Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Natural Treatments For Psoriasis v
« Previous 1 2 3 4 5 … 7 Next »

Using evidence-based diet and supplements to manage psoriasis

Threaded Mode
Using evidence-based diet and supplements to manage psoriasis
Nessie1869 Offline
Newbie


Posts: 2
Threads: 1
Joined: Jul 2017
Gender: Female
Location: Northern Ireland
Treatment: Dovobet
#1
Thu-20-07-2017, 03:48 AM
I have had psoriasis for 16 years. I was first diagnosed when I was 34 years old and I believe it was first triggered by a stressful event. It is also partly hereditary – my mother has it and my grandfather was thought to have it.
In the first few years I was treated with a series of medications, including dovonex (useless), light therapy (good but had a flare straight after the treatment was completed, so not long lasting) and dovobet (my lifeline for the last 14 years). My psoriasis covers more than 10% of my body and is mostly on my legs, feet, elbows, scalp and ears. About 2 years ago it began to spread to my torso and flare fairly frequently. I have also developed mild psoriatic arthritis in my hips, knees, feet and hands, including dactylitis in my left thumb. I have had to use dovobet fairly continuously since then.
I wasn’t keen to move on to more aggressive systemic treatments (methotrexate and biologics) because of the side effects. At this point I should mention I am a medical writer by trade, and have written extensively on the use of these treatments across a wide range of immune-related disorders, including psoriasis and psoriatic arthritis. 
I did some research on Removed to see what studies had been carried out on the natural control of symptoms associated with psoriasis. As everyone has probably read, diet is a big factor. So I decided to try diet as a way of controlling my symptoms. I stopped eating gluten, lactose, sugar and limited alcohol to a couple of glasses of wine a week. I managed to follow this for about 6 months and did notice a gradual improvement. I maintained the diet until about 6 months ago, when I was worried I could make myself gluten/lactose intolerant. So I gradually began to reintroduce these to my diet. I also wanted to enjoy life! So I would have sweet stuff and a few more drinks on occasion. One thing I have noticed through this elimination diet was that I definitely had some dietary triggers that resulted in almost immediate flares (same day). These were wheat (bread/pasta/cake) but not necessarily gluten, more than 3 glasses of wine in one sitting and a high dose of sugar (e.g., large slice of cake). All 3 would be a disaster. The flares start in my joints and the skin itching begins after that. I can minimise the impact of the flares by taking ibuprofen and antihistamines (one loratadine and one cetirizine – generic brand) – and obviously not repeating the dietary mistake!
I did some more research to see what evidenced-based natural supplements are out there that could have benefits in an immune-related disorder such as psoriasis. Psoriasis is inflammation – your body attacking itself (in our case our skin). It is also associated with vitamin D deficiency. For many immune-related disorders there has also been the suggestion that gut imbalance is a factor. Basically, our gut bacteria (microbiome) are out of whack. So I focussed my research around anti-inflammatory supplements, supplements good for the skin and probiotics for the gut aspect. I have honed my list of supplements down to the following:
1.    Vitamin D (10,000 IU per day)
2.    Bio-selenium and zinc
3.    Turmeric (curcumin 600 mg with 5 mg organic black pepper)
4.    Astaxanthin (12 mg)
5.    Biotin (10,000 μg)
6.    Omega 3, 6 and 9 (1200 mg) – fish oils
7.    Optibac probiotics extra strength (they have shown the good bacteria in their capsules make it through the stomach acid – many others don’t)
I get 1-6 from Removed and 7 direct from the manufacturer (in the UK).
I take one table of each every day after dinner and have been doing so for 6 weeks now. I have noticed a major improvement in my psoriasis and joint pain. It took about 3 weeks to notice the benefit. I have managed to come off dovobet completely for the first time in over 2 years – I was using it every evening. My plaques have gone from red, scaly, itchy/sore to flat stains in the majority of places. I still have minor raised plaques on my elbow and one on my feet. I am not having any side effects from taking the supplements. I do try and stick to the wheat free, low sugar, sensible alcohol intake diet. I also keep my skin well moisturised by applying an emollient in the morning and at bedtime.
It has made a big difference to the quality of my life, which has been fairly dominated by my condition. I would be interested to see if this has any benefit in anyone else willing to try, as I recognise this is only a case study of one person.
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,513
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#2
Thu-20-07-2017, 07:03 AM
Hello Nessie,

Welcome to Psoriasisclub.

You did some good research on the effects of food in relation to Psoriasis. Very valuable, thanks for your contribution.
There are several members who indeed control their psoriasis with a diet, a good example is Alan, of whom you can read here How I Cured My Psoriasis By Diet.

Certainly food can have his effects. For instance my sister immediately has reactions when she eats peanuts or peanut butter, on the other side, I tried all kinds of avoidance of food also, even wine Rolleyes , but that totally doesn't have any effect on me.
I think that shows, just as you say in your last sentence, that we all are different.

Maybe in your research you did not find one thing. The effect of bacteria on Psoriasis. You could take a look at the work of Lisa Mattman and there are many other publications on that subject.
E.g. it is found that people with Psoriasis almost always have the residues of Streptococcus or Staphylococcus bacteria in their blood. And perhaps you also know that an infection from that is often a trigger for the start of Psoriasis.

Anyway, you have found a nice forum.
Enjoy yourself over here, we have very nice members, as Dave always says, they are all barmy, but we try to also have some fun in our Off Topic forum.
Hope to see you around.

