Cosentyx - Kat's journey

[Fred]

I have found Cosentyx just can't keep the psoriasis away. It's good but it just can't cope if I get a flare up, so I keep some Diprosone and Enstliar handy.

Thank you for updating, it would be interesting to see if anyone is keeping completely clear with Cosentyx. Think I will start another thread so as not to take your off topic.

[jiml]

Good to hear that it's eased the arthritis Kat but it seems reluctant to do much behind your ears . But if with just one application of taclonex it has such a fast effect then use it. we all want to be comfortable and the fact you point out you are using something else tends to show that it's not working on its own for you and maybe you aren't the only one on a biological that needs to supplement from time to time with a steroid ointment

It certainly looks better in the second picture

[Kat]

Yeah we do what we have to do. It will be interesting to see if more people have to supplement their biologics. I was just hoping that at least for now to keep it only Cosentyx so I could see what it is doing on it's own. Although since it didn't clear much if any during the loading doses and then started to regress.... doesn't look like it was going to be able to work alone on clearing the skin anyway.

I'll keep updating, at least it gives some info on how it's working for me.

[Freckles22]

Good to read of your progress with Cosentyx Kat, I hope clear skin happens soon for you. 

I started cosentyx and have had my week 3 (4th injection) loading dose a couple of days ago. I have seen a massive improvement with my skin and it has cleared just about everywhere apart from my hands which are my stubborn areas. I think those places, like your scalp, will be the last to clear and I use a bit of steroid ointment to help it along now and then. 

I am delighted that something is working after trying acetretin and humira over the last year with no success. I do have cold symptoms....sore throat and nasopharyngitis but I take hope from Dr Fred and as my body gets used to it the symptoms will ease.

I watch your journey with interest and hope it will go well for you 

[Kat]

Good to read of your progress with Cosentyx Kat, I hope clear skin happens soon for you. 

I started cosentyx and have had my week 3 (4th injection) loading dose a couple of days ago. I have seen a massive improvement with my skin and it has cleared just about everywhere apart from my hands which are my stubborn areas. I think those places, like your scalp, will be the last to clear and I use a bit of steroid ointment to help it along now and then. 

I am delighted that something is working after trying acetretin and humira over the last year with no success. I do have cold symptoms....sore throat and nasopharyngitis but I take hope from Dr Fred and as my body gets used to it the symptoms will ease.

I watch your journey with interest and hope it will go well for you 

We are close to the same schedule as I'm not far off my loading doses. My first maintenance dose is in 3 days.

You know, I have noticed a bit of sinus issues, very similar to cold symptoms lately. It's not really uncommon for me to have that, but I'll have to pay a bit more attention to see if it's somehow connected. Still no skin improvement, I'm trying not to use the Talconex until after my next dermatologist appointment next month as I really want to get her opinion on how she thinks it's working for me. Hopefully my stubborn scalp will start to get better. My rheumatologist said I'd need to give it at least 3 months to know if it's helping or not so I still have a month or two left.


Glad to hear it's working so well for you! Keep us updated on how it continues for you and I hope your cold symptoms lessen soon.

[Kat]

Ok so had my first maintenance dose yesterday.  



Perhaps a bit better behind the ear but overall about the same.  I have been scratching at the ear a bit as you can probably tell.  Some days are better, some a bit worse but for the most part it's been about the same.



Joints definitely improved, but still have some issues there.  However, it's also possible that I have more than one issue with them.

[artemie]

hm it looks a bit better tho, Kat. I've been scrolling back tru your ears :  good to hear your joints are showing some improvement!

[jiml]

I think it looks a bit better Kat, but only you know how it's doing all over. Yes I see you have been scratching it so it's obviously still itchy and you taking any antihistamine tablets ? That might

[Kat]

Yes it's maybe a bit better.  It's hard to judge really as sometimes when I think it's a little better, in a day or two it seems a little worse again.  

The ears aren't super itchy, but I can't stand the scales just hanging on there and feel the need to scrape them off.  Now the scalp..... it's still itchy.  I concentrate the pictures on my ear (and behind it) as it's so hard to tell on the scalp psoriasis since the hair is in the way.



@Artemi "tru my ears?"     That made me laugh!

[Fred]

I think it looks better too.

Can't see any spuds growing so you must be keeping them clean