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Cosentyx for psoriatic arthritis Fred's journey

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Cosentyx for psoriatic arthritis Fred's journey
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,521
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#351
Wed-07-03-2018, 16:48 PM
(Wed-07-03-2018, 14:53 PM)Fred Wrote:
(Tue-06-03-2018, 22:21 PM)Caroline Wrote: The weather certainly has its influence Fred, although sometimes hard to explain. One would expect the cold weather of the past weeks would have had its influence also.
Anyway, as your next shot is close, not yet to worry I would think.
And well, PsA is known for its effect on strain.

(Wed-07-03-2018, 14:38 PM)jiml Wrote:
(Wed-07-03-2018, 14:19 PM)Fred Wrote: Thank you all. It's been a bit better today, managed to make 3kg of sausages with the old hand mincer so hopefully it was just a blip.

Mmmmm sausages munch

Let’s keep our fingers crossed . It’s awful when these “blips” happen because they shake your confidence in the treatment .... it’s something we all dread, so let’s hope it settles down. And normal life can continue  Thumb

I've never had a normal life, so that should be fun.  Big Grin

hihi, couldn't you get rid of my answer in your multi-quote... ? Big Grin
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#352
Wed-07-03-2018, 17:13 PM
(Wed-07-03-2018, 16:48 PM)Caroline Wrote:
(Wed-07-03-2018, 14:53 PM)Fred Wrote:
(Tue-06-03-2018, 22:21 PM)Caroline Wrote: The weather certainly has its influence Fred, although sometimes hard to explain. One would expect the cold weather of the past weeks would have had its influence also.
Anyway, as your next shot is close, not yet to worry I would think.
And well, PsA is known for its effect on strain.

(Wed-07-03-2018, 14:38 PM)jiml Wrote:
(Wed-07-03-2018, 14:19 PM)Fred Wrote: Thank you all. It's been a bit better today, managed to make 3kg of sausages with the old hand mincer so hopefully it was just a blip.

Mmmmm sausages munch

Let’s keep our fingers crossed . It’s awful when these “blips” happen because they shake your confidence in the treatment .... it’s something we all dread, so let’s hope it settles down. And normal life can continue  Thumb

I've never had a normal life, so that should be fun.  Big Grin

hihi, couldn't you get rid of my answer in your multi-quote... ?  Big Grin

Doh I didn't notice that. How do I get rid of it ?

@Dave watch it.  Spank
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#353
Wed-07-03-2018, 17:14 PM
(Wed-07-03-2018, 17:13 PM)Fred Wrote:
(Wed-07-03-2018, 16:48 PM)Caroline Wrote:
(Wed-07-03-2018, 14:53 PM)Fred Wrote:
(Tue-06-03-2018, 22:21 PM)Caroline Wrote: The weather certainly has its influence Fred, although sometimes hard to explain. One would expect the cold weather of the past weeks would have had its influence also.
Anyway, as your next shot is close, not yet to worry I would think.
And well, PsA is known for its effect on strain.

(Wed-07-03-2018, 14:38 PM)jiml Wrote:
(Wed-07-03-2018, 14:19 PM)Fred Wrote: Thank you all. It's been a bit better today, managed to make 3kg of sausages with the old hand mincer so hopefully it was just a blip.

Mmmmm sausages munch

Let’s keep our fingers crossed . It’s awful when these “blips” happen because they shake your confidence in the treatment .... it’s something we all dread, so let’s hope it settles down. And normal life can continue  Thumb

I've never had a normal life, so that should be fun.  Big Grin

hihi, couldn't you get rid of my answer in your multi-quote... ?  Big Grin

Doh I didn't notice that. How do I get rid of it ?

@Dave watch it.  Spank

Got it.
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,521
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#354
Wed-07-03-2018, 17:45 PM
(Wed-07-03-2018, 17:14 PM)Fred Wrote:
(Wed-07-03-2018, 17:13 PM)Fred Wrote:
(Wed-07-03-2018, 16:48 PM)Caroline Wrote:
(Wed-07-03-2018, 14:53 PM)Fred Wrote:
(Tue-06-03-2018, 22:21 PM)Caroline Wrote: The weather certainly has its influence Fred, although sometimes hard to explain. One would expect the cold weather of the past weeks would have had its influence also.
Anyway, as your next shot is close, not yet to worry I would think.
And well, PsA is known for its effect on strain.

(Wed-07-03-2018, 14:38 PM)jiml Wrote: Mmmmm sausages munch

Let’s keep our fingers crossed . It’s awful when these “blips” happen because they shake your confidence in the treatment .... it’s something we all dread, so let’s hope it settles down. And normal life can continue  Thumb

I've never had a normal life, so that should be fun.  Big Grin

hihi, couldn't you get rid of my answer in your multi-quote... ?  Big Grin

Doh I didn't notice that. How do I get rid of it ?

@Dave watch it.  Spank

Got it.

