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Psoriasis Club › HealthHealth Boards › Introductions v
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hello everybody

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hello everybody
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,478
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#11
Fri-27-01-2023, 21:42 PM
(Fri-27-01-2023, 11:52 AM)aljaxon Wrote: Hi caroline i see this thread will get closed in 90 days so we better be quick with this. do you ride motorbikes? if so can i ask what you've got?

Look in this thread [Group Specific] for more information on the bike subject…. Big Grin
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,852
Threads: 3,885
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#12
Fri-27-01-2023, 21:48 PM
(Fri-27-01-2023, 21:42 PM)Caroline Wrote:
(Fri-27-01-2023, 11:52 AM)aljaxon Wrote: Hi caroline i see this thread will get closed in 90 days so we better be quick with this. do you ride motorbikes? if so can i ask what you've got?

Look in this thread [Group Specific] for more information on the bike subject….  Big Grin

It's locked do you want it opened again ?
Raxyl Offline
100 + Member living the dream

100 + Member I Just Cant Stop !
Posts: 7,373
Threads: 35
Joined: Nov 2017
Gender: Male
Location: Launceston, Tasmania
Psoriasis Score: 2
Treatment: Cosentyx
#13
Fri-27-01-2023, 23:42 PM
Welcome to the forum Alan, we are a friendly bunch here and there is a lot of knowledge about psoriasis, not from me but the others are awesome  Big Grin
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#14
Sat-28-01-2023, 01:29 AM
Hi Alan and a warm welcome to the club from me, I hope you find lots of things to interest you here, there is a lot of knowledge about psoriasis and it's treatment here and a friendly membership always ready to offer advice, having said that I know very little about biological treatments having never needed to use them yet as my treatment has kept me clear for over 10 years
Look around the forum there is a vibrant off topic section that can be fun to peruse and if you're inclined join in  Thumb
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#15
Sat-28-01-2023, 01:59 AM
(Fri-27-01-2023, 18:46 PM)aljaxon Wrote:
(Fri-27-01-2023, 17:05 PM)Kat Wrote: Welcome Alan!

Psoriasis can certainly be hard on self esteem, but don't let it define you.  It is nice to be around people who understand the struggles of psoriasis and I'm glad you found your way here.  We're a friendly, supportive group and people here are always willing to try to help if they can on answering questions. 

Kat

its a bit late now re the defining  Kat,  ive had 40 odd years of lurking in the shadows.
but as im nearing my twilight years nothing really matters anymore and things dont bother me like they used to.

Oh it's never too late!  I was a bit of a shy person so lurked in the shadows well before I was diagnosed with psoriasis.  And I'm a bit older than you and I agree things don't bother me as much as they used to as my priorities are definitely different now but I don't think I could ever say nothing really matters.  I matter.  You matter.  We all matter.  Smile

In your introduction you say you "have finally got used to the shame of looking diseased and ugly."  I have and still do struggle with how I look with and without psoriasis so I do understand how hard it can be.  But we are all more than just people with psoriasis, there is so very much more to each of us here and that includes you.  This is a great support group and people here understand.  But I don't like them because they have psoriasis and can relate.... maybe it started that way.  Now I like them for the kind, caring, understanding people that I have learned them to be. 

So I stick by saying it's never too late.  Smile  Even this old dame here keeps learning new things about myself and I even like a few of them. But I'll be a work in progress the rest of my days. 

I don't think I could ever say I think psoriasis is beautiful.... but I will say the people who have it still are.
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,478
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#16
Sat-28-01-2023, 08:27 AM
(Fri-27-01-2023, 21:48 PM)Fred Wrote:
(Fri-27-01-2023, 21:42 PM)Caroline Wrote:
(Fri-27-01-2023, 11:52 AM)aljaxon Wrote: Hi caroline i see this thread will get closed in 90 days so we better be quick with this. do you ride motorbikes? if so can i ask what you've got?

Look in this thread [Group Specific] for more information on the bike subject….  Big Grin

It's locked do you want it opened again ?

You could open it, it seems that one answer is missing.


Lovely definition of the club, Kat.
Indeed, I feel exactly the same, being here among kind en open friends, a bit of fun, constantly learning, reading thoughts and ideas of you all.
glenda grant Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 2,887
Threads: 8
Joined: Aug 2014
Gender: Female
Location: New Salem, Pennsylvania
Treatment: biologics
#17
Sun-29-01-2023, 06:44 AM
Welcome Alan to our club there is lots to learn here! I haven't been here for awhile as we had lost our youngest daughter to bone cancer .It has been hard on all of us. But God has helped us thru our sorrow. I am going to be on the Club more now i got a new laptop!
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,478
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#18
Sun-29-01-2023, 08:44 AM
Great Glenda,
Love to hear more of you coming time.
Cheers
Caroline
aljaxon Offline Author
Member


Posts: 18
Threads: 2
Joined: Jan 2023
Gender: Male
Location: east yorkshire uk
Treatment: bimzelx
#19
Sun-29-01-2023, 22:51 PM
thanks for the kind sentiments people!!!
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,135
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#20
Sat-25-02-2023, 18:46 PM
Hi Alan welcome to the club. Have a good look around and if you want to know anything about the P I am sure that you will find an answer as it's got more information than anywhere else I know. Don't know where you are in East Yorkshire but I'm in there somewhere as well. It's a great place to be on here and I am sure that you will find it great.Take care David.
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