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Psoriasis Club is a friendly on-line Forum where people with psoriasis or psoriatic arthritis
can get together and share information, get the latest news, or just chill out with others who understand. It is totally
self funded and we don't rely on drug manufacturers or donations. We are proactive against Spammers,
Trolls, And Cyberbulying and offer a safe friendly atmosphere for our members.
So Who Joins Psoriasis Club?
We have members who have had psoriasis for years and some that are newly diagnosed. Family and friends of those with psoriasis
are also made welcome. You will find some using prescribed treatments and some using the natural approach. There are people who
join but keep a low profile, there are people who just like to help others, and there are some who just like
to escape in the Off Topic Section.
Joining Couldn't Be Easier: If you are a genuine person who would like to meet others who understand,
just hit the Register button and follow the instructions.
Members get more boards and privileges that are not available to guests.
OK So What Is Psoriasis?
Psoriasis is a chronic, autoimmune disease that appears on the skin. It
occurs when the immune system sends out faulty signals that speed up the
growth cycle of skin cells. Psoriasis is not contagious. It commonly
causes red, scaly patches to appear on the skin, although some patients
have no dermatological symptoms. The scaly patches commonly caused by
psoriasis, called psoriatic plaques, are areas of inflammation and
excessive skin production. Skin rapidly accumulates at these sites which
gives it a silvery-white appearance. Plaques frequently occur on the
skin of the elbows and knees, but can affect any area including the
scalp, palms of hands and soles of feet, and genitals. In contrast to
eczema, psoriasis is more likely to be found on the outer side of the
joint.
The disorder is a chronic recurring condition that varies in severity
from minor localized patches to complete body coverage. Fingernails and
toenails are frequently affected (psoriatic nail dystrophy) and can be
seen as an isolated symptom. Psoriasis can also cause inflammation of
the joints, which is known as (psoriatic arthritis). Ten to fifteen
percent of people with psoriasis have psoriatic arthritis.
The cause of psoriasis is not fully understood, but it is believed to
have a genetic component and local psoriatic changes can be triggered by
an injury to the skin known as Koebner phenomenon. Various
environmental factors have been suggested as aggravating to psoriasis
including stress, withdrawal of systemic corticosteroid, excessive
alcohol consumption, and smoking but few have shown statistical
significance. There are many treatments available, but because of its
chronic recurrent nature psoriasis is a challenge to treat. You can find more information
Here!
Got It, So What's The Cure?
Wait Let me stop you there! I'm sorry but there is no cure. There are things that can help you
cope with it but for a cure, you will not find one.
You will always be looking for one, and that is part of the problem with psoriasis There are people who know you will be
desperate to find a cure, and they will tell you exactly what you want to hear in order to get your money. If there is a
cure then a genuine person who has ever suffered with psoriasis would give you the information for free. Most so called cures
are nothing more than a diet and lifestyle change or a very expensive moisturiser. Check out the threads in
Natural Treatments first and save your money.
Great so now what? It's not all bad news, come and join others at Psoriasis Club and talk about it. The best help is from accepting it and talking
with others who understand what you're going through. ask questions read through the threads on here and start claiming
your life back. You should also get yourself an appointment with a dermatologist who will help you find something that can
help you cope with it. What works for some may not work for others
Posted by: Fred - Sun-05-01-2014, 15:59 PM
- Replies (1)
Following a long time trying I have found a solution so you can now post live internal links on Psoriasis Club, It's been tested by out chief testing department But if you do find any problems please let me know.
#1: This one is for adding a link to another thread in your post.
Add the code below to your post but change *** for the tid number. you will find this either by looking at the URL in your browser it will look like this: https://psoriasisclub.org/showthread.php?tid=314 or some of you can find it by hovering your mouse over the thread title.
So to add a link to "What age did you get psoriasis" you would remove *** and put 314 (which is the tid) using the code below in your post.
#2 This will add a link to a post in another thread.
This time you are looking for the pid number and adding it to the code below. The pid number can be found by clicking on the right of a post in a thread or hovering over the number. it looks like this: https://psoriasisclub.org/showthread.php...93#pid4493
So to go to post number 10 in the above thread you would add 4493 to the code below.
#3 This one will add a link in your post to a board.
Find the fid number by going to your chosen board or hover over it's description, it looks like this: https://psoriasisclub.org/forumdisplay.php?fid=7
I have had psoriasis since I was 17 and as I have said in other posts I have had varying success with all sorts of treatments.
My latest treatment Fumaderm has been very successful keeping my psoriasis at bay, until the last few days.
I have been really stressed with the worry of radiotherapy for my other problem not the psoriasis. Now I have noticed 3 or 4 plaques starting up on my body and arms.
