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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Betsy's jounrney w Cosentyx

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Betsy's jounrney w Cosentyx
mbetsysmith Offline
Member


Posts: 14
Threads: 4
Joined: Apr 2017
Gender: Female
Location: USA
Treatment: cosentryx
#1
Fri-07-04-2017, 17:22 PM
Hello Everyone.  I am new to this forum, new to psoriasis, and new to Cosentyx.  I didnt know how lucky I was to be starting Cosentyx as my first biologic until I read the stories here and learned more about Cosentyx in general.  I was diagnosed with Psoriasis in early January and I started Cosentyx Wednesday April 12.  This is my story. 

I have had psoriasis for about 2 years.  I used and overused topical steroids with little or no improvement during that time.  It wasn't until psoriasis started on my hands and feet that I went to see my first dermatologist. In early January I was diagnosed and started the long road of trying to get Enbrel, the biologic my dermatologist recommended. Not surprisingly, I was denied by my "good" insurance. After a few other attempts at getting Enbrel failed, my doctor started trying to get Humira for me.  I filled out paperwork and waited again.  I think my doctor was feeling as discouraged as I was.  Then I made the best decision I have ever made and started looking for a second opinion. 

I went to a Psoriasis Clinic in Atlanta Georgia.  The doctor explained so much to me, he went over all the pros and cons of the different biologics and I understood why he chose Cosenyxy for me.  My next question was how do I get started.  The doctor explained that his office would do all the leg work of getting me approved, but he said I didnt have to wait.  He said that he would start me on Cosentyx in his office as soon as I had the proper lab work done.  I had already done the test needed for Enbrel so I had a copy with me.  He started me on Cosentxy that day!  He said I would be able to get the mediation free of charge for 2 years, and that hopefully in 2 years insurance companies will have caught up with modern medicine.  See why I feel so lucky?  The doctor actually said "I expect great things".

I will continue to get the injections in his office until the medication starts coming to my house.  The injections were completely painless. I think the doctors in the psoriasis clinic see many patients and because they provide statistics to Novartis, Novartis helps them start their patients quickly.  My advice to everyone is to be sure to see the right doctors for this illness, and not to stop asking for help. 

I am 2 days after initial injections.  The first day I had a headache and felt achiness in my arms but the headache didnt last long and the achiness is better.   I actually feel improvement in the burning, itchiness, and scaliness in my hands and feet and its just been 2 days.  I am so hopeful.  I am also thankful that I found this forum. I will keep you posted as time goes along about the improvement I am expecting and the side effects I may have.

Good luck to us all
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Fri-07-04-2017, 17:32 PM (This post was last modified: Fri-07-04-2017, 20:41 PM by jiml.)
What a great story, yes you are right it's good advice, to see if you can to get another opinion, you were very lucky to find a dermatologist who is up to speed with the current treatments, and who was able to get you started straight away .
I'm glad you found our forum and look forward to following your journey  Thumb
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,503
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#3
Fri-07-04-2017, 20:42 PM
Good story indeed and you are extremely lucky to have found such a good dermatologist who wants you immediately on Cosentyx to give the first strong blow to your Psoriasis.

I totally agree with you, it is all about finding the right doctor. A doc with knowledge AND a vision on the patient and possible treatments. Too much doctors only follow the protocol and don't look at the patient.

I followed a totally different route than you did, but the vision of the doctor and the interaction with the doctor on an equal level did play a big role.
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#4
Fri-07-04-2017, 21:05 PM
Great stuff Betsy. I'm pleased we managed to get your posts sorted. (I have sent you a PM)

From here you just need to click "New Reply" in this thread every time you want to update.

It's great they have put you on Cosentyx, I have tried all the other Bio's and Cosentyx even in the short time I have been on it has been the best thing ever.

I recently posted this thread which you may find interesting: Could Cosentyx be better than first thought for psoriasis

I wish you luck on your Cosentyx journey and look forward to your updates. If you get stuck with posting updates, just shout out and we will find you and help.

Fred.
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mbetsysmith Offline Author
Member


Posts: 14
Threads: 4
Joined: Apr 2017
Gender: Female
Location: USA
Treatment: cosentryx
#5
Wed-12-04-2017, 22:42 PM
Hello everyone.  Today I had my second set of injections.  Although I saw some improvement after the first shots, my foot is not angry nor are my hands, I still have so much healing to do.  Hopefully after this second shot I will see even more improvement and healing.  The doctor said I definitely should.  Im going to take a some advil to ward off the headache I felt with my first shots.  I will keep everyone posted.  Good luck all.
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Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#6
Wed-12-04-2017, 22:48 PM
Best of luck Betsy Thumb

GB GB
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#7
Wed-12-04-2017, 22:54 PM
Thanks for the update ...I am following with great interest your journey ....and looking forward to reading of you being clear Thumb
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#8
Thu-13-04-2017, 08:16 AM
You say you are going to take a some advil to ward off the headache. Do you mean you're going to take it anyway or wait and see if you get a headache. ?

Personally I wouldn't take it unless necessary. It's best to get used to it if you can, I found when I first went on Bio's I got slight headaches but I never took anything for it and they soon passed.

But good luck whatever your choice.

Smile
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mbetsysmith Offline Author
Member


Posts: 14
Threads: 4
Joined: Apr 2017
Gender: Female
Location: USA
Treatment: cosentryx
#9
Tue-18-04-2017, 17:04 PM
Tomorrow I go for my 3rd set of Cosentyx injections.  I have had more improvement, but not as significant as the first week.  I say that becoz after the first injections I immediately stopped feeling the burning and the feeling of P being active or worsening, that has continued thankfully. And although I havent noticed much change in the stiffness of my hands,  the skin is really clearing quickly there.  The worst of my P is on my feet which are better as well.  There is sensitivity in the newer skin, I am still using aquaphor and saran to keep the area moist but it still cracks.  I continue to be very hopeful and I believe that as soon as these areas on my feet that were so bad heal, and nothing new "happens" I will much better. Good luck to us all!
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#10
Tue-18-04-2017, 17:55 PM
Good luck with the next injections hope you continue to show improvements. I'm sure as you are getting good results you will heal and hopefully the joints will improve as well as your feet .... have you tried Coconut oil as a moisturiser it's very good
I will continue to follow your experience with great interest  Thumb
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