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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Enstilar tips

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Enstilar tips
PANDAmonium Offline
Newbie


Posts: 2
Threads: 0
Joined: Nov 2018
Gender: Female
Location: England
Treatment: PUVA
#51
Sat-10-11-2018, 19:35 PM
(Tue-06-11-2018, 11:00 AM)Fred Wrote:
(Tue-06-11-2018, 00:34 AM)PANDAmonium Wrote: I started enstilar roughly 4 months ago. 
I noticed a difference within 2 days! Within a week my psoriasis has pretty much cleared and i was mainly left with a few white patches.
I was advised by the dermatologist that you can only use this foam cream, at most, for 4 months otherwise can be bad for the skin.
When i stopped using the cream my psoriasis came back with vengeance and was 10x worse and so sore and itchy. I've also heard the same story from a lot of others. :( however, i have also heard so many positive stories from it too, im just gutted it did not work for me!

The recommended treatment period is 4 weeks.

Also Jim is right, you should never just stop. It's best to gradually wean yourself off of it, but even then some topicals can make it worse.

Welcome to Psoriasis Club by the way.  Wave


Such a shame i was never advised to wean off it slowly and was told i could use it for up to 4 months. Maybe things would have been different!
Howevet, im currently receiving light treatment and hoping that has a positive outcome!
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#52
Sat-10-11-2018, 20:09 PM
(Sat-10-11-2018, 19:35 PM)PANDAmonium Wrote:
(Tue-06-11-2018, 11:00 AM)Fred Wrote:
(Tue-06-11-2018, 00:34 AM)PANDAmonium Wrote: I started enstilar roughly 4 months ago. 
I noticed a difference within 2 days! Within a week my psoriasis has pretty much cleared and i was mainly left with a few white patches.
I was advised by the dermatologist that you can only use this foam cream, at most, for 4 months otherwise can be bad for the skin.
When i stopped using the cream my psoriasis came back with vengeance and was 10x worse and so sore and itchy. I've also heard the same story from a lot of others. :( however, i have also heard so many positive stories from it too, im just gutted it did not work for me!

The recommended treatment period is 4 weeks.

Also Jim is right, you should never just stop. It's best to gradually wean yourself off of it, but even then some topicals can make it worse.

Welcome to Psoriasis Club by the way.  Wave


Such a shame i was never advised to wean off it slowly and was told i could use it for up to 4 months. Maybe things would have been different!
Howevet, im currently receiving light treatment and hoping that has a positive outcome!
I hope the light treatment works well for you and you can get clear again. I fear that some of the dermatology clinics don’t give good advice on the use of steroids when there is so much information out there about the dangers of sudden withdrawal
Good luck
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,883
Threads: 3,885
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#53
Sat-10-11-2018, 21:19 PM
(Sat-10-11-2018, 20:09 PM)jiml Wrote:
(Sat-10-11-2018, 19:35 PM)PANDAmonium Wrote:
(Tue-06-11-2018, 11:00 AM)Fred Wrote:
(Tue-06-11-2018, 00:34 AM)PANDAmonium Wrote: I started enstilar roughly 4 months ago. 
I noticed a difference within 2 days! Within a week my psoriasis has pretty much cleared and i was mainly left with a few white patches.
I was advised by the dermatologist that you can only use this foam cream, at most, for 4 months otherwise can be bad for the skin.
When i stopped using the cream my psoriasis came back with vengeance and was 10x worse and so sore and itchy. I've also heard the same story from a lot of others. :( however, i have also heard so many positive stories from it too, im just gutted it did not work for me!

The recommended treatment period is 4 weeks.

Also Jim is right, you should never just stop. It's best to gradually wean yourself off of it, but even then some topicals can make it worse.

Welcome to Psoriasis Club by the way.  Wave


Such a shame i was never advised to wean off it slowly and was told i could use it for up to 4 months. Maybe things would have been different!
Howevet, im currently receiving light treatment and hoping that has a positive outcome!
I hope the light treatment works well for you and you can get clear again. I fear that some of the dermatology clinics don’t give good advice on the use of steroids when there is so much information out there about the dangers of sudden withdrawal
Good luck

Yes good luck with the light treatment and don't hesitate to start thread about your journy in Prescribed Treatments For Psoriasis if you wish.

Unfortunately a GP (family doctor) is never going to be able to treat psoriasis. And even some dermatologists don't tell their patients how to use a treatment especially with a topical. Topical's can help, but they are a short term quick fix and should never be used for longer than the manufactures recommendations.

We as patients take the prescription and rarely bother reading the recommendations in the leaflet, but we should as it can make things worse if we get it wrong.

A topical is never going to control psoriasis long term, and it should be better regulated.

I'll jump off my soap box.
Quote
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,143
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#54
Sun-11-11-2018, 00:41 AM
(Sat-10-11-2018, 21:19 PM)Fred Wrote:
(Sat-10-11-2018, 20:09 PM)jiml Wrote:
(Sat-10-11-2018, 19:35 PM)PANDAmonium Wrote:
(Tue-06-11-2018, 11:00 AM)Fred Wrote:
(Tue-06-11-2018, 00:34 AM)PANDAmonium Wrote: I started enstilar roughly 4 months ago. 
I noticed a difference within 2 days! Within a week my psoriasis has pretty much cleared and i was mainly left with a few white patches.
I was advised by the dermatologist that you can only use this foam cream, at most, for 4 months otherwise can be bad for the skin.
When i stopped using the cream my psoriasis came back with vengeance and was 10x worse and so sore and itchy. I've also heard the same story from a lot of others. :( however, i have also heard so many positive stories from it too, im just gutted it did not work for me!

The recommended treatment period is 4 weeks.

Also Jim is right, you should never just stop. It's best to gradually wean yourself off of it, but even then some topicals can make it worse.

Welcome to Psoriasis Club by the way.  Wave


Such a shame i was never advised to wean off it slowly and was told i could use it for up to 4 months. Maybe things would have been different!
Howevet, im currently receiving light treatment and hoping that has a positive outcome!
I hope the light treatment works well for you and you can get clear again. I fear that some of the dermatology clinics don’t give good advice on the use of steroids when there is so much information out there about the dangers of sudden withdrawal
Good luck

Yes good luck with the light treatment and don't hesitate to start thread about your journy in Prescribed Treatments For Psoriasis if you wish.

Unfortunately a GP (family doctor) is never going to be able to treat psoriasis. And even some dermatologists don't tell their patients how to use a treatment especially with a topical. Topical's can help, but they are a short term quick fix and should never be used for longer than the manufactures recommendations.

We as patients take the prescription and rarely bother reading the recommendations in the leaflet, but we should as it can make things worse if we get it wrong.

A topical is never going to control psoriasis long term, and it should be better regulated.

I'll jump off my soap box.

Can I borrow your soapbox Fred as I completely agree with you.
Quote
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