I am hoping this is stress related and a few stiff gins will pull me through..
In the meantime to supplement my Fumaderm I will apply a little dermovate and hope it helps
Posted by: Fred - Fri-03-01-2014, 21:53 PM
- Replies (13)
The FBI have issued a warning that counterfeit cosmetics can cause psoriasis
I'm not publishing this as I think it's true that they can cause psoriasis or to start a debate about the FBI, but you are welcome to comment and I thought you may be interested.
Quote: You see what appears to be your favorite brand name eye shadow, eye liner, or fragrance for sale at a flea market or on an unfamiliar website. You notice the price is lower than what you normally pay at your favorite retail store or through an authorized online dealer.
Before you hand over your hard-earned money, though, keep this in mind: It could be counterfeit, and—in addition to buying something that’s not the real deal—you are also risking your health by buying and using products that may contain substandard or even dangerous substances.
The National Intellectual Property Rights (IPR) Center—of which the FBI is a partner—wants you to know that the volume of all sorts of counterfeit cosmetics and fragrances coming into the U.S. is definitely on the rise…that’s according to our industry partners as well as law enforcement. Why is this happening? Because the Internet has given counterfeiters widespread access to customers, and because criminals increasingly view dealing in counterfeit personal care products—as well as other knock-off consumer goods as well—as a relatively low-risk crime since many of the perpetrators are located outside of the U.S.
Government and industry studies and testing have discovered that some of the ingredients that make up counterfeit cosmetics and fragrances are downright dangerous:
Phony cosmetics often contain things such as arsenic, beryllium, and cadmium (all known carcinogens) along with high levels of aluminum and dangerous levels of bacteria. Some of these products have caused conditions like acne, psoriasis, rashes, and eye infections.
Counterfeit fragrances have been found to contain something called DEHP, classified by the Environmental Protection Agency as a probable human carcinogen. These phony perfumes and colognes, which sometimes contain urine as well, have been known to cause serious skin rashes.
Indicators of Counterfeits
- The packaging differs slightly from the authentic brand (might be a different color or different lettering on the product), and/or the product’s wrapping appears haphazard.
- The product is being advertised as a “limited edition” even though the authentic manufacturer doesn’t offer it as a limited edition.
- The price is either slightly or drastically lower.
- For cosmetics, the product’s consistency or texture just doesn’t feel or look like the authentic brand.
- For fragrances, there’s something a little off about the scent, and the color of the fluid in the bottle might be different than the original.
- For both products, they’re being sold at non-authorized retailers, including flea markets, mall kiosks, and over the Internet.
It's refreshing to come to this website and be able to go from post to post without annoying popups and ads at the top and bottom of pages.
I respect Fred for not buckling in to google just to get higher listing on their search engine.
I think we should all try to help Fred get higher in the rankings where possible as requested in the newsletter.
I am sure Fred has the strength of character to resist requests for live links and advertising. He has said if you want a link made live and it is deemed suitable he will make it live. After all it is his site and he makes the of which there aren't many.
Long may the site remain independent and I am sure it is one of the reasons people keep coming back time and time again
Has anyone tried black seed oil? i was healed by 50% after my first bottle. i am on my 4th bottle now and healing has stalled but i have no new legions and no spreading. i am very happy with this.
I am John Redfern, 34, living with psoriasis for 20 years now, but last 2 have been more or less psoriasis free (or I should say under control).
I would like to tell people how I have gotten it under control and it is basically as follows
1. Cut out the crap food - no gluten, no sugar, no dairy, no nightshades.
2. Detox using the following colon cleanse method - Bentonite + Psyllium Husk drink. Also start taking an anti-fungal like Caprylic Acid 350 mg daily to kill any yeast overgrowth and add a probiotic to help your leaky gut heal.
3. Start taking Vitamin D3 daily along with either fish oil or turmeric supplements (both are highly anti -inflammatory)
4. Start drinking a raw vegetable shakes (1.5l over course of the day)
5. Start taking a Multi - digestive enzyme that includes Bethaine HCL before meals to break down your protein intake more efficiently
6. Use extra virgin coconut oil or jojoba oil as a moisturizer 3 times a day minimum
7. De-stress through one or all of the following; exercise, massages, acupuncture, meditation, yoga
8. Last but not least - Talk about it, don't bottle up your feelings and don't be embarrassed to tell people you have psoriasis. Everyone has their own problems, so your problem will be of little consequence to them.
Within 6 to 12 weeks you should see your skin turning pink and healing, you can cut back on the detox treatments and keep it under control by just taking a strong multivitamin daily and continue to moisturize with the jojoba oil twice a day. Just make sure you stick to the healthy diet.
