Ilumetri for psoriatic arthritis Fred's journey

[Forest Walker]

Are there blood tests to see how much Ilumetri is in your system?

Not as far as I know FW

Oh that’s interesting, that makes sense that the effects could tail off noticeably when there’s a large gap. I wonder why that wouldn’t prompt them to bring the doses closer together?
I do think that with a bigger gap you get more time between side effects..

They won't bring the dose forward yet TL as I'm trialling the double dose from day one.

Ah, the Day One Double Dose, delivered to the daring, the deserving.  

[Fred]

Ah, the Day One Double Dose, delivered to the daring, the deserving.  

Not sure about "Daring" more like what the hell let's go for it nothing else has worked long term.

[Fred]

Can't put my finger on it, but some days I'm feeling locked up and then it goes away. Most nights I wake up feeling locked up and after turning on the other side it goes away, but I get the odd day when I just can't get the bones working I'll try to explain.

Two days ago I had to ask Mrs Fred to use the pizza cutter as it was hurting my wrist to much, but yesterday I managed to lift two 25kg sacks of water softener salt in and out of the car with not much of a problem.

Today everything was fine but as I'm writing this I can feel my fingers locking up.

It's like I'm unable to plan the next day as I don't know if my bones will be good or bad.

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Side note my GP asked me to contact my dermatologist about having a 5th covid jab, she said yes it would be advisable to have it.

[Caroline]

Can't put my finger on it, but some days I'm feeling locked up and then it goes away. Most nights I wake up feeling locked up and after turning on the other side it goes away, but I get the odd day when I just can't get the bones working I'll try to explain.

Two days ago I had to ask Mrs Fred to use the pizza cutter as it was hurting my wrist to much, but yesterday I managed to lift two 25kg sacks of water softener salt in and out of the car with not much of a problem.

Today everything was fine but as I'm writing this I can feel my fingers locking up.

It's like I'm unable to plan the next day as I don't know if my bones will be good or bad.

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Side note my GP asked me to contact my dermatologist about having a 5th covid jab, she said yes it would be advisable to have it.

Personally I also feel differences per day. One day my feet hurt for the whole day, and another day, luckily today, I feel a lot less, despite intensively dancing.

25kg is a very heavy weight for your wrists, do you think it sensible to lift that ? I can imagine that now your fingers are locking up because of the weight they have helped to lift.

Makes sense for you a fifth jab.

[Fred]

Personally I also feel differences per day. One day my feet hurt for the whole day, and another day, luckily today, I feel a lot less, despite intensively dancing.

25kg is a very heavy weight for your wrists, do you think it sensible to lift that ?  I can imagine that now your fingers are locking up because of the weight they have helped to lift.

Makes sense for you a fifth jab.

I agree all days are different but I'm noticing a big difference, instead of say 1 - 3 it's going 1 - 10.

I'm not sensible when I was young I moved 20 odd tonnes of 25 kg sacks no problem, I have always had upper body strength and I like to think know I still have it. 

Yes I'm going for the 5th one.

[D Foster]

I have refused the 4th jab, I have been having problems with my legs feet and back and put it down to the PsA but on checking the bloods they found that I have almost no B12 which was causing the problems. Is there anything else that could be a factor Fred.

[Caroline]

I’ve heard of B12.. It seems to be quite important and has all kinds of strange effects when you have too low counts.

[Fred]

I have been having problems with my legs feet and back and put it down to the PsA but on checking the bloods they found that I have almost no B12 which was causing the problems. Is there anything else that could be a factor Fred.

Errrrrrm maybe too much Gin.

I don't know I'm not a doctor and you wouldn't want me examining you.

[mataribot]

I have been having problems with my legs feet and back and put it down to the PsA but on checking the bloods they found that I have almost no B12 which was causing the problems. Is there anything else that could be a factor Fred.

Errrrrrm maybe too much Gin.

I don't know I'm not a doctor and you wouldn't want me examining you. 

More booze for everyone?

[Fred]

I have been having problems with my legs feet and back and put it down to the PsA but on checking the bloods they found that I have almost no B12 which was causing the problems. Is there anything else that could be a factor Fred.

Errrrrrm maybe too much Gin.

I don't know I'm not a doctor and you wouldn't want me examining you. 

More booze for everyone? 

Head over here [Group Specific] and use this.