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Psoriasis Club › HealthHealth Boards › Introductions v
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Hello from Will20

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Hello from Will20
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,108
Threads: 3,898
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#21
Sat-28-01-2017, 22:13 PM
Don't forget you can always use the members only boards, and Will has got another thread that I recently moved: [Group Specific] if you do prefer to keep it more private. Wink
Will20 Offline Author
Member


Posts: 60
Threads: 4
Joined: Jan 2017
Gender: Male
Location: York, Yorkshire.
Psoriasis Score: 21
Treatment: Acitretin. (2nd time)
#22
Sat-28-01-2017, 22:16 PM (This post was last modified: Sat-28-01-2017, 22:19 PM by Will20.)
Hi Fred,
My GP says I have excellent working Kidneys!
My Grandmother had Psoriasis from a young age and she developed Diabetes in her early 40's - like myself. 
My Dermatologists says some people with Psoriasis do develop Diabetes with constant use of Steriod based creams and use of Steriod Tablets over the years.
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#23
Sat-28-01-2017, 22:27 PM
(Sat-28-01-2017, 22:08 PM)Will20 Wrote: Hi again JohnB,
My Liver Function was elevated but the Dermatologist at that was keeping an eye it. When It stepped working I had a month of taking nothing except using creams before I started on the Methotrexate = which I was on for 18 months. Whilst on this my Liver Function rose a bit more and I developed Aneamia, which I am still being treated for to this present day. Whilst on the Biologicals my Liver Function became erratic and the Dermatologist referred me to see a Liver Specialist, I underwent 3 different Scans and a Liver Biopsy and my last Liver Function in October 2016 the results were: ALT 107 - Gamma GT 100.
I was diagnosed in October 2016 as having Fibrosis and NAFLD of the Liver. (I don't drink Alcohol or smoke) and the Liver Specialist told me it's with been on these Biological Drugs.
I understand there are some things people would prefer not to answer. But, by all means ask away questions. Will

Now that food for thought. Thank you for your very frank and open reply. I'm afraid I dont understand what the liver results mean. I will have to do some research  Thumb . My bloods are coming in normal at the moment and long my they continue to be so. I have never smoked but I have been known to have the odd tipple, somewhat reduced now since being on the Acitretin.
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,273
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#24
Sun-29-01-2017, 20:37 PM (This post was last modified: Sun-29-01-2017, 20:43 PM by D Foster.)
Hi Will20 welcome to the forum, I have read your posts with great interest as when I was taking  Acetretin  I had allsorts of problems like you but my nails grew into my fingers and especially toes I had hair loss but not as much as the loss on Cyclosporine. I have just had a MRI scan as my PsA has been getting worse and my neck now is really bad . I am on Stelara and have been for around 4 years plus but I was hoping to go on to  Cosentyx  in the hope that now the Stelara is working less and less it may help both my P and PsA because the Stelara never made a lot of difference to the PsA . After reading your post I am wondering if my new neck problem is not PsA like the rest but another form of arthritis , I have an appointment Wednesday to see the results. I have never had many infection problems ,I have been on MTX for 9 years but never used Humira and I don't have diabetes . Thank you for all the information, it sounds like that you have had a rough passage , I started with the dam P around 40 plus years ago and have had to many different treatments to count , it's a real sod .
Will20 Offline Author
Member


Posts: 60
Threads: 4
Joined: Jan 2017
Gender: Male
Location: York, Yorkshire.
Psoriasis Score: 21
Treatment: Acitretin. (2nd time)
#25
Sun-29-01-2017, 22:56 PM (This post was last modified: Sun-29-01-2017, 23:00 PM by Will20.)
Hi D Foster and Thanks for the Welcome.
I have Osteoarthritis - although have not been given the diagnosis officially yet by the Rheumatologist that I first saw 1 year ago this month. After having numerous Blood Tests, X Rays and Bone Scans (the technician who performed the Bone Scans told me it was Osteoarthritis). I knew I had some form of Arthritis because I had a MRI Scan on my Lower Spine/Sacral Area 5 years and 3 years ago because I hurt my back and the Scans revealed I have 2 Herniated (bulging) Disc's in my Spine and the scan revealed the Lumbar Facet Joints were Arthritic.
At first the Rheumatologist had me diagnosed as having Psoriatic Arthritis then when the test results starting coming in she then changed her diagnoses, sent my GP a letter stating it was in fact Osteoarthritis. So, I am just waiting for my next appointment to see the Rheumatologist. (Hopefully soon?).
I had much better results the first time I used Stelara it cleared my Psoriasis 99%, which is why I asked the Dermatologist if I could go back on it a second time and started it again in December 2016.  The Humira made my Psoriasis "flare up" and the Cosentyx did nothing for my joint pain and/or Psoriasis but caused quite a bad eruption. For joint pain = I take Naproxen and I am wearing Butec 10 Transdermal Patches, and I have Liquid Morphine to take 2 hourly whenever the pain is severe. Have only just stopped the liquid Morphine a week ago, after being on it since beginning of December last year for severe Spine, Shoulders, Hands, Hips, Knees and Ankle Joint Pain. And these areas is where I happen to have the Psoriasis lesions.
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,273
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#26
Sun-29-01-2017, 23:40 PM
(Sun-29-01-2017, 22:56 PM)Will20 Wrote: Hi D Foster and Thanks for the Welcome.
I have Osteoarthritis - although have not been given the diagnosis officially yet by the Rheumatologist that I first saw 1 year ago this month. After having numerous Blood Tests, X Rays and Bone Scans (the technician who performed the Bone Scans told me it was Osteoarthritis). I knew I had some form of Arthritis because I had a MRI Scan on my Lower Spine/Sacral Area 5 years and 3 years ago because I hurt my back and the Scans revealed I have 2 Herniated (bulging) Disc's in my Spine and the scan revealed the Lumbar Facet Joints were Arthritic.
At first the Rheumatologist had me diagnosed as having Psoriatic Arthritis then when the test results starting coming in she then changed her diagnoses, sent my GP a letter stating it was in fact Osteoarthritis. So, I am just waiting for my next appointment to see the Rheumatologist. (Hopefully soon?).
I had much better results the first time I used Stelara it cleared my Psoriasis 99%, which is why I asked the Dermatologist if I could go back on it a second time and started it again in December 2016.  The Humira made my Psoriasis "flare up" and the Cosentyx did nothing for my joint pain and/or Psoriasis but caused quite a bad eruption. For joint pain = I take Naproxen and I am wearing Butec 10 Transdermal Patches, and I have Liquid Morphine to take 2 hourly whenever the pain is severe. Have only just stopped the liquid Morphine a week ago, after being on it since beginning of December last year for severe Spine, Shoulders, Hands, Hips, Knees and Ankle Joint Pain. And these areas is where I happen to have the Psoriasis lesions.