I have been looking looking for a soap free emollient based shampoo. So far I have come across a lot of so called Sulfate or SLS free shampoo's but when I look at the ingredients they still contain some kind of related soap(or detergent I should say) like chemical like sodium cocoate or laurate or something similar.
I have had some success with Aquanil which main ingredients include water and glycerin but there is a small amount of SLS and it seems my scalp psoriasis simply cannot tolerate any amount of any detergent like substance.
Posted by: Sandra - Tue-17-12-2013, 01:42 AM
- Replies (12)
Hi all,
Thought I would let you know how I have been getting on with the UV treatments. Well I have been dashing from work to hospital back to work, 3x weekly, absolutely knackered! But boy has it been worth it! This time round, I have had such an amazing result. So far half of my psoriasis has cleared and the other half well on it's way! I still have another 4 weeks to go! I can't believe it! For the first time in years, I can see normal skin! I haven't flaked everywhere in a fortnight. I have no idea why it has worked so well this time, just ecstatic that it has. My hands are clear, elbows and arms clear, thighs clear, just legs and feet to go! I have had this treatment before and it has always helped but not to this extent. I also am so brown you'd think I was just back from some exotic holiday! So I am going to enjoy it while I can and for however long it lasts.
Hope you all have a good xmas.
Sandra
Posted by: Buttermak3r - Fri-13-12-2013, 21:49 PM
- No Replies
I had another post on this forum where I said baking soda will cure your psoriasis. I may have been a little bold and arrogant, but it did greatly reduce my psoriasis. If I were to take before and after pictures, I would say that my psoriasis got significantly better.
Now I believe I have found something that works even better than baking soda: --- Eucalyptus oil. With baking soda, it took a looong time to work. It tooks months of consistant application. And it would cause the application area to sweat profusely, and it would smell funky.
But with Eucalyptus oil, all you have to do is apply it strait to your skin undiluted (you can also use a carrier oil), and it's alot less messy than baking soda (if you apply it undiluted). A possible downside depending on how you look at it, you would now smell like eucalyptus oil.
I've been seeing way faster results with Eucalyptus oil than I did with baking soda, so Eucalyptus oil is the clear winner for me: No sweaty skin, less applications, faster results, smells ok.
With both baking soda, and Eucalyptus Oil, there is some minor discomfort involved. With baking soda, the salt in it would cause stinging to the raw red skin.
With Eucalyptus oil, the eucalyptol (I think) causes a super cooling sensation similar to menthol. So the super cooling sensation does sting, but it's less painful than baking soda.
I don't have red raw skin anymore because of the baking soda treatment, so I can imagine that Eucalyptus oil would be even worse for red raw skin. So... if you can take it strait, I would try to do that, but if not, you can mix it into a carrier oil, or you can add drops of oil to water bottle, and some water to it, swirl it around, and pour it on the affected area.
With both baking soda and Eucalyptus oil, it gets a little worse before it gets better. After applying these treatments, your skin will get a little more red and a little more sensitive, but after a few days, it gets better.
How to buy:
You can get a 1 oz bottle for $5 on amazon (including shipping) to try it out.
If you buy larger than the 1oz bottle, I can't guarantee that there will be a convenient built in euro dropper cap. I think 2oz should have a euro dropper cap, and I think I read that 4oz and larger doesnt have a euro dropper cap.
I bought the 1oz bottle from amazon just to try it, but if I buy it again I will buy it from bulkapothecary.com. They have good prices and don't gouge you on shipping if you order a few small things. If you live in the US I would definitely use them. If you live in Canada, newdirectionsaromatics.com might be cheaper.
They offer 4 different kinds of Eucalyptus oil. Whatever you do, don't pick Eucalyptus lemon oil, because it's like 75% citronellal instead of 70% - 87% eucalyptol like the other three.
If you order from bulkapothecary, your going to either get a dropper bottle with a built in dropper (my preferred way) or you can get a small dropper. I got one at my community college store for super cheap.
Or you could get a glass roll on bottle from some health food stores like whole foods, or at dollar stores if they carry them.
Another essential oil worth considering is camphor oil if you have an itchy scalp is camphor. It's stupid cheap from bulkapothecary. It may work for you, or it may not. No guarantees
Posted by: Caroline - Thu-12-12-2013, 08:21 AM
- Replies (9)
Dear Jim,
Can you take a look at this? LINK REMOVED
I think it is a scary article for you and for me. Look at the line at the end of "commercial", which says:
Quote: Dimethyl fumarate in TECFIDERA has been determined to be a new active substance by the European Medicines Agency's Committee for Medicinal Products for Human Use, which would mean regulatory exclusivity in the EU for ten years (22 November 2013)
The whole article is a type of English that is hard for me to understand, so maybe you can take a look at it and translate it to somewhat more decent english for me.
