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Psoriasis-Like Rashes after Humira Usage for Crohn's since 2007

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Psoriasis-Like Rashes after Humira Usage for Crohn's since 2007
Forest Walker Offline
100 + Member I'd Rather Be Roller Skating

100 + Member I Just Cant Stop !
Posts: 9,415
Threads: 126
Joined: Aug 2021
Gender: Female
Location: Northern Washington State
Treatment: Humira, Moisturizers, Triamcinolonoe Acetonide
#1
Wed-01-09-2021, 01:23 AM
Hello!  

Thank you for membership in this forum.  I look forward to getting to know you, to your help, and to learning more about psoriasis.

I saw a dermatologist in April 2021 and had two punch biopsies.  Before the biopsies, the doctor said that it looked like I had Psoriasis.  However, pathologist report said it was possibly a "drug-induced psoriasis or psoriasiform drug eruption."  

The literature for Humira says that a user may develop new or worsening psoriasis. I have been on Humira for Crohn's Disease since 2007.  Humira has given me a wonderful remission from Crohn's, and I have returned to an active lifestyle following many years of illness.  

I am 56-year-old female who developed Crohn's at the age of 21. With this remission, I returned to the love of my teenage years--roller skating--and found the sport of Artistic Roller Skating (think figure skating) was open for all ages.  The rashes are annoying wherever they are on my body, but the part that is most concerning involves my feet since they spend a lot of time in skates.

My dermatologist gave me prescriptions for Augmented Betamethasone ointment (and lotion for scalp) as needed when psoriasis is present.  He said that it could take a few months to see results.  The prescription contains 11 refills for a one-year period.  He also prescribed a Desonide ointment for delicate skin.  I assumed that with so many refills, this medication could be used long-term. 

The rash was originally located in only a couple places on my shins and arms and in my scalp.   Now it is on my legs from hip to toes, a little on my front torso, on my back torso, and lightly on my forehead.  

I developed thin skin and bleeding in my instep, ankle, and on the two fingers I most commonly used to apply the ointments (I always washed hands with soap and water after applying), so I quit using the ointments on August 25, 2021, but resumed the today (August 31) on a few spots that had become extra painful/itchy.  

Through this forum, I am learning that topical steriods are not good long term . . . or maybe not good at all.  I hope to learn more.   Did the use of the ointments possibly cause more rashes?  I have been using Lubriderm lotion or Cetaphil Cream after morning showers and bathing with colloidal oatmeal on most afternoons, hoping that moisturizing will help.

The cost for the office visit with biopsies was nearly $700, with my co-pay being $60.  When I was 21-years-old and met the gastroenterologist who diagnosed Crohn's Disease, the initial consultation cost was only $55.  I don't know how US medicine became so expensive.

Thank you for reading.
Kat Offline
Take my advice; I don't use it anyway.
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Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#2
Wed-01-09-2021, 02:12 AM
Welcome Forest!

Health care in the US as you know is a bit hit and miss. Some of it is excellent and some of it not good at all. I'm not sure if or when we may see that change for the better.

As for creams and ointments, steroids long term can indeed be bad and as you've noticed one of the side effects can be thinner skin. It's also possible to get a bad rash with prolonged usage : Red Burning Skin Syndrome (RBSS) or Topical Steroid Addiction or Withdrawal (TSA or TSW) (2, 3) is a complex condition that some doctors still disagree about. RBSS is common among people who depend on topical steroids for long-term management of their skin rash.

So although steroid creams can help short term with itching, long term can create issues. I alternate and use moisturizers such as coconut oil (I sometimes put some in a bowl and then submerge that bowl into a larger one that has hot water in it to melt and heat the oil, I find that for me it's easier to get down into my scalp and it feels really nice!) I also use over the counter moisturizers. But, when it gets really bad and irritated, I use Taclonex which is a prescribed steroid ointment (I like the gel over the lotion for scalp) If you have a dermatologist that won't discuss treatments other than topical with you then I would find another one.

Oooh roller skating. I spent MANY weekends at the roller rink in my younger days.

Good luck and you've found a great place for asking questions and getting information. Tons of info which I found really helpful with talking with my doctor!

Welcome again.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 66,868
Threads: 3,885
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#3
Wed-01-09-2021, 11:15 AM
Hello Forest Walker  Welcome to Psoriasis Club.

I echo what Kat said above "steroids are not for long term use" they do work but some people get carried away and slap it on without a thought, I also agree with alternating between the steroid and coconut oil. I will also add that it's best to come off slowly if using a topical steroid and don't just stop.

Good to hear Psoriasis Club has been helpful to you and you have decided to join us, none of us a doctors but we certainty know what it's like to live with. Don't hesitate to start new threads with your questions, we have a wide range of members using or have used different treatments and if we don't know we can point you in the right direction.

You will find a friendly bunch and now you are a member you will see more boards for you to use away from psoriasis, I can recommend the [Group Specific] board if you want to get to know some of our members. Be warned though, I'm the only sensible one in there.

Good intro by the way.  Thumb

Regards.

Fred.





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Forest Walker Offline Author
100 + Member I'd Rather Be Roller Skating

100 + Member I Just Cant Stop !
Posts: 9,415
Threads: 126
Joined: Aug 2021
Gender: Female
Location: Northern Washington State
Treatment: Humira, Moisturizers, Triamcinolonoe Acetonide
#4
Wed-01-09-2021, 15:21 PM
Thank you, Kat and Fred!  Your suggestions are deeply appreciated!  Smile
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,079
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#5
Wed-01-09-2021, 17:42 PM
Hi there Forest Walker Wave
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,488
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#6
Wed-01-09-2021, 20:06 PM
Welcome to psoriasisclub Forest Walker !

I see that you have already had some good reactions Thumb

Caroline
Wooley Offline
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,645
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#7
Thu-02-09-2021, 22:50 PM
Hi Forest Walker

Welcome to Psoriasis Club!  Wave

Definitely a friendly bunch on here, always so supportive and lots of good advice....
KatT Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 5,775
Threads: 50
Joined: Sep 2019
Gender: Female
Location: Canada
Psoriasis Score: 1
Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + hydroxychloroquine + MTX
#8
Sat-04-09-2021, 01:39 AM
Hi Forest Walker

Welcome to the Psoriasis Club

Discuss other treatment options that would not entail changing biologics as it is working wonderfully for Crohn's.

I hope you find a treatment that works for you

Wave

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