Need PsA and Ps help

[Caroline]

Oh… and I just guessed you were British because of the choice of your name .. but it must be the remaining British genes that have caused that.

[Functionalfool]

That is excellent information! I will def look into that. Some of those I eat, others not so much, but there is no such thing as bad information! I'm new to this and I'm still learning. It took almost a decade before I finally got diagnosed because it finally manifested itself on my arm where a doctor could give me a diagnosis. I had a 'sprained' wrist like 6 times before I was diagnosed. To the point they had me sleeping with wrist guards!

[Functionalfool]

I occasionally drink wine but I can cut it out. What about general fruit juice? Apple, orange, pineapple banana, etc? Should I limit that? 

You scared me when you started talking about not drinking alcohol lol. I primarily drink beer which is on your list of ok drinks lmao

[Caroline]

I occasionally drink wine but I can cut it out. What about general fruit juice? Apple, orange, pineapple banana, etc? Should I limit that? 

You scared me when you started talking about not drinking alcohol lol. I primarily drink beer which is on your list of ok drinks lmao

Hihi… yes, alcohol may be a thinghy for many. I quit it about a year ago, now I only drink virtual white wines in the psoriasisclub Bar. For me the quitting has had no mentionable effect, but now I am used to always feel very good in the morning, so I keep it like that.

Beer is no problem according to the list indeed.
I think you can drink that juices, but avoid the skins of them, so peel them off very well. Fresh orange juice should also not pose a problem, as long as the skin is not processed in making it.

[Fred]

You will read a lot of stuff saying this is good or this is bad, but there is no real proof and it could be that placebos work for some people.

I say eat and drink (with the exception of drinking with methotrexate) what you like, build up a good relationship with your dermatologist to find what works for you and enjoy life.

Eat you favourite foods, drink your favourite drinks and you feel happy, feel happy and you get a positive attitude, being positive is one of the best treatments.

At the end of the day psoriasis and psoriatic arthritis effects us all in different ways, it's all about management and learning to live with it.

 

[Functionalfool]

Thank you for that, Fred! That was very uplifting and I think I needed to hear that!

[Kat]

Diet can be very confusing. Caroline mentioned nuts as a no no for her, and a dietician just told me to eat more nuts as a healthy fat and also to help with inflammation. BUT... rarely do each of us have one condition so in my case we were talking about not just psoriasis but blood sugar, liver, etc and the advice changes accordingly. I've been on a few diets this past year, I gave up tomatoes for awhile but noticed no change in psoriasis or arthritis. I even tried Vegan for a short time (due to liver) and no change for me when it came to psoriasis. I'm not saying diet doesn't help, I firmly believe that what we put into our bodies matter but what works for one person just doesn't seem to work for another so it can be quite difficult to find out via diet what helps.

Thankfully there are a lot of choices in treatments. As you read more posts here you will see that pretty much each one of us has had our own journey and although similar at times, also vastly different as to what has worked or not. That is the really tricky part, understanding that what works for some just doesn't work for you. Also when others say something didn't work for them, it could be the one that helps. Another thing I've noticed is that some treatments take quite some time to work for some and yet seem to work quickly for others. So it's important not to gauge your journey based on someone else.

There are no overnight fixes sadly. And psoriatic arthritis is a progressive disease with different stages and even with treatment you may notice it getting worse over time but hopefully the treatment slows down that progression. I don't fully understand how it all works but I do know that this group here is very informative and understanding so it's a great place to hang out with people who get it!

[Forest Walker]

You will read a lot of stuff saying this is good or this is bad, but there is no real proof and it could be that placebos work for some people.

I say eat and drink (with the exception of drinking with methotrexate) what you like, build up a good relationship with your dermatologist to find what works for you and enjoy life.

Eat you favourite foods, drink your favourite drinks and you feel happy, feel happy and you get a positive attitude, being positive is one of the best treatments.

At the end of the day psoriasis and psoriatic arthritis effects us all in different ways, it's all about management and learning to live with it.

 

I tried dietary changes for a while after reading Alan's thread, but I wasn't able to sustain them.  The members in this club have decades of experience with both psoriasis and psoriatic arthritis, the therapies, current information, insights from their healthcare systems and relationships with doctors and how to go about life in the best possible way while dealing with this in good humor.

You found a really good place, Functionalfool.  

I'm from Washington state.  Where is Redford?

[Forest Walker]

Kat-- Thank you for your honest opinion! I know diet is important, you can't live off cheetos and Pepsi, but it took balls to come and say diet didn't help you! There are ppl who say all I have to do is become vegan and force my dog to become vegan which will 100% kill him in 5 years and likely me not long after lol.

Some of those same people may say, "You must enjoy being sick or you would try everything we suggest to get better."  Don't listen to any of that.  They may mean well, but it's hurtful.

[Kat]

Some of those same people may say, "You must enjoy being sick or you would try everything we suggest to get better."  Don't listen to any of that.  They may mean well, but it's hurtful.

Well said.

Those who think diet can cure every ailment to me is the same as saying diet has zero input on our health. Both being wrong.