Coal tar treatment
#11
Hi Stacey
Welcome to the club. You are getting good advice here and hope things will get better for you.
Quote
#12
Hello Stacey, best advice I could give you would be to dump your doctor as you are not getting treated properly. I would also say forget about the Coal Tar, things have moved on a hell of a lot and that's the sort of thing we used 30 years ago. Also Aqueous cream and antibiotics are not going to help. Have a read of these threads and get yourself a new doctor:

[To see links please register here]

[To see links please register here]


Re the others talking about Fumaderm you don't need to Google it there is plenty of info on here, but I would say slow down. Jim and Caroline do well on it but I'm pretty sure you won't get it, as you will have to start from scratch and Fumaderm is not widely available in the UK.

Dump your current doctor as he is an idiot, have a good read through threads on here, arm yourself with as much info as possible, insist you see a dermatologist who knows what they are doing and get rid of the Coal Tar. Wink

Regards.

Fred.
Quote
#13
Hey and thanks for your reply, gosh I wish I could dump the doctor I'm going to literally beg on my hands and knees if I have to to get him to refer me to a dermatologist up the hospital , I'm even considering going private, creams are so time consuming especially with 4 children. And school and nursery runs, coal tar used to work amazing for me but that was during my child hood, this flare up is pretty bad and very sore ( never have it been this sore before esp on my legs ) thanks for your advice, this is a fab forum xxx
Quote
#14
(Tue-01-04-2014, 13:40 PM)Tallyloulah Wrote:

[To see links please register here]

Hey and thanks for your reply, gosh I wish I could dump the doctor I'm going to literally beg on my hands and knees if I have to to get him to refer me to a dermatologist up the hospital , I'm even considering going private, creams are so time consuming especially with 4 children. And school and nursery runs, coal tar used to work amazing for me but that was during my child hood, this flare up is pretty bad and very sore ( never have it been this sore before esp on my legs ) thanks for your advice, this is a fab forum xxx

Hi again Stacey if you can afford £70- 80 for a private consultation I'm just guessing at the price
It may well be worth if your doctor doesn't refer you tell him you want him to refer you privately this will cut the waiting time down ( but really shouldn't be necessary these days) if you get to see the dermatologist tell him what you want. Then go NHS it's allowed
Fred is probably right he may not start you on fumaderm he will probably try methotrexate first. If you can hack it it's ok it got my psoriasis down extremely well I just felt lousy on it.
If you struggle with it they should offer you alternatives among them Fumaderm
Good luck. And keep updating Thumb
Jim xx
Quote
#15
(Tue-01-04-2014, 13:40 PM)Tallyloulah Wrote:

[To see links please register here]

Hey and thanks for your reply, gosh I wish I could dump the doctor I'm going to literally beg on my hands and knees if I have to to get him to refer me to a dermatologist up the hospital , I'm even considering going private, creams are so time consuming especially with 4 children. And school and nursery runs, coal tar used to work amazing for me but that was during my child hood, this flare up is pretty bad and very sore ( never have it been this sore before esp on my legs ) thanks for your advice, this is a fab forum xxx

Don't beg, Demand. You have the right to change your doctor if you're not happy and you should never back down to them they are there to treat you, don't be put off it's your body and you're in charge of it not your doctor.

Re Jim saying they may start you on Methotrexate, unfortunately this is still the usual rout. *Tip of the day for you and others who are faced with the prospect of going onto Methotrexate and you're not keen, tell them NO. (if you're not brave enough to say no tell them you are trying for a baby or you like a regular drink, they should not prescribe it then). Wink
Quote
#16
Fred's right demand, but I know it's not always that easy to dump a doctor, not something I have tried,
I wouldn't say you were trying for a baby as they will not prescribe it until the baby is born and off breast milk
Sure say you like a drink there's no reason not to prescribe as it does not affect me ( and I like a drink Big Grin)


Edit to be clear I mean they should not prescribe Fumaderm if pregnant
Sorry Fred I wasn't clear in my post
See Fred's post below
Quote
#17
(Tue-01-04-2014, 17:12 PM)jiml Wrote:

[To see links please register here]

I wouldn't say you were trying for a baby as they will not prescribe it until the baby is born and off breast milk

Sorry Jim but I will have to disagree with you here, Methrotrexate should never be prescribed to men or women if they are trying for a baby.

[To see links please register here]


Also Methotrexate is commonly used (generally in combination with misoprostol) to terminate pregnancies during the early stages (i.e., as an abortifacient). It is also used to treat ectopic pregnancies.

EDIT: I may have read your post wrong do to the word "Wouldn't" if so I apologise. Blush
Quote
#18
(Mon-31-03-2014, 23:56 PM)jiml Wrote:

[To see links please register here]

(Mon-31-03-2014, 23:46 PM)Tallyloulah Wrote:

[To see links please register here]

Thanks Jim Heart, I am going to although unfortunately the doctor I'm seeing is a bit of a tit (lol) although it is his field (dermatology) he is very unsympathetic or have been in the past, I was just talking to my mum and they did at one point offer some form of medication but my mum refused it as I was not allowed to get pregnant for a long time after having the treatment so I'm going to push for that and yes 70% success sounds good to me aswell thanks again for your advice and support xxx

You are more than welcome (nice pic by the way) I wish you luck and hope to meet you in the off topic section sometime, as I said I'm usually not far from my iPad and soon respond unless I'm asleep I don't think there's a problem with pregnancy and fumeric acid esters as they are naturally occurring. In our bodies anyway, I'm sure Caroline will correct me on that if I am wrong. (Watch this space)
Don't you just hate unsympathetic dermatologists. Just play the sympathy card and tell him you are at the end of your tether. Lay it on, it may just work.
Big Grin come into the off topic section sometime if you need a chuckle or a chat Big Grin
Jim


P.S just looked up fumeric acid esters (Fumaderm )and they advise ceasing treatment whilst pregnant

Indeed Jim, no DMF, when you are pregnant.
Just to avoid the risk.
Too little research has been done on that subject.

Caroline
Quote


Possibly Related Threads…
Thread Author Replies Views Last Post
  The coal tar treatment thread Caroline 40 56,930 Thu-08-07-2021, 05:09 AM
Last Post: KatT
  Tar treatment AmandaL 8 16,205 Mon-02-11-2015, 13:41 PM
Last Post: D Foster
  Coal Tar Solution susan 2 7,689 Wed-24-10-2012, 16:23 PM
Last Post: Krissie_Wright



Users browsing this thread: 1 Guest(s)