Health Boards
Mon-23-09-2019, 10:30 AM
Hi.. Ive been search this place and also the inspire page in the US and although GI / diarrhea is a listed side effect there doesnt seem much else on it: Novartis is stating it cannot cause IBD... it can only bring it on if the person had it already but I have seen one person on this page and another in the US who did not have it before, and do have it now.
I think I fall into this category... the pain started on my second monthly dose after the 5 loading doses...I was doing really well until then and the GI issues were severe: severe diarrhea for a week with severe cramping.. this lasted a month, now I am on anti ulcer meds which help a little with pain but the pain was across the whole system from stomach down to colon. though mostly upper.
Am waiting for tubes and cameras but the wait list is a while! ... has anyone else experienced this? They are suggestingI change to a different biologic but I am quite worried about trying something new now.... I basically lost a month of my life lying in bed or running to the loo!
I think I fall into this category... the pain started on my second monthly dose after the 5 loading doses...I was doing really well until then and the GI issues were severe: severe diarrhea for a week with severe cramping.. this lasted a month, now I am on anti ulcer meds which help a little with pain but the pain was across the whole system from stomach down to colon. though mostly upper.
Am waiting for tubes and cameras but the wait list is a while! ... has anyone else experienced this? They are suggestingI change to a different biologic but I am quite worried about trying something new now.... I basically lost a month of my life lying in bed or running to the loo!