gone from almost clear to out of control and spreading everywhere else so I have had to start taking the methotrexate again along side it in the hope it stops it spreading further. Back to square one. I have tried a few natural products and detox which I think helped in the past so will be trying that again.
I'm still new to psoriasis and how it can affect you, would really appreciate any advice especially from someone with pustular psoriasis, comments appreciated.
Sam

[Caroline]

Hello Sam,

O yes, Sam can be a female name in the UK

At first welcome to psoriasisclub. I am not the one who is able to help you at this right moment as I don't have this version, but others do have and will contact you.

Methotrexate is awful stuff, as you describe by yourself. Depending on which phase in your life you are, I should be careful with it.
The reaction of your body to Humira I have seen described more over here on the forum. But.. there are other options that MTX and Humira.
More and more biologicals are entering the field.
So there is a range of them, there seem to be good results with Stelara.
There is also Cosen....something, Acetretin and of course the good old DMF.

Take a look around on the forum.
Don't hesitate to ask. All people on the forum are very friendly.

Cheers,
Caroline

[Fred]

We do have a few members with pustular you could try the search facility (only available to members)

I will also move this from Natural Treatments For Psoriasis to Psoriasis And Psoriatic Arthritis Topics as it may get noticed better there.

Welcome to Psoriasis Club by the way.  

[AmandaL]

Hi Sam,

I completely feel your pain with this one, I had pustular psoriasis on my hands and feet for over a year. Do you know what triggered it? I used cyclosporine which helped clear the pustules but then they would reappear, I then tried humira but like yourself I got much worse. My skin only cleared up using either strong steroid cream or after a while I came off all my medication and it took a few months but it eventually disappeared. I believe this only happened because the pustular psoriasis had been triggered by Inflxiimab infusions.

Have you spoke to your dermatologist about trying other treatments?

[jiml]

Hi Sam and welcome   to the forum I have never had pustular but thought I would just welcome you to the forum and say you have come to the best place on the net for information and advice, we are a growing band of sufferers who are happy to share information and advice about psoriasis .
Enjoy the site  look around and if you have any questions just shout there's usually someone around to help..

You will also notice as a member that there is also an off topic board where you can go and you would  be made very welcome where you can join in any of the threads. It's a place where we can forget about this disease with other sufferers

[Grizzly Bear]

Sammikins

Pleased to meet you

Never had pustular psoriasis so i'm afraid i can't help you on that one.

However, i was on Humira (it bloody hurt when the needle was fired into my leg a couple of times) and i found it helped to a certain point though not totally brilliant if i'm honest.
If your P is out of control Sammi, get in touch with your derm doc ASAP orget to your GP & ask he/she to refer you ASAP because it sounds like that Humira isn't working.
I can't help you with the Methotrexate as i've never been on it BUT i have read some right horror stories on here about it........

Ask your derm doc (if you have one) for something else.......Stelara is very good ! (a few of us are on it in here )

Natural things, well, the best moisturising thing you could buy, Biona Raw Virgin Coconut Oil (amazon, fleabay sell it) 800g tub is around £13 give or take & it's fantastic stuff.


So Sammi, feel free to ask any questions or give us your imput on your suffering, we will all do our best to help you on here but most of all, enjoy yourself on here too

GB

[Sammikins]

Hi
Thanks to everyone that replied to me, it's nice to know I'm not alone! 
I do see a dermatologist every 3 months, to be honest I don't think they know what else to try! I just keep getting given another horrible drug and yes I've read the horror stories to. It's awful that our only option is to be a guinea pig with these horrible drugs or suffer the pain and risk it spreading. My psoriasis has never had any let up since it started. Steroid tablets help clear it a bit but after a few days it's back with a vengeance. 
At the moment my skin is the worst it's ever been and it's never spreaded before like it has now, everywhere!  
I'm going on holiday in a few weeks and I'm dreading not being able to enjoy it. My mission for the next few weeks is to put as many oils and vitamins in me as I can in the hope my skin has time to get better. 
All ideas welcome
I'm still working this site out so I do hope this is posting so you all see it ?.
Thanks everyone 
Sam

[Fred]

Don't worry about working your way around the site, someone will always jump in and help if you get stuck.

I will say although I understand you not being keen on the drugs, but you are not a guinea pig. The drugs have been tested and are now in long term use.

I'm not a fan of natural treatments myself but you may find some interesting reading here: Natural Treatments For Psoriasis

[jiml]

Hi Sam it may be worth mentioning the drug I'm on Fumaderm .to your dermatologist, it won't unfortunately work quickly but if it does work you can look forward  to long term clearance,

although as you have started on the biological meds it would be worth asking for Stelara as the Humira seems to disagree with you

Good luck with your search  

It's not a matter of being a Guinea pig it's just that  they have a protocol of what to offer based usually on price, and it is a bit of trial and error though

[Sammikins]

Hi jiml 
What is fumaderm, is it a cream? I asked about a few different biologics but was told some of them aren't in UK yet. I'm in constant pain with my feet and it hurts to walk,  the itching is driving me crazy! Have u come across anything that's good to stop the itch?

Sam