Cache problem?
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#355
Wed-07-03-2018, 20:49 PM
(Wed-07-03-2018, 17:45 PM)Caroline Wrote:
(Wed-07-03-2018, 17:14 PM)Fred Wrote:
(Wed-07-03-2018, 17:13 PM)Fred Wrote:
(Wed-07-03-2018, 16:48 PM)Caroline Wrote:
(Wed-07-03-2018, 14:53 PM)Fred Wrote: I've never had a normal life, so that should be fun.  Big Grin

hihi, couldn't you get rid of my answer in your multi-quote... ?  Big Grin

Doh I didn't notice that. How do I get rid of it ?

@Dave watch it.  Spank

Got it.

Cache problem?

No it was a stuck quote. I went to another thread and quoted a post and removed selected quotes that were stuck. Thumb
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#356
Mon-09-04-2018, 14:50 PM
Update: I've just got back for dermatology and she gave me three options.

#1 Continue with Cosentyx every three weeks instead of four.

#2 Switch to Taltz.

#3 Try taking some Otezla with the Cosentyx.

I straight away said no to the Otezla, and didn't bother continuing that part of the conversation.

So we spoke about option #1 and #2. And in the end she said it was up to me. I said I would like to continue with Cosentyx as it is working great for the psoriatic arthritis and although Taltz is a similar treatment, I was a bit concerned that it may not be as good as Cosentyx for the psoriatic arthritis. I then went on to say the 3 weeks had helped with the psoriasis, and she said herself it was a lot better since she last saw me.

I said if I could continue on Cosentyx but have something to help with the odd flare up I would be happy (that was when she mentioned Otezla), so she said what about Silkis or Dovobet. I said the diprosone helped the best when I had the flare up last time.

After a bit of thinking I have decided to carry on with Cosentyx at three weeks between shots for the next six months and use Diprosone if I feel I need it.

I felt it was the best for me at the moment as it's only a little bit of psoriasis that is annoying at times, but the summer is coming which means more sun and a happier mental state. After 6 months we will review it again, and that leaves me still with Taltz on the back burner.

Psoriasis Score: Down from 6 to 5.

Psoriatic arthritis score: Still at 1 with the odd little twinge if it's damp, and I have noticed my fingers are a little stiff in the morning but it soon passes once I get moving.

I think Cosentyx is failing me slowly, but I thought get another 6 months out of it and try Taltz in the Autumn if needed was the way to go.
Quote
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,183
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#357
Mon-09-04-2018, 15:12 PM
(Mon-09-04-2018, 14:50 PM)Fred Wrote: Update: I've just got back for dermatology and she gave me three options.

#1 Continue with Cosentyx every three weeks instead of four.

#2 Switch to Taltz.

#3 Try taking some Otezla with the Cosentyx.

I straight away said no to the Otezla, and didn't bother continuing that part of the conversation.

So we spoke about option #1 and #2. And in the end she said it was up to me. I said I would like to continue with Cosentyx as it is working great for the psoriatic arthritis and although Taltz is a similar treatment, I was a bit concerned that it may not be as good as Cosentyx for the psoriatic arthritis. I then went on to say the 3 weeks had helped with the psoriasis, and she said herself it was a lot better since she last saw me.

I said if I could continue on Cosentyx but have something to help with the odd flare up I would be happy (that was when she mentioned Otezla), so she said what about Silkis or Dovobet. I said the diprosone helped the best when I had the flare up last time.

After a bit of thinking I have decided to carry on with Cosentyx at three weeks between shots for the next six months and use Diprosone if I feel I need it.

I felt it was the best for me at the moment as it's only a little bit of psoriasis that is annoying at times, but the summer is coming which means more sun and a happier mental state. After 6 months we will review it again, and that leaves me still with Taltz on the back burner.

Psoriasis Score: Down from 6 to 5.

Psoriatic arthritis score: Still at 1 with the odd little twinge if it's damp, and I have noticed my fingers are a little stiff in the morning but it soon passes once I get moving.

I think Cosentyx is failing me slowly, but I thought get another 6 months out of it and try Taltz in the Autumn if needed was the way to go.

It sounds to me that you have made the correct decision Fred , hopefully the three weeks will be better. I am still sticking with the Stelara on the dermatologist advice but the P is getting worse in a few patches and the PsA is certainly not improving.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#358
Mon-09-04-2018, 15:21 PM
I think it’s a wise decision Fred as you say the summer is coming and that will help a lot
Cutting the time between treatments might leave more in your system and work better
Good to hear you have options if it does go belly up Thumb
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#359
Mon-09-04-2018, 15:21 PM
(Mon-09-04-2018, 15:12 PM)D Foster Wrote: It sounds to me that you have made the correct decision Fred , hopefully the three weeks will be better. I am still sticking with the Stelara on the dermatologist advice but the P is getting worse in a few patches and the PsA is certainly not improving.

I've been doing it that way since November Dave and it has got the psoriasis back down, so another six months is worth a try.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#360
Mon-09-04-2018, 15:22 PM
(Mon-09-04-2018, 15:21 PM)jiml Wrote: I think it’s a wise decision Fred as you say the summer is coming and that will help a lot
Cutting the time between treatments might leave more in your system and work better
Good to hear you have options if it does go belly up Thumb

Thank you Jim. Yes it's got to be worth a try, and like you say if it stops working Taltz is still there.
Quote
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