What I understand of it is that this (secret?) agency, the European Medicines Agency's….. and some (never heard of), is deciding all kinds things behind our backs and what they now seem to decide is that DMF will be a substance that will be exclusively locked to big pharma (won't say their name over here as the bot will find it then).
That's very bad for your Fumaderm, I see coming that it will be replaced for the same but then another name and 20x more expensive, and bad for me, as it will not be allowed anymore to use it over here and produce my medication.
Took a look at the Agency also, they seem to have carefully ruled for themselves, that you only can join, or come in through a long road of connections internally. So there is no public control over this Agency.
Mother of a sweet little fice year old. Suffering.
last winter was bad. I took soap away. Made natural detergents. Used jojoba oil to moisturize.
this year is worse. We are also big swimmers. In a heavilychlorinated pool. Looking for naturaltips.
thank you
I'm Michael Pollack from beautiful Brooklyn NY and just joined today.
I've had mild plaque Psoriasis for 10 years or so.
Been to 3 Dermatologists - all prescribed steroid creams which did nothing.
I've been treating myself with topical Glycerin and Witch Hazel, topical Coal Tar
cream and topical Salicylic Acid cream.
I've been taking 3000mg Black Cumin Seed Oil orally daily (1500mg AM 1500mg PM)
daily.
I also take Ginseng daily and am drinking American Saffron (Safflower ) tea twice daily (as recommended by Edgar Cayce).
Nice to meet you all - I feel that most of you are suffering much worse than I am
as I never have more than 15 plaques on my body. All the plaques are on my arms and legs.
I hope to contribute and learn here.
PS: I am a volunteer Tour Guide in New York City - an organization called
Big Apple Greeters which gives free 'tours' of the city to visitors.
If any of you plan on visiting you can contact me to arrange a free walk
around the city with a NY native - me!
Posted by: Fred - Tue-03-12-2013, 12:54 PM
- No Replies
This study published in The British Journal of Dermatology assess the safety profile of Stelara (ustekinumab) in the treatment of patients with psoriasis who have concomitant hepatitis B or hepatitis C.
Quote:Objective:
To assess the safety profile of ustekinumab in the treatment of patients with psoriasis who have concomitant hepatitis B or hepatitis C.
Methods:
This study included 18 patients with concurrent psoriasis and hepatitis B virus (HBV) infection (14 patients) or hepatitis C virus (HCV) infection (four patients) who were treated with at least two ustekinumab injections. Viral loads were measured at baseline and each time before the administration of ustekinumab. Relevant clinical data were recorded.
Results:
Among 11 patients positive for hepatitis B surface antigen (HBsAg), two out of the seven (29%) patients who did not receive antiviral prophylaxis exhibited HBV reactivation during ustekinumab treatment. No viral reactivation was observed in the three occult HBV-infected patients (HBsAg-negative/hepatitis B core antibody-positive patients). One patient with HCV, liver cirrhosis and treated hepatocellular carcinoma (HCC) experienced HCV reactivation and recurrent HCC during the ustekinumab treatment. No significant increase in aminotransferase levels was observed in any patient.
Conclusions:
Antiviral prophylaxis appears to minimize the risk of viral reactivation in patients with concurrent psoriasis and HBV infection. Without effective anti-viral prophylaxis, the risk/benefit of ustekinumab treatment should be carefully assessed in patients with psoriasis and HBV or HCV infection and/or HCC. Close monitoring for HBV and HCV viral load is recommended, particularly for patients with high-risk factors. Serum aminotransferase determination may not be useful for early detection of viral reactivation.
Posted by: Fred - Tue-03-12-2013, 12:42 PM
- No Replies
This is a meta-analysis of 59 studies with up to 18,666 cases and 50,724 controls which quantifies the level of cardiovascular disease risk factors in patients with psoriasis.
Objectives:
To quantify the level of cardiovascular disease risk factors in order to provide additional data for the clinical management of the increased risk.
Methods:
This was a meta-analysis of observational studies with continuous outcome using random-effects statistics. A systematic search of studies published before 25 October 2012 was conducted using the databases Medline, EMBASE, International Pharmaceutical Abstracts, PASCAL and BIOSIS.
