Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
« Previous 1 … 7 8 9 10 11 … 26 Next »

Update from Clear30

Threaded Mode
Update from Clear30
Clear30 Offline
Novice


Posts: 5
Threads: 2
Joined: Feb 2018
Gender: Female
Location: Leicester
Treatment: Dovonex
#1
Tue-29-05-2018, 12:17 PM
Hi all, not been here for a while so thought I would give you an update. 
GP gave me Betnovate cream to try and referred me to skin specialist, only had to wait 4 weeks, that's the good bit.
Was offered another cream or light therapy which I refused as all creams/ lotions have made me so sore,told her I do not want to try any more.
She said I couldn't have tablets or injections as not bad enough, even though been off work 2 weeks as feet and heels so sore cracking and bleeding, cannot wear shoes, and hands so sore, calves sore.
My psoriasis score is only 6 ish, although specialist didn't look everywhere, did quality of life questionnaire scored 30.
I was not happy, think specialist could see I was about to burst into tears so left room , came back and said I could do tests to see if I could have Methotrexate or Acitretin, meanwhile would you like to try Enstilar.
So had all blood tests done and chest X-ray same day, thinking when results are in I will get an appointment, 2/4 weeks. NO, 12 weeks next app.
On the up side 10 days using Enstilar I have no flaking and soreness gone on calves, knees and elbows.
Heels are still tender and cracked and psoriasis appearing on soles so still off work as cannot wear shoes.
Hands are still red and sore, it seems to be on every joint on my fingers, knuckles etc and palms now, which I never had 30 years ago.
According to leaflet I can only use for 4 weeks so I don't know what to do after that, think I will ring specialist.
Quote
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,983
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Tue-29-05-2018, 12:32 PM
Yes Enstilar is not a long term treatment.

I would push for one of the oral treatments as the creams are never going to keep on top of it. Have a look at this thread it may help you with your choice. Oral Treatments For Psoriasis

*I have moved this post to a new thread as it will get found easier by our readers.

Do keep this thread updated, I hope you get something soon.

Fred.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Tue-29-05-2018, 12:45 PM
It’s a shame that the hospital can’t see that although you are not covered in Psoriasis, but where you have got it is absolutely wrecking your quality of life, and could cost you your job, I would be inclined to keep phoning the hospital and asking for the dermatologists secretary, tell them that you have enstilar but it’s not working ... tell them you can’t get shoes on so can’t work, tell them you will take a cancellation if one comes up .... in general make a nuisance ( politely) of yourself and have tears ready on the phone if they seem unsympathetic

Either of the drugs they have suggested should work and probably at a low dose ... I hope you get sorted soon
Jim
Quote
Kentpatient Offline
Member


Posts: 82
Threads: 3
Joined: Apr 2018
Gender: Female
Location: U.K.
Psoriasis Score: 17
Treatment: Acitretin and protopic plus eumovte
#4
Wed-30-05-2018, 00:30 AM
Hello
That sounds an awful long time to wait, poor you! 
I hope you can persuade them to see you sooner. 
Good luck
Quote
« Next Oldest | Next Newest »


Possibly Related Threads…
Thread Author Replies Views Last Post
  Cosentyx update! Lars53 8 8,281 Mon-01-04-2019, 13:03 PM
Last Post: artemie
  Methotrexate update..... mickyfinn007 14 14,179 Tue-29-08-2017, 13:06 PM
Last Post: Caroline
  update on my psoriasis and cosentyx Marcia1966 6 8,299 Mon-01-05-2017, 16:51 PM
Last Post: jiml
  DMF update on 'The Hot Flushes' Whabursttheba 6 7,377 Fri-03-03-2017, 22:33 PM
Last Post: jiml
  Methotrexate update No 3 mickyfinn007 5 8,192 Tue-31-01-2012, 09:17 AM
Last Post: Hanna



Users browsing this thread: 1 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode