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Psoriasis Club › HealthHealth Boards › Introductions v
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New here Wintrman

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New here Wintrman
Sheila Offline Author
Sheila

100 + Member I Just Cant Stop !
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Gender: Female
Location: Manitoba
Treatment: Enstilar
#11
Tue-04-05-2021, 16:28 PM
(Thu-29-04-2021, 22:43 PM)Turnedlight Wrote: Hi Wintrman  Wave  nice to meet you, I hope you find it helpful being here.
Thanks for the advice. I am hoping for a recommendation of using cosentyx as I would be very wary of using methotrexate. But, I guess the doctor will send me down the right path. I have been using dovobet for 3 years now. Not good, from what I am hearing. Next week I am seeing a new dermatologist and I pray for some relief. Thanks for the welcome.
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,076
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Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#12
Tue-04-05-2021, 17:29 PM
Keep us posted on how it goes Thumb
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 26,478
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Location: In between the tulips
Psoriasis Score: 3
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PQOLS: 4
Treatment: Got back to DMF slow release
#13
Tue-04-05-2021, 18:50 PM
(Tue-04-05-2021, 16:15 PM)Wintrman Wrote: Thank you Caroline. I have plaque psoriasis covering about 60% of my arms. I have plaque covering about 30% of my navel. Mild plaque on my chest. Plaque in many areas of my back. And of course, plaque on my knees. I have an appointment in about 10 days with a specialist. I am hoping I can come away with a new treatment plan. I have plaque on my head, in my ears, on my eyelids. I am feeling a bit desperate and have been depressed about this for quite some time because of the way view me and sometimes the way they treat me.

So here I am. Looking for treatments, ideas and a little hope. I had read that gluten has a negative effect on psoriasis, so I have cut my gluten intake in half. Dairy is another no no. Does this strike a nerve??

Okay. Thanks for the explanation Wintrman Smile

We all have our depressed moments and certainly it is lousy when people are looking and react careless.

On diary, you could try to avoid paprika’s, tomato’s, sharp herbs and peanuts (or basically anything baked in peanut oil) and oh.. no red wine. Those all are triggers. So… perhaps it helps a little. It’s worth trying.
Sheila Offline Author
Sheila

100 + Member I Just Cant Stop !
Posts: 580
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Joined: Apr 2021
Gender: Female
Location: Manitoba
Treatment: Enstilar
#14
Tue-04-05-2021, 19:29 PM
Caroline,

Thanks for the heads up. I dont drink wine or much alcohol at all really. Thanks for the heads up tho.
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

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Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#15
Wed-05-05-2021, 07:04 AM
Hi Winterman 
I am a bit late to this thread, apologies, but welcome Wave.

It sounds like your psoriasis is fairly bad and your Doctor really should have sent you to a dermatologist way before now. Dovobet should never be used for a protracted period of time, certainly not years. I was told 6 weeks max then a 12 week gap. It can thin your skin. There is a limit on how much skin you can cover at once as well. I hated the stuff. It was like applying battery acid. It only lasted 3 days before going in the bin.
Your Dermy will have access to better treatments. Chances are they will be tablets at first. I wouldn't dismiss Methotrexate out of hand. Yes I know it has a bad press but has given relief to thousands of sufferers. I am afraid it will take some time to find something that works for you - we are all so very different. 
As for diet, I have read similar things but I can honestly say I have ever had a reaction to certain food stuff. There are a few inmates that went to the extremes and cut everything out and it seems to have helped a couple or so but on the whole diet is inconclusive as far as I am concerned.
When you find out what you end up with, let us know. There will be someone somewhere that will have had experience of it and will be more than happy to share their experiences. 
JohnB
Sheila Offline Author
Sheila

100 + Member I Just Cant Stop !
Posts: 580
Threads: 5
Joined: Apr 2021
Gender: Female
Location: Manitoba
Treatment: Enstilar
#16
Wed-05-05-2021, 16:21 PM
Y'all are awesome! Very supportive and straight forward. I LOVE that!! I will keep everyone in the loop in regards to treatments. I get the feeling folks here will have alot to say about my treatment about my treatment or treatments. My first appointment with a specialist is on the 13th of this month. Let's all hope things go better. And yes, I do believe that psoriasis covers about 30% of my body. Which means that Dovobet ointment isn't an option for me.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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#17
Wed-05-05-2021, 19:55 PM
(Wed-05-05-2021, 16:21 PM)Wintrman Wrote: Y'all are awesome! Very supportive and straight forward. I LOVE that!! I will keep everyone in the loop in regards to treatments. I get the feeling folks here will have alot to say about my treatment about my treatment or treatments. My first appointment with a specialist is on the 13th of this month. Let's all hope things go better. And yes, I do believe that psoriasis covers about 30% of my body. Which means that Dovobet ointment isn't an option for me.

Good luck for the 13th Wintrman, once you know what you will be using I suggest you start a new thread here Prescribed Treatments For Psoriasis as threads in introductions automatically close after 90 days.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#18
Wed-05-05-2021, 20:08 PM
Great you have an appointment. Do read threads here about the various options and let the dermatologist know that you know what treatments are available and what your preference is and be ready to discuss the options that are available
Here in the UK to my experience they work with blinkers on and start on the cheapest and slowly work through to find something that works.
I have found that they will listen though if they think you know a bit about the treatments.
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,478
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#19
Wed-05-05-2021, 20:17 PM
When you visit your doctor, be as prepared as possible. 
Try to know your options… over here in the Netherlands we have so called consultcards. These cards offer an overview of all kinds of systemic medication that is available.

Another thing you can do is take the Three questions with you:

  1. What are my possibilities?
  2. What are the pro’s and con’s of those possibilities?
  3. What does that mean in my situation? 
When you leave the conversation, it is good to have an answer to those questions. It will help you to step forward.

Good luck the 13th  Wave

Caroline
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#20
Wed-05-05-2021, 21:48 PM
I concur with what Caroline said. Go in with written questions and a note pad. If you are anything like me you will forget  it all at first contact.  Confused.

The other thing I always strongly advocate is take a partner/close friend into the consultation with you if they allow them in at the moment. I always find the consultant seems to take more attention when there is someone else close to the sufferer who can put their two penny worth in. 

Go armed and good luck
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