Results:
We included 59 studies with up to 18 666 cases and 50 724 controls. Psoriasis cases had a higher total cholesterol [weighted mean difference 8·83 mg dL−1, 95% confidence interval (CI) 2·94–14·72, P = 0·003 (= 0·23 mmol L−1)], higher low-density lipoprotein cholesterol [9·90 mg dL−1, 95% CI 1·56–18·20, P = 0·020 (= 0·25 mmol L−1)], higher triglyceride [16·32 mg dL−1, 95% CI 12·02–20·63, P < 0·001 (= 0·18 mmol L−1)], a higher systolic blood pressure (4·77 mmHg, 95% CI 1·62–7·92, P = 0·003), a higher diastolic blood pressure (2·99 mmHg, 95% CI 0·60–5·38, P = 0·014), higher body mass index (0·73 kg m−2, 95% CI 0·37–1·09, P < 0·001), higher waist circumference (3·61 cm, 95% CI 2·12–5·10, P < 0·001), higher fasting glucose [3·52 mg dL−1, 95% CI 0·64–6·41, P = 0·017 (= 0·20 mmol L−1)], higher nonfasting glucose [11·70 mg dL−1, 95% CI 11·24–12·15, P < 0·001 (= 0·65 mmol L−1)] and a higher HbA1c [1·09 mmol mol−1, 95% CI 0·87–1·31, P < 0·001 (= 2·2%)].
Conclusions:
From a preventive medicine perspective, the weighted mean differences between cases and controls are significant, and therefore relevant to the clinical management of patients with psoriasis.
Thought this would be appropriate place for this question.
I have a problem, my psoriasis. It's reasonably bad. I have "paint brush psoriasis" covering my whole body with the plaque psoriasis on knees, elbows and scalp. I moisturise all the time probably 4-5 times a day with phototherapy treatment starting in a few days. My problem/question is;
The constant persistent f******g shitting ITCHING! ITCHING! ITCHING!!! To the point it's driving me wild, my psoriasis is so F'ing sore anyway but scratching that itch is all I can do, to the point I make myself bleed under the 'scab' so to speak..... I know this makes it worse.
Any ideas or known cures for itch relief would be very much appreciated before this happens
Posted by: Fred - Fri-29-11-2013, 14:29 PM
- Replies (18)
The Queen Mary University of London is working with King’s College London, the University of Manchester, Liverpool University and Newcastle University to develop a targeted approach to psoriasis treatment.
Quote: The partnership – named Psoriasis Stratification to Optimise Relevant Therapy (PSORT) – also includes 10 pharmaceutical and diagnostics companies, the Psoriasis Association and NHS partners supporting healthcare of patients.
Professor Richard Trembath, Vice Principal for Health at Queen Mary University of London, Barts and The London School of Medicine and Dentistry, comments: “Stratified medicine is central to the progress of our healthcare and applying this approach to a condition such as psoriasis, where identifying the most effective treatment is difficult, is an area we can hopefully make a huge difference.
"Through this partnership we will use cutting-edge techniques to assess factors – such as drug levels in the body, genetic make-up, skin and blood differences – which may affect how successful various psoriasis treatments are for individuals. We believe this approach will lead us to better evaluate which treatment is right for different patient groups and people with psoriasis will receive tailored treatment which is ultimately more effective. This is an exciting project and we look forward to working with our partners and showcasing the expertise and knowledge Queen Mary has to offer.”
The Medical Research Council has invested £5 million in funding for this project and industry partners have contributed an additional £2 million. PSORT is also supported by the NIHR Biomedical Research Centre at Guy's and St Thomas' and King’s College London.
The study have been designed to ensure outcomes meet the needs of patients, the healthcare system and industry, as well as informing future medical research. The findings will also help scientists to understand the mechanics behind this difference in response from patients, and may improve treatment of other immune inflammatory diseases, such as arthritis and Crohn’s disease.
Have had psoriasis that long I can't remember not having it. Usually just had plaque on my elbows and knees..... Until it disappeared for months on end..... Happy day!
It is now back with vengeance and around 50% of my body is covered! I hide away from my wife, can no longer take the kids swimming. Had a little cry about it.
This is my first time seeking outside help but feel pretty low and desperate.
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Psoriasis Cure!
How many people have Psoriasis?
In 2012 there were approximately 36.5 million prevalent cases of psoriasis, and by 2022, GlobalData epidemiologists forecast that this figure will reach approximately 40.93 million.
The condition affects individuals of both sexes and all ethnicities and ages, although there is a higher prevalence of psoriasis in the colder, northern regions of the world.
The prevalence of psoriasis in the central region of Italy is 2.8 times greater than the prevalence in southern Italy.
Caucasians have a higher prevalence of psoriasis compared with African-Americans, but African-Americans in the US tend to suffer from a more severe form of the disease.