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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Coal tar treatment

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Coal tar treatment
weenona Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 375
Threads: 1
Joined: Nov 2013
Gender: Female
Location: Asia
Psoriasis Score: itchy flaky scalp :-(
Treatment: tea tree oil, tgel
#11
Tue-01-04-2014, 08:08 AM
Hi Stacey
Welcome to the club. You are getting good advice here and hope things will get better for you.
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#12
Tue-01-04-2014, 12:10 PM
Hello Stacey, best advice I could give you would be to dump your doctor as you are not getting treated properly. I would also say forget about the Coal Tar, things have moved on a hell of a lot and that's the sort of thing we used 30 years ago. Also Aqueous cream and antibiotics are not going to help. Have a read of these threads and get yourself a new doctor:
NICE Quality Standards for Psoriasis
NICE issues new guidance for GPs treating psoriasis

Re the others talking about Fumaderm you don't need to Google it there is plenty of info on here, but I would say slow down. Jim and Caroline do well on it but I'm pretty sure you won't get it, as you will have to start from scratch and Fumaderm is not widely available in the UK.

Dump your current doctor as he is an idiot, have a good read through threads on here, arm yourself with as much info as possible, insist you see a dermatologist who knows what they are doing and get rid of the Coal Tar. Wink

Regards.

Fred.
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Tallyloulah Offline Author
Novice


Posts: 5
Threads: 1
Joined: Mar 2014
Gender: Female
Location: Cardiff
Psoriasis Score: 38
Treatment: Coal tar, UVB and every cream u cud think of prob :(
#13
Tue-01-04-2014, 13:40 PM
Hey and thanks for your reply, gosh I wish I could dump the doctor I'm going to literally beg on my hands and knees if I have to to get him to refer me to a dermatologist up the hospital , I'm even considering going private, creams are so time consuming especially with 4 children. And school and nursery runs, coal tar used to work amazing for me but that was during my child hood, this flare up is pretty bad and very sore ( never have it been this sore before esp on my legs ) thanks for your advice, this is a fab forum xxx
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#14
Tue-01-04-2014, 14:00 PM (This post was last modified: Tue-01-04-2014, 15:28 PM by jiml.)
(Tue-01-04-2014, 13:40 PM)Tallyloulah Wrote: Hey and thanks for your reply, gosh I wish I could dump the doctor I'm going to literally beg on my hands and knees if I have to to get him to refer me to a dermatologist up the hospital , I'm even considering going private, creams are so time consuming especially with 4 children. And school and nursery runs, coal tar used to work amazing for me but that was during my child hood, this flare up is pretty bad and very sore ( never have it been this sore before esp on my legs ) thanks for your advice, this is a fab forum xxx

Hi again Stacey if you can afford £70- 80 for a private consultation I'm just guessing at the price
It may well be worth if your doctor doesn't refer you tell him you want him to refer you privately this will cut the waiting time down ( but really shouldn't be necessary these days) if you get to see the dermatologist tell him what you want. Then go NHS it's allowed
Fred is probably right he may not start you on fumaderm he will probably try methotrexate first. If you can hack it it's ok it got my psoriasis down extremely well I just felt lousy on it.
If you struggle with it they should offer you alternatives among them Fumaderm
Good luck. And keep updating Thumb
Jim xx
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#15
Tue-01-04-2014, 16:55 PM
(Tue-01-04-2014, 13:40 PM)Tallyloulah Wrote: Hey and thanks for your reply, gosh I wish I could dump the doctor I'm going to literally beg on my hands and knees if I have to to get him to refer me to a dermatologist up the hospital , I'm even considering going private, creams are so time consuming especially with 4 children. And school and nursery runs, coal tar used to work amazing for me but that was during my child hood, this flare up is pretty bad and very sore ( never have it been this sore before esp on my legs ) thanks for your advice, this is a fab forum xxx

Don't beg, Demand. You have the right to change your doctor if you're not happy and you should never back down to them they are there to treat you, don't be put off it's your body and you're in charge of it not your doctor.

Re Jim saying they may start you on Methotrexate, unfortunately this is still the usual rout. *Tip of the day for you and others who are faced with the prospect of going onto Methotrexate and you're not keen, tell them NO. (if you're not brave enough to say no tell them you are trying for a baby or you like a regular drink, they should not prescribe it then). Wink
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#16
Tue-01-04-2014, 17:12 PM (This post was last modified: Tue-01-04-2014, 20:10 PM by jiml.)
Fred's right demand, but I know it's not always that easy to dump a doctor, not something I have tried,
I wouldn't say you were trying for a baby as they will not prescribe it until the baby is born and off breast milk
Sure say you like a drink there's no reason not to prescribe as it does not affect me ( and I like a drink Big Grin)


Edit to be clear I mean they should not prescribe Fumaderm if pregnant
Sorry Fred I wasn't clear in my post
See Fred's post below
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#17
Tue-01-04-2014, 20:05 PM
(Tue-01-04-2014, 17:12 PM)jiml Wrote: I wouldn't say you were trying for a baby as they will not prescribe it until the baby is born and off breast milk

Sorry Jim but I will have to disagree with you here, Methrotrexate should never be prescribed to men or women if they are trying for a baby. Methotrexate

Also Methotrexate is commonly used (generally in combination with misoprostol) to terminate pregnancies during the early stages (i.e., as an abortifacient). It is also used to treat ectopic pregnancies.

EDIT: I may have read your post wrong do to the word "Wouldn't" if so I apologise. Blush
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,503
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#18
Tue-01-04-2014, 21:40 PM
(Mon-31-03-2014, 23:56 PM)jiml Wrote:
(Mon-31-03-2014, 23:46 PM)Tallyloulah Wrote: Thanks Jim Heart, I am going to although unfortunately the doctor I'm seeing is a bit of a tit (lol) although it is his field (dermatology) he is very unsympathetic or have been in the past, I was just talking to my mum and they did at one point offer some form of medication but my mum refused it as I was not allowed to get pregnant for a long time after having the treatment so I'm going to push for that and yes 70% success sounds good to me aswell thanks again for your advice and support xxx

You are more than welcome (nice pic by the way) I wish you luck and hope to meet you in the off topic section sometime, as I said I'm usually not far from my iPad and soon respond unless I'm asleep I don't think there's a problem with pregnancy and fumeric acid esters as they are naturally occurring. In our bodies anyway, I'm sure Caroline will correct me on that if I am wrong. (Watch this space)
Don't you just hate unsympathetic dermatologists. Just play the sympathy card and tell him you are at the end of your tether. Lay it on, it may just work.
Big Grin come into the off topic section sometime if you need a chuckle or a chat Big Grin
Jim


P.S just looked up fumeric acid esters (Fumaderm )and they advise ceasing treatment whilst pregnant

Indeed Jim, no DMF, when you are pregnant.
Just to avoid the risk.
Too little research has been done on that subject.

Caroline
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