(Fri-16-06-2017, 10:15 AM)martin222 Wrote:

(Fri-16-06-2017, 01:53 AM)jiml Wrote:

(Thu-15-06-2017, 23:58 PM)martin222 Wrote:

(Wed-14-06-2017, 17:08 PM)martin222 Wrote:

(Wed-14-06-2017, 11:22 AM)jiml Wrote: Hi Martin good luck tomorrow be firm and don't accept more creams .... ask for at least a systemic to help control the disease and be firm and tell them that you have given creams a fair try but aren't prepared to carry on that route, knowing from your searches of the forum that there are effective treatments which you should be given to try . There will be one that will work .....
I look forward to hearing what the dermatologist gives you when you return  
Jim

thanks jim, will let you know..,,,,, well had my hospital appointment today,, and after chest xray and blood test, i begged for cosyntix  or stelera, but no chance its going to be methatrexate. and the doctor said i cant give you cosyntix cos im scared, theres to many unanswered questions about bio drugs n you might develop cancer?? lol but she did say there very very expensive, and that says alot. fobbed off?? maybe 

Hi Martin. I'm glad you have got something even if it is Methotrexate, it's a drug that's widely used and as I think we all warned you, it's one of the drugs that you have to try as it's part of the protocol ...but it could very well work for you....it worked for me ....but I just couldn't tolerate it.....many on here use it and it works for them without any problems

For your dermatologist to suggest the reason for not giving you Cosentyx is for fear of it giving you cancer, is scandalous ....all drugs as you can read on here have to go through rigorous trials before they come to market..The only reason they won't give it is the price is so high and Methotrexate is so cheap,

I wish you luck on the Methotrexate and hope you keep a record here if your progress  

Jim

hi jim, yeah i thought it was out of order her going on about cancer, anyhow i start my methotrexate in two weeks if my bloods are clear and chest xray ok. ill keep you posted, fingers crossed 

I look forward to reading to hearing its successful

Just a note about replying, you need to scroll to bottom of the page and write below the last quote bracket, then it will show more clearly

(Fri-16-06-2017, 10:31 AM)jiml Wrote:

(Fri-16-06-2017, 10:15 AM)martin222 Wrote:

(Fri-16-06-2017, 01:53 AM)jiml Wrote:

(Thu-15-06-2017, 23:58 PM)martin222 Wrote:

(Wed-14-06-2017, 17:08 PM)martin222 Wrote: thanks jim, will let you know..,,,,, well had my hospital appointment today,, and after chest xray and blood test, i begged for cosyntix  or stelera, but no chance its going to be methatrexate. and the doctor said i cant give you cosyntix cos im scared, theres to many unanswered questions about bio drugs n you might develop cancer?? lol but she did say there very very expensive, and that says alot. fobbed off?? maybe 

Hi Martin. I'm glad you have got something even if it is Methotrexate, it's a drug that's widely used and as I think we all warned you, it's one of the drugs that you have to try as it's part of the protocol ...but it could very well work for you....it worked for me ....but I just couldn't tolerate it.....many on here use it and it works for them without any problems

For your dermatologist to suggest the reason for not giving you Cosentyx is for fear of it giving you cancer, is scandalous ....all drugs as you can read on here have to go through rigorous trials before they come to market..The only reason they won't give it is the price is so high and Methotrexate is so cheap,

I wish you luck on the Methotrexate and hope you keep a record here if your progress  

Jim

hi jim, yeah i thought it was out of order her going on about cancer, anyhow i start my methotrexate in two weeks if my bloods are clear and chest xray ok. ill keep you posted, fingers crossed 

I look forward to reading to hearing its successful

Just a note about replying, you need to scroll to bottom of the page and write below the last quote bracket, then it will show more clearly  

ok will do

(Fri-16-06-2017, 10:34 AM)martin222 Wrote:

(Fri-16-06-2017, 10:31 AM)jiml Wrote:

(Fri-16-06-2017, 10:15 AM)martin222 Wrote:

(Fri-16-06-2017, 01:53 AM)jiml Wrote: Hi Martin. I'm glad you have got something even if it is Methotrexate, it's a drug that's widely used and as I think we all warned you, it's one of the drugs that you have to try as it's part of the protocol ...but it could very well work for you....it worked for me ....but I just couldn't tolerate it.....many on here use it and it works for them without any problems