Cheers,
Caroline.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Thu-20-07-2017, 07:19 AM (This post was last modified: Thu-20-07-2017, 07:21 AM by jiml. Edited 1 time in total.)
Hi Nessie and Welcome  to the club. And for the very detailed history of your psoriasis and the things you have used to control it.
I'm pleased that you have found a natural way to keep the disease under control and hope it continues to work for you. It's interesting that it is clearing your skin and your joints are better.

I see you are taking 7 supplements and controlling your intake of foods, do you think it's necessary to take all the supplements? and did you start with one at a time to see which was doing the most good or did you just go for it with them all.
Will you in time try and cut the supplements out one at a time to test which ones are having the effect or do you think they are all required

Enjoy your time on the site, you will find us a friendly group of sufferers, if you have any questions just shout and someone will have an answer I'm sure....
I wish you luck with your regime, and although it's not something I will try as my skin is clear on the Fumaderm drug that I take, but hopefully it may offer hope to others that are struggling to find something that works for them

Jim
Quote
Nessie1869 Offline Author
Newbie


Posts: 2
Threads: 1
Joined: Jul 2017
Gender: Female
Location: Northern Ireland
Treatment: Dovobet
#4
Thu-20-07-2017, 08:30 AM
Thank you for your welcomes and replies. I appreciate the suggestions and links below. In response to the comment whether I tried all the supplements together/will be willing to reduce them in time, I did start all 7 together. I would prefer to eliminate any that have no benefit by stopping them one at a time slowly. I'm a long way off that yet, as I want to maintain this for a good 6 months first and see if my psoriasis completely clears and also is kept consistently under control in the long term. Also, to be honest they are all pretty good supplements to take for my general health anyway. 
It is interesting that peanuts were mentioned below - I'm not allergic to peanuts but do feel queazy if I eat them. I am also intolerant to some citrus fruits (apples give me stomach cramps and too many strawberries, oranges, grapefruit do the same but to a lesser degree). As a result I don't eat these, but that hasn't impacted on my psoriasis in the past and I've had this issue long before the psoriasis kicked in. I do think, though, that the gut could play an important role in psoriasis.
Quote
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#5
Thu-20-07-2017, 10:26 AM
Welcome, Nessie.

Been there. Done that. Now get yourself to a dermatologist and get effective systemic therapy. When I finally took my head out of the sand I went from severe to mild in less than four weeks. That was after over 20 years of progressively worsening skin and joints managed only with topical therapy. I do take an interest in diet and supplements, but it is very much secondary. Of late I have been interested in B12 and was surprised to see that a pharmaceutical company has a B12 cream for psoriasis. My interest is in seeing whether it can protect against the lymphocyte suppression of dimethyl fumarate.

Cheers,

Bill
Quote
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,111
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#6
Thu-20-07-2017, 11:38 AM
Hi Nessie, nice to meet you Wave

It's a little worrying that a medical writer has decided against drug treatment.. Confused I certainly didn't want to take them myself but my psoriasis got progressively worse untreated. I didn't try diet adjustments though. I am interested to see how you get on with it.
Hope you like the forum!
Quote
Maryam Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 260
Threads: 9
Joined: Jun 2017
Gender: Female
Location: The Netherlands
Psoriasis Score: 0!!!
Treatment: Stelara
#7
Thu-20-07-2017, 18:08 PM
There is not much real ´conclusive` evidence when it comes to treat psoriasis by diet. There are some clues that some of us may be sensitive for gluten, for others it is nightshades, processed foods, spices, even an imbalance between omega 3 and 6 has been found to cause inflammations. 

To go for a diet is really hard. There is very little you can eat and it might take you a year or longer to see results before you can slowly add different types of food to see if they were the culprit.

I have seen results, it is possible, but I would not call it an evidence based treatment, even when you can find some research in pub med (which indeed there are). 

I think the thing with a diet is that people seem to have different foods that can trigger psoriasis, making it nearly impossible to prescribe one diet.
Quote
artemie Offline
Be careful about reading health books, you might die of a misprint

100 + Member I Just Cant Stop !
Posts: 681
Threads: 9
Joined: Jun 2017
Gender: Female
Location: Netherlands
Psoriasis Score: 4
Treatment: Diet started 22th july 2019
#8
Thu-20-07-2017, 21:00 PM
hi Nessie, welcome =]
I'm gonna follow how you get on, nice to have a medical writer here.
Tried the diet (Pagano) myself , but like Caroline it doesn't seem to work for me neither, or I haven't found my specific triggers. So now I'm on Humira, since the last three weeks.
Keep us informed, please! it sounds promising.

   ArteMie
Quote
« Next Oldest | Next Newest »


Possibly Related Threads…
Thread Author Replies Views Last Post
  How I Cured My Psoriasis By Diet alan540 234 279,556 Tue-05-11-2024, 17:48 PM
Last Post: alan540
  Natural ingredients creams & moisturizers to manage Psoriasis Quest4Cure 31 39,656 Wed-26-06-2024, 20:31 PM
Last Post: Trampledrosie
  Artemie's journey with AIP Paleo diet and supplements artemie 52 51,873 Fri-25-08-2023, 15:10 PM
Last Post: Forest Walker
  Diet question Sharonlgass1 1 2,986 Mon-20-02-2023, 14:34 PM
Last Post: Forest Walker
  My psoriasis cleanse and diet log schnauzerlover 60 77,781 Sun-28-11-2021, 19:48 PM
Last Post: Ben1



Users browsing this thread: 1 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode