Kat's Skyrizi Journey Part 2

[Kat]

As to skin, I think it's a combination helping and mostly the topical although the topical didn't work on it's on so I'm clueless.  I'm going on the downside of the skyrizi in terms of being in the middle of injections so I don't know if that means anything.  I don't think it's just Skyrizi working or things wouldn't go backwards when I stopped the shampoo and topical.  Of course I could have only used one, got better and then have it get worse as psoriasis can be unpredictable so......  I did end up using the topical as I felt the itching increase and although I'd like to know what is helping the most, my goal is to feel better.


Ankle is... I don't know it's weird.  First it's both ankles that bother me and have been for ... about 5 years I think.  My right ankle "was" the worst.  Rotating and flexing every morning before I get out of bed or after sitting is a must or I can't really walk until the joints warm up.  (Good advice Forest, as it does help normally)  For the past couple of months my left ankle has been acting up.  I honestly thought I had sprained it as stepping on that foot hurt like !!!! but then it would just quit hurting.  So I went to a local orthopedic clinic and the doctor did xrays and said it could be an old injury and that it was probably arthritis acting up.  This was a different doctor than normal it was a walk in type clinic that sees you that day type place I thought I would try.  But that doesn't really help me out as it still happens and it's out of the blue.  When it's hurting, I can barely walk and I never know when it will be hurting and then it just stops.  One night it kept me away all night hurting and I was laying down, that has only happened once.  I tried stretching and rotating but it was more painful (a LOT more) to move it than keep it still.  I don't know what to do about ankle.  I should probably go back to the rheumatologist, who I haven't seen since covid, as he's the one who said psoriatic arthritis for my ankles.

I was hoping I could say Skyrizi helped or even say it isn't helping but I can't really say either way.  Skin is better but I don't know it it's Skyrizi or not and ankles aren't better but I don't know what's wrong with them for certain either. 

[Fred]

ankles aren't better but I don't know what's wrong with them for certain either. 

Then go and get them checked out

[Kat]

ankles aren't better but I don't know what's wrong with them for certain either. 

Then go and get them checked out 

I have! I was told I have psoriatic arthritis.

Then when left ankle started up I went to ortho and he did an xray and he said it's from possibly an old injury and also arthritis.

So... I guess I know what's wrong so I should say I don't know what to do to help them feel better at this point nor does it seem the doctors do either. I just don't know if they're correct as it doesn't seem like my one ankle should be hurting the way it does. I guess the body is just wearing out.

[Fred]

  I guess the body is just wearing out. 

I know that feeling

[Forest Walker]

I think a re-visit to the rheumatologist is needed.  Maybe Fred's magic French injection substance (he did say he didn't know what was in it) would help.  

When it's worst, does the pain of bearing weight create a fall risk?  Maye a walker or a good cane would help to take some of the weight off the ankle on the really bad days.  Or a heating pad wrapped around the ankle while resting may help?

[Kat]

I think a re-visit to the rheumatologist is needed.  Maybe Fred's magic French injection substance (he did say he didn't know what was in it) would help.  

When it's worst, does the pain of bearing weight create a fall risk?  Maye a walker or a good cane would help to take some of the weight off the ankle on the really bad days.  Or a heating pad wrapped around the ankle while resting may help?

I don't think it's a big fall risk. Yes when at it's worse I can barely walk as it causes pain. I have a cane and tried it but you still have to put weight on that foot when walking so it doesn't help much. At home I usually stay near the wall or furniture so if I need a second I have some support as the wall and cane serve the same purpose of just helping with balance. But I can still just put weight on the other foot without holding on to anything or feeling like I will fall.

When it was a constant off and on, I did take cane with me (and of course didn't need) when out so I stopped with that. I never know when it will come on. Actually I have thought about where the pain actually is.... I have stiffness in the back of my ankle BUT the sharp pain I get is more in the front of the ankle. It usually lasts about 5 minutes and then goes away. I have had times when it lasts for a couple of hours and times it lasted only one step and I've had days where it's not present.

The doctor gave me a topical ointment... it's a gel for arthritis to help with pain. However, since I never know when it will come on and the ointment can take 7 days to even start working, I didn't see the point unless I wanted to use it daily as a precaution and I'm not fond of that idea. And honestly since it doesn't work at the time of the pain, I had forgotten I even have it. I felt it was his way of putting a bandaide on it. Hopefully that saying translates. If not then I meant I think he couldn't offer any suggestions so gave me an ointment so it would appear like he did something to help.

Usually it goes away quickly so I haven't really tried icing it or heat. Early on when I thought I had sprained it (before realizing it would go away, come back, go away) I iced it. Since it does come and go it doesn't appear to be an injury type thing unless it is an old injury coming back to haunt me at times. Age is funny that way.

[Fred]

Age is funny that way. 

Makes me laugh every day.

[Forest Walker]

Fingers crossed that you have more pain-free days with that ankle than painful days.

[Kat]

Age is funny that way. 

Makes me laugh every day. 

Fingers crossed that you have more pain-free days with that ankle than painful days.

Thanks Forest

[Caroline]

I think a re-visit to the rheumatologist is needed.  Maybe Fred's magic French injection substance (he did say he didn't know what was in it) would help.  

When it's worst, does the pain of bearing weight create a fall risk?  Maye a walker or a good cane would help to take some of the weight off the ankle on the really bad days.  Or a heating pad wrapped around the ankle while resting may help?

I don't think it's a big fall risk.  Yes when at it's worse I can barely walk as it causes pain.  I have a cane and tried it but you still have to put weight on that foot when walking so it doesn't help much.  At home I usually stay near the wall or furniture so if I need a second I have some support as the wall and cane serve the same purpose of just helping with balance.  But I can still just put weight on the other foot without holding on to anything or feeling like I will fall.

When it was a constant off and on, I did take cane with me (and of course didn't need) when out so I stopped with that.  I never know when it will come on.  Actually I have thought about where the pain actually is....  I have stiffness in the back of my ankle BUT the sharp pain I get is more in the front of the ankle.  It usually lasts about 5 minutes and then goes away.  I have had times when it lasts for a couple of hours and times it lasted only one step and I've had days where it's not present.

The doctor gave me a topical ointment... it's a gel for arthritis to help with pain.  However, since I never know when it will come on and the ointment can take 7 days to even start working, I didn't see the point unless I wanted to use it daily as a precaution and I'm not fond of that idea.  And honestly since it doesn't work at the time of the pain, I had forgotten I even have it.  I felt it was his way of putting a bandaide on it. Hopefully that saying translates.    If not then I meant I think he couldn't offer any suggestions so gave me an ointment so it would appear like he did something to help. 

Usually it goes away quickly so I haven't really tried icing it or heat.  Early on when I thought I had sprained it (before realizing it would go away, come back, go away) I iced it.  Since it does come and go it doesn't appear to be an injury type thing unless it is an old injury coming back to haunt me at times.  Age is funny that way. 

Inconvenient to never know what it comes. Gives an unreliable feeling.

I think Bandaide, would have the same meaning as the Dutch “een doekje voor het bloeden”, which would again translate in English to: A wipe for the bleeding. In other words, he gives something but it is useless.