Great news!!

How did you get Otezla? I am interested in trying this over Acetrein (side-effects annoying). Can you advise? Are you in UK?

(Tue-19-07-2016, 12:41 PM)gokiddo Wrote: How did you get Otezla? I am interested in trying this over Acetrein (side-effects annoying). Can you advise? Are you in UK?

Hi gokiddo!!....i was offered Otezla by my dermatologist at the local hospital!!    Acitretin was making my Psoriasis worse!   if I was you I would just ask to try it!!   it has worked well for me not completely clear but sooo much better about a 85% improvement!!........and as the drug company is promoting it!!...we get it for free.

(Tue-19-07-2016, 20:34 PM)fingers Wrote:

(Tue-19-07-2016, 12:41 PM)gokiddo Wrote: How did you get Otezla? I am interested in trying this over Acetrein (side-effects annoying). Can you advise? Are you in UK?

Hi gokiddo!!....i was offered Otezla by my dermatologist at the local hospital!!    Acitretin was making my Psoriasis worse!   if I was you I would just ask to try it!!   it has worked well for me not completely clear but sooo much better about a 85% improvement!!........and as the drug company is promoting it!!...we get it for free.

That's great! Many thanks will ask )

How are you getting on so far fingers?

I just thought I would respond following my derm appointment...

I was seen earlier this week at Guy's hospital, London, which is a good place I think for derm treatment and they advised me that Otezla is definitely not available on the NHS.

It may be that you are part of a trial or your dermatologist sought special dispensation for prescribing off NICE's approved list (I think this has to be done through the local authority)

Basically, the doctor said that NICE - who decided medications that we can or cannot be generally prescribed -  have advised that Otezla is not cost effective, when compared to other oral medications and it currently costs around £800 per month to prescribe! (The cost to the NHS)

I would still like to give it a go but it seems will have to wait a while until it becomes cheaper...NICE are very powerful in these situations

(Wed-03-08-2016, 10:22 AM)gokiddo Wrote: I just thought I would respond following my derm appointment...

I was seen earlier this week at Guy's hospital, London, which is a good place I think for derm treatment and they advised me that Otezla is definitely not available on the NHS.

It may be that you are part of a trial or your dermatologist sought special dispensation for prescribing off NICE's approved list (I think this has to be done through the local authority)

Basically, the doctor said that NICE - who decided medications that we can or cannot be generally prescribed -  have advised that Otezla is not cost effective, when compared to other oral medications and it currently costs around £800 per month to prescribe! (The cost to the NHS)

I would still like to give it a go but it seems will have to wait a while until it becomes cheaper...NICE are very powerful in these situations

Otezla u turn by NICE

Just thought I would reply.
I am in Scotland and my consultant informed me this drug costs £7500 per year. However she believes it is cost effective as in my case, I no longer need UVA treatment, or daily visits to be wrapped in tar and bandages, the huge amount of steroid creams and tablets for itch etc. In fact all I need now is Epiderm and a small amount of diprosalic.
However she is being cautious as it is new.

(Fri-02-09-2016, 17:11 PM)Sandra Wrote: Just thought I would reply.
I am in Scotland and my consultant informed me this drug costs £7500 per year. However she believes it is cost effective as in my case, I no longer need UVA treatment, or daily visits to be wrapped in tar and bandages, the huge amount of steroid creams and tablets for itch etc. In fact all I need now is Epiderm and a small amount of diprosalic.
However she is being cautious as it is new.

That's not to expensive in the grand scheme of things. And for you it is life changing

Brilliant

Hi all, firstly sorry I haven't been on for a while.....life gets in the way I guess!!!!.......well my otezla journey has ended today, when I told my dermatologist that I have had diorea and stomach issues for the past 6 months he said this is a known side effect of otezla,
he was worried about the loss of fluids and minerals ect and has taken me off it,
I have a appointment for 2 months to take about Biological drugs!!....oh well I had 2 relatively clear years.........back on the psoriasis roundabout!!!!!!