(Sun-03-08-2014, 19:22 PM)Caroline Wrote:

(Sun-03-08-2014, 16:31 PM)jiml Wrote: Is the sea cold? In the Netherlands ?

No, not at all. It has a very nice temperature. Probably because the quite warm summer we have had up to now.

I will take a dip in the North Sea tomorrow as I am taking grandchildren to Great Yarmouth , brrrrrr. I hope I don't get hypothermia

Jealous of you being able to swim at the beach in the Netherlands? That would be extremely miserable of me, Caroline.

<That's an interesting test you have devised to see if the disease is still active>

Jim, when my disease was very active I developed a number of dietary triggers.(I think that mistaking consequence for cause is what drives many people to go on crazy herbal and dietary regimes.) Now that I have so few plaques I have found these trigger foods useful to see where the disease is, and anyway for me double strength skim milk is very tasty. It is a trade off.

Cheers,

Bill

(Mon-04-08-2014, 12:45 PM)Bill Wrote: Jealous of you being able to swim at the beach in the Netherlands? That would be extremely miserable of me, Caroline.

<That's an interesting test you have devised to see if the disease is still active>

Jim, when my disease was very active I developed a number of dietary triggers.(I think that mistaking consequence for cause is what drives many people to go on crazy herbal and dietary regimes.) Now that I have so few plaques I have found these trigger foods useful to see where the disease is, and anyway for me double strength skim milk is very tasty. It is a trade off.

Cheers,

Bill

It's great you have isolated these triggers, I have no idea what causes mine to flare.
Thanks
Jim

Whooopee 8 weeks on reduced dose of Fumaderm still virtually clear ( 1 small spot on elbow and a small patch in my scalp that's going)
My kidney and liver function are good and my lymphocytes are back within the normal range of between 1 and 3
Mine has gone up from 0.88 to 1.07 so I'm am a happy bunny tonight.

Had my prostate checked my PSA ( prostate specific antigen) is untraceable so my cancer is still clear

(Fri-08-08-2014, 19:59 PM)jiml Wrote: Whooopee 8 weeks on reduced dose of Fumaderm still virtually clear ( 1 small spot on elbow and a small patch in my scalp that's going)
My kidney and liver function are good and my lymphocytes are back within the normal range of between 1 and 3
Mine has gone up from 0.88 to 1.07 so I'm am a happy bunny tonight.

Had my prostate checked my PSA ( prostate specific antigen) is untraceable so my cancer is still clear

Nice one Jim, great news.

(Fri-08-08-2014, 20:22 PM)Fred Wrote:

(Fri-08-08-2014, 19:59 PM)jiml Wrote: Whooopee 8 weeks on reduced dose of Fumaderm still virtually clear ( 1 small spot on elbow and a small patch in my scalp that's going)
My kidney and liver function are good and my lymphocytes are back within the normal range of between 1 and 3
Mine has gone up from 0.88 to 1.07 so I'm am a happy bunny tonight.

Had my prostate checked my PSA ( prostate specific antigen) is untraceable so my cancer is still clear

Nice one Jim, great news.

Thanks Fred yep great news
I will carry on my reduced dose of 2x 120mg tablets a day and see if I stay clear

Terrific, Jim.

Cheers,

Bill

(Fri-08-08-2014, 23:36 PM)Bill Wrote: Terrific, Jim.

Cheers,

Bill

Thanks Bill
It's great it's still working on reduced dose and the bloods are good,

Today I visited the dermatologist and we came to a decision as my bloods were good I could increase dose to three tablets a day as I have a few small patches beginning to appear a couple on my scalp, two or three on my back. I don't want it to flare up

Also discussed the cost and was told on my dose around £200 a month which is around £2.00 a tablet (quite a reasonably priced drug)

(Fri-29-08-2014, 22:00 PM)jiml Wrote: Today I visited the dermatologist and we came to a decision as my bloods were good I could increase dose to three tablets a day as I have a few small patches beginning to appear a couple on my scalp, two or three on my back. I don't want it to flare up

Sounds like a good way to go to me Jim. Three seems to be about right for you going by your other posts. It sounds like you have a good relationship with your dermatologist, and I would urge everyone to find one they can work with too.