Posts: 28,479
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
(Sun-08-07-2018, 22:36 PM)jiml Wrote: (Sun-08-07-2018, 14:50 PM)Kentpatient Wrote: Thanks both. My dermatologist said he's not experienced in drugs like fumaderm and is keen on methotrexate.
What a shame Fumaderm/ Skilarence are super drugs and in Germany are first line oral treatment and have a 70% chance of it working and giving long term clearance and if it affects your lymphocyte count reducing the dose soon reverses the action and clearance continues
It’s a shame as it’s a lot less harsh on your organs than methotrexate is 
Good luck with whatever you get though 
I fully agree with Jim.
Ok, MTX is longer around, but is also quite a heavy medication.
The fumarates are "only" here for the last 35 years, and are body owned substances. if your dermatologist is not experienced in it, well... I think he is quite lacking some re-education. When you have a university education and degree, you are obliged to yourself and your patient to keep on the edge of scientific progress in your field.
Rightly dosed and of course depending on the person, there is only minor lowering of the lympho's, and indeed with Skilarence very soft for your metabolism.
Posts: 82
Threads: 3
Joined: Apr 2018
Gender: Female
Location: U.K.
Psoriasis Score: 17
Treatment: Acitretin and protopic plus eumovte
I will look for another one I think if I have to stop Acitretin. I hate not being able to hear properly. Plus I don't like the blood results and there are other side effects: the skin on my face is peeling every afternoon and I think that's Acitretin .
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
It certainly sounds like it’s the acetretin and after the grief you have had with it. I don’t blame you wanting a change.
I hope the one you get works without the hassle of acetretin
Posts: 82
Threads: 3
Joined: Apr 2018
Gender: Female
Location: U.K.
Psoriasis Score: 17
Treatment: Acitretin and protopic plus eumovte
Hello. I guess I'm no longer 'newly diagnosed' ! Just to update I'm now on a reduced dose of Acitretin due to side effects. So 25mg alternate days instead of every day. Still much clearer on my body and whilst my face is better it's just not me. Still red and still inflamed . My scalp continues to be a problem. But I'm still here and today I can hear much better although could be deaf again by tomorrow
I do have really bad pins and needles at night though. Wondering if that's another side effect?
Posts: 71,225
Threads: 4,129
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
Sorry can't help with the pins and needles.
I can change the title of your thread though if you want?
Posts: 4,809
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Waiting a decsion
Hi KP Sorry but although I do get pins and needles in my left arm / hand at night I can't put it down to the Acitretin. I had that long before I started talking it.
I am beginning to wonder if my knee problem was a side effect of the Acitretin as it is significantly reduced now after I have stopped taking it. Sadly the blotches have returned
Posts: 82
Threads: 3
Joined: Apr 2018
Gender: Female
Location: U.K.
Psoriasis Score: 17
Treatment: Acitretin and protopic plus eumovte
Thanks all. I'm trying to cut down the dose myself as I think the side effects are outweighing the benefits but will see what happens. The pins and needles are still thete bit potentially they were here before the psoriasis. I think it's a sign of inflammation anyway will speak to my dermatologist.
I'm also going to give up drinking (again) because I'm pretty sure that's not helping.
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