For your dermatologist to suggest the reason for not giving you Cosentyx is for fear of it giving you cancer, is scandalous ....all drugs as you can read on here have to go through rigorous trials before they come to market..The only reason they won't give it is the price is so high and Methotrexate is so cheap,

I wish you luck on the Methotrexate and hope you keep a record here if your progress  

Jim

hi jim, yeah i thought it was out of order her going on about cancer, anyhow i start my methotrexate in two weeks if my bloods are clear and chest xray ok. ill keep you posted, fingers crossed 

I look forward to reading to hearing its successful

Just a note about replying, you need to scroll to bottom of the page and write below the last quote bracket, then it will show more clearly  

ok will do

Yay that's good

I hope you get a good result, Martin. I wouldn't be angry with your dermatologist for warning you about the safety of biologics. There is no systemic treatment for psoriasis without risk. Belinda had an anaphylactic reaction with infliximab and look at Marcia's experience with secukinumab. How would you feel about your dermatologist if you had such a response and were not forewarned?

(Fri-16-06-2017, 10:46 AM)Bill Wrote: I hope you get a good result, Martin. I wouldn't be angry with your dermatologist for warning you about the safety of biologics. There is no systemic treatment for psoriasis without risk. Belinda had an anaphylactic reaction with infliximab and look at Marcia's experience with secukinumab. How would you feel about your dermatologist if you had such a response and were not forewarned?

yeah thats true,, thanks bill. looks like im having methotraxate anyhow. so ill see what happens with that

(Thu-15-06-2017, 23:58 PM)martin222 Wrote: thanks jim, will let you know..,,,,, well had my hospital appointment today,, and after chest xray and blood test, i begged for cosyntix  or stelera, but no chance its going to be methatrexate. and the doctor said i cant give you cosyntix cos im scared, theres to many unanswered questions about bio drugs n you might develop cancer?? lol but she did say there very very expensive, and that says alot. fobbed off?? maybe 

You should get yourself another dermatologist. I'm sorry but for them to say that is disgusting practice, to frighten people with cancer from using the Bio treatments is well out of order. Yet they are happy to let you ruin your liver with methotrexate.  

Sorry Martin I'll get off my soapbox.

(Fri-16-06-2017, 11:16 AM)Fred Wrote:

(Thu-15-06-2017, 23:58 PM)martin222 Wrote: thanks jim, will let you know..,,,,, well had my hospital appointment today,, and after chest xray and blood test, i begged for cosyntix  or stelera, but no chance its going to be methatrexate. and the doctor said i cant give you cosyntix cos im scared, theres to many unanswered questions about bio drugs n you might develop cancer?? lol but she did say there very very expensive, and that says alot. fobbed off?? maybe 

You should get yourself another dermatologist. I'm sorry but for them to say that is disgusting practice, to frighten people with cancer from using the Bio treatments is well out of order. Yet they are happy to let you ruin your liver with methotrexate.  

Sorry Martin I'll get off my soapbox.

to be honest fred. i got the impression it all came down to money. cos she talked about cost a few times .

(Fri-16-06-2017, 11:20 AM)martin222 Wrote: to be honest fred. i got the impression it all came down to money. cos she talked about cost a few times .

Yes probably the case, but they should say that instead of mentioning cancer. I fully understand and agree if there is a high risk it should be not only mentioned but pulled, but it's wrong to frighten people without enough evidence  in my opinion.

Let's say you had 1000 people with p who were unresponsive to topicals and only $2 million annually to spend on medication. Now if 70% responded to DMF powder, you might treat 700 for ~$2100. You could then treat 210 of the remainder with methotrexate for perhaps another $2500. You would then be left with over $20k per person for those unresponsive to either therapy.

Yes, my numbers are silly, but I just wanted to make the point that putting people trough a treatment sieve will at least allow better outcomes for the really tough cases. Public health is about giving the best outcome for as many as you can.

Cheers

Most modern healthcare systems are more concerned about short term costs over long term costs. It doesn't make sense not to provide effective treatment at the start since it's been shown to significantly reduced long term cost.