Naproxen caused me a stomach ulcer a few years ago after a slipped disc and the start of my PsA so now I take Tramadol . I have PsA in various areas like fingers, hips,back ,feet and now ,if that's what it is, in my neck and shoulders. You are much worse than I am as I can more or less control it with the Tramadol.Stelara cleared my P or just about all of it but before that I had MTX for 9 years plus Cyclosporine and the awful crap that caused me to have my big toe nails removed. When I first had P I had to go in hospital and they used tar wraps so we have come a long way . Just have to see what the score is on Wednesday. This is a great site that Fred has done and every one helps each other though most of the inmates are barmy. Dave.
Will20 Offline Author
Member


Posts: 60
Threads: 4
Joined: Jan 2017
Gender: Male
Location: York, Yorkshire.
Psoriasis Score: 21
Treatment: Acitretin. (2nd time)
#27
Mon-30-01-2017, 00:49 AM (This post was last modified: Mon-30-01-2017, 00:51 AM by Will20.)
Hi D Foster,
Thanks again for your reply. 
Yes, I was on Tramadol and Lyrica off and on for 4 years up until December of last year for the Back Pain.
I was diagnosed in 1973 aged 18 years and the Hospital Pharmacy used to make up lotions and creams in Brown jars of coal tar, that used to burn my skin. 
My Grandmother had Psoriasis and of her 8 children, my Father and his 2 Sisters inherited it. I am the only 1 out of 5 children to have inherited Psoriasis. My Grandmother also was diagnosed with Diabetes in her early 40's just like myself.
My Psoriasis changed it's "Personality" and became troublesome when the Diabetes emerged 17 years ago, up until then it was under control. I just have 2 Auto-Immune conditions fighting against each other. But, the Diabetes has to take No.1 priority with me.
I should fit in quite well with everyone on this forum then?  I am still finding my way around and having a few hiccups!
Thanks for chatting - I've enjoyed it.  Wink
Would you let me know how you get on on Wednesday? Thanks.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#28
Mon-30-01-2017, 01:09 AM (This post was last modified: Mon-30-01-2017, 01:11 AM by jiml.)
Will I'm following your story with great interest but really have nothing to add as fortunately I have had no experience of any of the biological drugs, so I'm reading with interest your experience and shuddering when you mention the brown jars mixed at the pharmacy of coal tar ointments

I hope things go well for you

Oh and I'm the sensible one you will find ....but we do have a few barmy ones here .....as you will find should you ever find your way into the off topic section
Will20 Offline Author
Member


Posts: 60
Threads: 4
Joined: Jan 2017
Gender: Male
Location: York, Yorkshire.
Psoriasis Score: 21
Treatment: Acitretin. (2nd time)
#29
Mon-30-01-2017, 02:26 AM
Hi jiml,
Just to say Thanks for taking an interest and making me feel Welcome.
Another thing about the Coal Tar Creams = it absolutely smelt horrible and over time it actually rotted my Clothes, Bedding and Towels.
I wonder does anybody else have allergies to certain things because of Psoriasis?
I cannot use anything that contains Lanolin or wear Woollen Garments - it just makes my skin go red and I scratch like crazy. 
My Psoriasis breaks out like a measles type rash and the "spots" get bigger and merge together into big patches, and 'flare ups' always start on my feet/ankles and then works it's way up my body. I have Plague, Guttate and Inverse Psoriasis out of the 3 the Inverse is the worst in my armpits and groin - it burns/stings like crazy 24/7, would not wish it on anybody.
Yes, I am 'stumbling' onto other threads and having a good read and then cannot remember how I got onto them in the first place. I am not very good with Computers - I just use my Tablet.
Right, that's me off then.  Good Night.
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#30
Tue-31-01-2017, 20:27 PM
Hello will20. Welcome to Psoriasis Club.
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