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Bill's pure dimethylfumarate thread

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Bill's pure dimethylfumarate thread
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#421
Tue-06-08-2019, 19:37 PM
Maybe not exactly like a beetroot, Caroline, but very noticeably red. I should post a couple of pictures. The tummy stuff is a little variable, sometimes barely noticeable, but often like being mildly hung over. I remain a big fan of the stuff, so obviously the benefits outweigh the risks for me.

Cheers
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 28,507
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Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#422
Tue-06-08-2019, 19:40 PM
(Tue-06-08-2019, 19:37 PM)Bill Wrote: Maybe not exactly like a beetroot, Caroline, but very noticeably red. I should post a couple of pictures. The tummy stuff is a little variable, sometimes barely noticeable, but often like being mildly hung over. I remain a big fan of the stuff, so obviously the benefits outweigh the risks for me.

Cheers

Hi Bill,

Yes, I recognise the tummy feeling. Mostly barely noticeable by me, sometimes inconvenient feeling, but I know that it belongs to it, so I ignore it.

Cheers,
Caroline
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#423
Tue-06-08-2019, 20:12 PM
"Yes, I recognise the tummy feeling. Mostly barely noticeable by me, sometimes inconvenient feeling, but I know that it belongs to it, so I ignore it. "

That's because you are not a sook like I am.

Cheers
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 28,507
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#424
Tue-06-08-2019, 21:23 PM
(Tue-06-08-2019, 20:12 PM)Bill Wrote: "Yes, I recognise the tummy feeling. Mostly barely noticeable by me, sometimes inconvenient feeling, but I know that it belongs to it, so I ignore it. "

That's because you are not a sook like I am.

Cheers

Snigger
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#425
Sun-13-10-2019, 06:09 AM
Another blood test on Friday and little has changed:

[Image: YOuAfwE.jpg]

I have reduced my dose to 430mg, which I take two or three times a week. I works well and I have very little tummy upset with it. I have started taking 5mg folate daily as I read that it may be helpful, but I doubt that it will do a thing. Other than that only a mild cold a few weeks ago.

Cheers
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JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

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Gender: Male
Location: Lancashire UK
Psoriasis Score: 18
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Treatment: Waiting a decsion
#426
Sun-13-10-2019, 08:24 AM
This is one of those 'Nothing has changed ' that is good news.
Now you have been on it so long, basing it on the body saturation theory, have you thought of reducing further Bill?
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#427
Sun-13-10-2019, 09:30 AM
Hi John,

I am all for taking less DMF. After Caroline's comment on lymphocyte count as an indicator of efficacy, I might use the count as well as the disease I can see and feel to determine the dosage. I have tried to use a topical treatment with occlusion as I find it too messy uncovered, but I am yet to find a band aid adhesive that I am not allergic to. I am also on the hunt for a supplement that might help me: I read recently that b vitamins can have mixed results with some conventional treatments, so I am testing that idea. Next blood test in three months.

Cheers
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 28,507
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#428
Sun-13-10-2019, 12:31 PM
Good to read or your “nothing has changed” progress Bill.
Great that you keep experimenting a little. Next time when I will have my bloods checked I will also check my vit D level as my doc has suggested this.
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#429
Tue-15-10-2019, 13:13 PM
Thank you, Caroline. 1000IU of D3 daily is enough. I have read of people taking 25000IU daily, claiming improvement of psoriasis and I cringe: The mum of a woman I work with suffered issues with calcipotriol used on her psoriasis, effectively D3 toxicity. Not that I'd think you'd ever go on a D3 bender, just a D in my bonnet, that's all.

Cheers
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#430
Tue-15-10-2019, 19:37 PM
Always great reading of a "nothing to report post" they are the best Thumb
Keep experimenting Bill and watch out for that D in your bonnet Big Grin
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